in only 2 days, the INTEGRATE and  ERN ReCONNET surveys will be closed. Yet, we miss feedback from several countries, and only have 1 or 2 answers from others. It would really help our understanding of lupus and the interactions with Doctors if we had more answers from more locations. please help us gather that extra feedback by answering the surveys if you have not done yet, and by forwarding to your lupus friends… The information you will provide will be analysed by a multi-functional team, in which LUPUS EUROPE is represented, to trigger action, influence projects and/or guide decisions.

INTEGRATE SURVEY:
The survey is part of the INTEGRATE project (www.integrate-sle.eu), a project funded by the European Commission involving the University of Pisa (Italy), the University of Dusseldorf (Germany) and the Sant’ Anna School of Advanced Studies (Italy).
The aim of the project is to map the needs and expectations of patients with SLE and the rheumatologists involved in their care and management in order to design strategies integrating both points of view, with the final goal to improve management and self-management of the disease.
As SLE patient you have been invited to participate to the survey, through the LUPUS EUROPE association or your clinician, to give voice to patients with SLE.

To complete the survey (in English, Italian  or German (revised)), please follow this link https://www.integrate-sle.eu 
Thank you in advance for providing your feedback by  15th February 2019!
Your participation and your time will be really appreciated and it will surely contribute to the success of the initiative.

 

If you have some timle left, also complete the ERN RECONNET Survey :
RECONNET is the European Reference Network on rare and complex connective tissue diseases. It brings together Healthcare Providers and patients to improve the quality of care, the activity of the physicians, and the empowerment of patients across Europe. The survey collects simple feedback on different aspects related to ethical, legal and privacy issue, and on cross-border healthcare. It is available in Dutch, English, French, Italian, German, Portuguese and Spanish:
Dutch : https://goo.gl/forms/jnhl45rosttSLXUt1
English: https://goo.gl/forms/eK4v5ziNGJqRkRsr2
French: https://goo.gl/forms/q6mkhu4cl3k5YKZq1
Italian: https://goo.gl/forms/ps9uzr4piTdperyK2
German: https://goo.gl/forms/TNZRBvCFFZ3tIHon1
Portuguese: https://goo.gl/forms/UMV0tvXUFBW0wp0T2
Spanish: https://goo.gl/forms/MHgBfBRjlLVMVZeJ3

Remember that these surveys have limited availability and time is of the essence, so thank you for your prompt feedback.

THANK YOU

LUPUS EUROPE’s Board

Live Facebook Feed

Comments Box SVG iconsUsed for the like, share, comment, and reaction icons
5 days ago
LUPUS EUROPE

As much as we love hearing from you all and appreciate the time you take to share how you #kicklupus and inspire others, we cannot allow any content specifically about healing products for lupus.

We would greatly appreciate if you followed this rule when posting on the page.
Thank you
... See MoreSee Less

1 week ago
LUPUS EUROPE

#WorldLupusDay finishes today, but #lupusawareness does not. There is so much more we can do to make life with #lupus better. Watch our vice chair, Anne Charlet, talk about her journey of becoming a Board Member.
You can also join us and become a volunteer
... See MoreSee Less

Comment on Facebook

Wauvvvv SO good looking :-)

LUPUS EUROPE Uniting people with Lupus throughout Europe
Send