in only 2 days, the INTEGRATE and  ERN ReCONNET surveys will be closed. Yet, we miss feedback from several countries, and only have 1 or 2 answers from others. It would really help our understanding of lupus and the interactions with Doctors if we had more answers from more locations. please help us gather that extra feedback by answering the surveys if you have not done yet, and by forwarding to your lupus friends… The information you will provide will be analysed by a multi-functional team, in which LUPUS EUROPE is represented, to trigger action, influence projects and/or guide decisions.

INTEGRATE SURVEY:
The survey is part of the INTEGRATE project (www.integrate-sle.eu), a project funded by the European Commission involving the University of Pisa (Italy), the University of Dusseldorf (Germany) and the Sant’ Anna School of Advanced Studies (Italy).
The aim of the project is to map the needs and expectations of patients with SLE and the rheumatologists involved in their care and management in order to design strategies integrating both points of view, with the final goal to improve management and self-management of the disease.
As SLE patient you have been invited to participate to the survey, through the LUPUS EUROPE association or your clinician, to give voice to patients with SLE.

To complete the survey (in English, Italian  or German (revised)), please follow this link https://www.integrate-sle.eu 
Thank you in advance for providing your feedback by  15th February 2019!
Your participation and your time will be really appreciated and it will surely contribute to the success of the initiative.

 

If you have some timle left, also complete the ERN RECONNET Survey :
RECONNET is the European Reference Network on rare and complex connective tissue diseases. It brings together Healthcare Providers and patients to improve the quality of care, the activity of the physicians, and the empowerment of patients across Europe. The survey collects simple feedback on different aspects related to ethical, legal and privacy issue, and on cross-border healthcare. It is available in Dutch, English, French, Italian, German, Portuguese and Spanish:
Dutch : https://goo.gl/forms/jnhl45rosttSLXUt1
English: https://goo.gl/forms/eK4v5ziNGJqRkRsr2
French: https://goo.gl/forms/q6mkhu4cl3k5YKZq1
Italian: https://goo.gl/forms/ps9uzr4piTdperyK2
German: https://goo.gl/forms/TNZRBvCFFZ3tIHon1
Portuguese: https://goo.gl/forms/UMV0tvXUFBW0wp0T2
Spanish: https://goo.gl/forms/MHgBfBRjlLVMVZeJ3

Remember that these surveys have limited availability and time is of the essence, so thank you for your prompt feedback.

THANK YOU

LUPUS EUROPE’s Board

Live Facebook Feed

Comments Box SVG iconsUsed for the like, share, comment, and reaction icons
1 week ago

🌍 Tomorrow #eular2024 kicks off!

Lupus Europe plays a significant role in this year's Congress, with a diverse range of exciting topics and great participation.

🦋 We will be sharing insights from most of the lupus sessions on X, so don't forget to follow us!

😃 Stay tuned!
... See MoreSee Less

1 week ago

🤩 EULAR Congress is around the corner!

✅ At Lupus Europe, everything is ready to make the most of one of the year's top events, and our Board & some of our PAN members will cover all the #lupus sessions 🦋.

If you are attending #EULAR2024, don't forget to visit our booth!
... See MoreSee Less

🤩 EULAR Congress is around the corner!

✅ At Lupus Europe, everything is ready to make the most of one of the years top events, and our Board & some of our PAN members will cover all the #lupus sessions 🦋.

If you are attending #EULAR2024, dont forget to visit our booth!

3 CommentsComment on Facebook

Great

Indeed natural medication is really the best. All thanks to doctor lolo for his herbal medicine he sent for me. I was having Endometriosis, Fibromyalgia, Rheumatoid arthritis for years now. But with his herbal medicine, I am totally free from these illness. You can also contact him today and be free from yours www.facebook.com/102267315741479

2 weeks ago

😃 Yes! The theme for this month is UV light, which is known to have a direct association with lupus.

☀️ Throughout June, we'll be sharing helpful information to understand the importance of avoiding UV exposure if you have lupus.

🔊 Join us and share how you #kicklupus!
... See MoreSee Less

😃 Yes! The theme for this month is UV light, which is known to have a direct association with lupus.

☀️ Throughout June, well be sharing helpful information to understand the importance of avoiding UV exposure if you have lupus.

🔊 Join us and share how you #KickLupus!
2 weeks ago

🌞 Welcome June!

🦵🐺 As we approach Summer, we will #kicklupus this month by discussing a crucial topic for everyone affected by lupus.

🤔 Can you guess?

🔊 Stay tuned as we unveil the topic and share some important insights!
... See MoreSee Less

🌞 Welcome June!

🦵🐺 As we approach Summer, we will #KickLupus this month by discussing a crucial topic for everyone affected by lupus.

🤔 Can you guess?

🔊 Stay tuned as we unveil the topic and share some important insights!

7 CommentsComment on Facebook

Of course sun protection

Thank you so much for the big work you do every day for LUPUS EUROPE! Let's kick LUPUS all together!

Sun protection ☀️🕶🏖⛱️☂️

View more comments

LUPUS EUROPE Uniting people with Lupus throughout Europe
Send