This past weekend the six members of the Lupus Europe Board of Trustees plus Alan Cornet, Amy Somers and Zoe Karakikla-Mitsakou were supposed to meet face-to-face in Leuven, Belgium, but for reasons you can understand, this was not possible.

Thanks to understanding partners, children, roommates and dogs, we were able to have two full days of Zoom meetings.

During these two days, we: discussed the Lupus Europe Convention (you’ll hear more about that very soon): reviewed our (52!) Strategic Plan items: went over and updated our ideas and projects for Communications; made so many plans for meetings and calls regarding research, upcoming scientific events, the PAN and our sponsors; and shared any news that we have had from all of our members.

You probably recognize all the faces except one: Zoe Karakikla-Mitsakou. Zoe, (a Greek woman, living in England, who has a degree in psychology but also first-hand experience with lupus) has accepted to join Lupus Europe as a project manager. This was her first real work meeting with us, and we are so excited to be working with her!

The board members are still connecting with the country members to check up on how everyone is doing in these COVID times. So, don’t be surprised if you get an email from one of use asking to chat. We appreciated getting a live update on what is happening with Lupus Poland from Klaudia Kępa during our meeting.

This year Kirsi will be stepping down as Lupus Europe Trustee (but we are counting on her to remain involved with Lupus Europe as an experienced PAN member – we’re not letting her go just yet!). However, this means we are looking for members who are interested in taking their lupus work to a more international level: either as a trustee, or perhaps easier to start off, as a co-opt.
Contact any of the board members to ask about what either of those positions involve, and definitely ask what it’s like to work with all of us, it’s a good group!

Save the date! October 5th at 20:00 to 21:00 Paris time.

The Lupus Europe board will hold a webinar to update you on all these items. We look forward to seeing you all online!
Lupus Europe Board of Trustees

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✅ For all questions about #lupus, remember you can visit #LupusGPT & #EasyLupus: multilingual AI tools developed by Lupus Europe, powered by 🔝sources including #Lupus100.

🌐 Visit lupusgpt.org/ & easy.lupusgpt.org/ for reliable answers to your lupus questions!
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✅ For all question

🔴 Although lupus nephritis remains one of the most serious complications for SLE patients, early diagnosis and adequate treatment make remission possible in many cases ✅.

🦋 Kidney disease is a silent illness. Getting to recognise its symptoms is key to getting an early diagnosis and preventing potential complications:

1️⃣ Urine changes (in frequency or colour)
2️⃣ Swelling in 🤲 🦶 🦵
3️⃣ Foamy urine
4️⃣ High blood pressure

Prevention is key! There are many ways to take care of your kidneys:
1️⃣ Have an active life 🚶‍♂️ 🏃‍♀️
2️⃣ Don't smoke 🚭
3️⃣ Have a healthy diet 🥗 🍏
4️⃣ Check & control your blood sugar & blood pressure
5️⃣ Take the appropriate fluid intake
6️⃣ Don't take NSAIDs regularly

#WorldKidneyDay
#KidneyHealthforAll
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🚨 Today is #WorldKidneyDay! And we are supporting the World Kidney Day campaign.

People with kidney disease are among the most vulnerable people in an emergency because of their ongoing need for consistently coordinated care, which is often lifelong and involves complex ongoing treatment.

🦋 It is estimated that about 40% of #SLE patients will suffer from #lupus nephritis: one of the most dangerous and frequent complications of #SLE. Routine check-ups and early detection of symptoms are key for getting an early diagnosis.

#KidneyHealthForAll
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🇵🇹 What a week at the European Lupus Meeting 2026 in Lisbon!

You may have noticed something unusual…

🤫 Lupus Europe has been very quiet on social media throughout the Congress.

The reason? We were way too busy contributing, participating and engaging throughout #Lupus2026!

Here are just a few highlights of Lupus Europe’s involvement:

🔹 12 Fishbowl Chairs
🔹 9 abstracts supported by Lupus Europe
🔹 Our Chair, Jeanette Andersen, speaking at both the opening and closing ceremonies
🔹 6 Lupus Europe co-chairs at scientific sessions
🔹 3 interventions in sessions and interactive workshops

🚀 Beyond the scientific programme, the meeting was also completely full of valuable discussions and working meetings for ongoing projects that we are excited to share with you soon.

Over the coming weeks, we will share more about what happened in Lisbon, so keep an eye out for news!

📅 Meanwhile, don’t miss our ELM 2026 Recap Webinar as viewed by our PAN members, who were there!
🗓 16 March
⏰ 19:00 CET (i.e. Paris time)
💻 Zoom

Register now, to hear the key takeaways and highlights from this important European meeting.
Just email: secretariat@lupus-europe.org
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🇵🇹 What a week
LUPUS EUROPE Uniting people with Lupus throughout Europe
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