We all know that there remains a lot to explore, and many unmet needs are still there, with regards to lupus and people living with lupus in Europe and in the world. Since March 2018, a multidisciplinary team including doctors, academics and patient advocates have shared their thoughts and aligned priorities to improve lupus care. LUPUS EUROPE was one of the active participants in the steering team of this project, funded by GSK. Today, on World Lupus Day,  the conclusions of this work are being released.

The Vision for Lupus report highlights three important Calls to Action to address these challenges:
Awareness: Raise awareness of lupus amongst the general public, people living with lupus, their families and healthcare providers to support early diagnosis, help people with lupus feel more acknowledged and better equipped to handle their condition;
Service Delivery: Improve access to specialist and multidisciplinary lupus clinics to ensure people with lupus are receiving the best quality care possible that addresses many aspects of this complex disease;
Clinical Research: Raise awareness of ongoing clinical trials to facilitate access to research participation and involve patients in the study design of lupus clinical trials, to ensure they address the aspects of the disease which matter most to patients.

We invite you to download and disseminate the   Vision for Lupus report and watch the short videos from steering team members  that highlight some of its important findings on www.visionforlupus.org


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4 days ago

As much as we love hearing from you all and appreciate the time you take to share how you #kicklupus and inspire others, we cannot allow any content specifically about healing products for lupus.

We would greatly appreciate if you followed this rule when posting on the page.
Thank you
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1 week ago

#WorldLupusDay finishes today, but #lupusawareness does not. There is so much more we can do to make life with #lupus better. Watch our vice chair, Anne Charlet, talk about her journey of becoming a Board Member.
You can also join us and become a volunteer
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Wauvvvv SO good looking :-)

LUPUS EUROPE Uniting people with Lupus throughout Europe