Meet Marisa from Portugal!

Marisa Costa has lupus and is currently planning to run a marathon in Aarhus, Denmark August 6 this year! She needs all the help she can get and has created a crowdfunding page (see link beneath). Please help by sharing her story and showing her your full support ?

“I am Marisa Costa from Portugal. I intend to participate in the European Masters Athletics that will be held, this year, in Aarhus.

To get funding I have a crowdfunding page: https://ppl.com.pt/en/causas/campeonato-dinamarca

And I also have an athlete facebook page where I publish my accomplishments: https://www.facebook.com/MarisaCostaAtleta/

I hope I can count with your help to spread the word 🙂

Having Lupus changed my life. I want to tell my story and I want to be an example to others.”

 

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Alain Cornet

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    LUPUS EUROPE
    23 hours ago
    LUPUS EUROPE

    🌟This December, we're embarking on a mission that holds the key to effective #lupus management.

    🤔 Can you crack the code and guess the theme that ties us together this month?

    Stay tuned as we unveil the secret to a healthier, empowered lupus journey.

    🚀 Let the guessing game begin!

    #kicklupus     ... See MoreSee Less

    🌟This December, were embarking on a mission that holds the key to effective #lupus management. 🤔 Can you crack the code and guess the theme that ties us together this month? Stay tuned as we unveil the secret to a healthier, empowered lupus journey. 🚀 Let the guessing game begin! #KickLupus
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    How to try "tame the Wolf" or at least not let "Wolfie" run amock perhaps?

    LUPUS EUROPE
    2 days ago
    LUPUS EUROPE

    🟣 Living with systemic #lupus erythematosus can be a daily challenge for over 200,000 people across Europe, many of whom live with physical disabilities.

    In fact, our Living With Lupus 2020 survey reveals the profound impact #SLE can have:

    🔹 57.9% of respondents said SLE negatively affected their careers.
    🔹 Nearly 50% faced challenges in daily activities, from studying to family life.
    🔹 Fatigue remains the most reported symptom, affecting 85.3% of patients.

    🦋 These figures highlight the need for greater awareness, inclusivity, and tailored support for those living with disabilities or chronic conditions like lupus.

    🔊 On this International Day of Persons with Disabilities, let’s raise awareness to build a society where barriers are reduced and opportunities are accessible for all.

    #WorldDisabilityDay
    #IDPWD
    #InternationalDayOfPersonsWithDisabilities     ... See MoreSee Less

    🟣 Living with systemic #lupus erythematosus can be a daily challenge for over 200,000 people across Europe, many of whom live with physical disabilities. In fact, our Living With Lupus 2020 survey reveals the profound impact #SLE can have: 🔹 57.9% of respondents said SLE negatively affected their careers. 🔹 Nearly 50% faced challenges in daily activities, from studying to family life. 🔹 Fatigue remains the most reported symptom, affecting 85.3% of patients. 🦋 These figures highlight the need for greater awareness, inclusivity, and tailored support for those living with disabilities or chronic conditions like lupus. 🔊 On this International Day of Persons with Disabilities, let’s raise awareness to build a society where barriers are reduced and opportunities are accessible for all. #WorldDisabilityDay #IDPWD #InternationalDayOfPersonsWithDisabilitiesImage attachmentImage attachment
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    LUPUS EUROPE
    2 weeks ago
    LUPUS EUROPE

    🚨 One of the several factors that could potentially trigger or worsen #lupus flares is 𝗶𝗻𝗳𝗲𝗰𝘁𝗶𝗼𝗻𝘀.

    ⚠️ Did you know that around 𝗵𝗮𝗹𝗳 𝗼𝗳 #𝗦𝗟𝗘 𝗽𝗮𝘁𝗶𝗲𝗻𝘁𝘀 𝗲𝘅𝗽𝗲𝗿𝗶𝗲𝗻𝗰𝗲 𝘀𝗲𝘃𝗲𝗿𝗲 𝗶𝗻𝗳𝗲𝗰𝘁𝗶𝗼𝗻s, with 11–23% of hospitalisations linked to these complications?

    🦠 Infections not only impact overall health but are also considered a higher risk factor for mortality in lupus patients than the disease activity itself.

    💎 This highlights the importance of 𝘁𝗮𝗸𝗶𝗻𝗴 𝗽𝗿𝗲𝘃𝗲𝗻𝘁𝗶𝘃𝗲 𝗺𝗲𝗮𝘀𝘂𝗿𝗲𝘀, such as vaccinations, to reduce infection risks and keep your lupus under control.

    #kicklupus by talking to your physician about vaccination and other prevention measures!     ... See MoreSee Less

    🚨 One of the several factors that could potentially trigger or worsen #lupus flares is 𝗶𝗻𝗳𝗲𝗰𝘁𝗶𝗼𝗻𝘀. ⚠️ Did you know that around 𝗵𝗮𝗹𝗳 𝗼𝗳 #𝗦𝗟𝗘 𝗽𝗮𝘁𝗶𝗲𝗻𝘁𝘀 𝗲𝘅𝗽𝗲𝗿𝗶𝗲𝗻𝗰𝗲 𝘀𝗲𝘃𝗲𝗿𝗲 𝗶𝗻𝗳𝗲𝗰𝘁𝗶𝗼𝗻s, with 11–23% of hospitalisations linked to these complications? 🦠 Infections not only impact overall health but are also considered a higher risk factor for mortality in lupus patients than the disease activity itself. 💎 This highlights the importance of 𝘁𝗮𝗸𝗶𝗻𝗴 𝗽𝗿𝗲𝘃𝗲𝗻𝘁𝗶𝘃𝗲 𝗺𝗲𝗮𝘀𝘂𝗿𝗲𝘀, such as vaccinations, to reduce infection risks and keep your lupus under control. #KickLupus by talking to your physician about vaccination and other prevention measures!Image attachment
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    LUPUS EUROPE
    2 weeks ago
    LUPUS EUROPE

    🚨 According to Profs. @RMD_clinic & @lupusreference, 𝗶𝗻𝗳𝗲𝗰𝘁𝗶𝗼𝗻𝘀 𝗮𝗿𝗲 𝗮 𝗿𝗶𝘀𝗸 𝗳𝗮𝗰𝘁𝗼𝗿 𝗵𝗶𝗴𝗵𝗲𝗿 𝘁𝗵𝗮𝗻 𝗱𝗶𝘀𝗲𝗮𝘀𝗲 𝗮𝗰𝘁𝗶𝘃𝗶𝘁𝘆 for mortality in #SLE patients 👉 buff.ly/3rUWfTt

    🙌 This month, we talk about prevention to #KickLupus     ... See MoreSee Less

    🚨 According to Profs. @RMD_clinic & @lupusreference, 𝗶𝗻𝗳𝗲𝗰𝘁𝗶𝗼𝗻𝘀 𝗮𝗿𝗲 𝗮 𝗿𝗶𝘀𝗸 𝗳𝗮𝗰𝘁𝗼𝗿 𝗵𝗶𝗴𝗵𝗲𝗿 𝘁𝗵𝗮𝗻 𝗱𝗶𝘀𝗲𝗮𝘀𝗲 𝗮𝗰𝘁𝗶𝘃𝗶𝘁𝘆 for mortality in #SLE patients 👉 https://buff.ly/3rUWfTt 🙌 This month, we talk about prevention to #KickLupus
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    LUPUS EUROPE Uniting people with Lupus throughout Europe
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