This past weekend the six members of the Lupus Europe Board of Trustees plus Alan Cornet, Amy Somers and Zoe Karakikla-Mitsakou were supposed to meet face-to-face in Leuven, Belgium, but for reasons you can understand, this was not possible.

Thanks to understanding partners, children, roommates and dogs, we were able to have two full days of Zoom meetings.

During these two days, we: discussed the Lupus Europe Convention (you’ll hear more about that very soon): reviewed our (52!) Strategic Plan items: went over and updated our ideas and projects for Communications; made so many plans for meetings and calls regarding research, upcoming scientific events, the PAN and our sponsors; and shared any news that we have had from all of our members.

You probably recognize all the faces except one: Zoe Karakikla-Mitsakou. Zoe, (a Greek woman, living in England, who has a degree in psychology but also first-hand experience with lupus) has accepted to join Lupus Europe as a project manager. This was her first real work meeting with us, and we are so excited to be working with her!

The board members are still connecting with the country members to check up on how everyone is doing in these COVID times. So, don’t be surprised if you get an email from one of use asking to chat. We appreciated getting a live update on what is happening with Lupus Poland from Klaudia Kępa during our meeting.

This year Kirsi will be stepping down as Lupus Europe Trustee (but we are counting on her to remain involved with Lupus Europe as an experienced PAN member – we’re not letting her go just yet!). However, this means we are looking for members who are interested in taking their lupus work to a more international level: either as a trustee, or perhaps easier to start off, as a co-opt.
Contact any of the board members to ask about what either of those positions involve, and definitely ask what it’s like to work with all of us, it’s a good group!

Save the date! October 5th at 20:00 to 21:00 Paris time.

The Lupus Europe board will hold a webinar to update you on all these items. We look forward to seeing you all online!
Lupus Europe Board of Trustees

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3 days ago

📢 Exciting updates for #LupusGPT & #EasyLupus!

🎉 We’re thrilled to announce some fantastic new upgrades to EasyLupus!

Now, the AI tool you trust for reliable lupus info is even better!

🌐 Visit lupusgpt.org/ & easy.lupusgpt.org/ and let us know what you think!
... See MoreSee Less

1 CommentComment on Facebook

Škoda, chýba mi Slovensko 🇸🇰alebo Česko 🇨🇿🥹

4 days ago

🦋 Lupus is a complex autoimmune disease, and its exact cause is not fully understood.

✋ While various risk factors have been identified, such as genetic predisposition 🧬 and exposure to certain environmental 🌇 triggers, 𝗹𝘂𝗽𝘂𝘀 𝗺𝗮𝘆 𝗻𝗼𝘁 𝗯𝗲 𝗲𝗻𝘁𝗶𝗿𝗲𝗹𝘆 𝗽𝗿𝗲𝘃𝗲𝗻𝘁𝗮𝗯𝗹𝗲.

🔍 Understanding and managing these risk factors, along with early detection and appropriate medical care, are essential in effectively addressing #lupus and improving the quality of life for individuals affected by this condition.

🤔 So, how can we #kicklupus with prevention? If you don't know, remember you can check #lupusgpt, #easylupus, and #Lupus100 for answers to all your lupus-related questions in most European languages.

i.mtrbio.com/gaaxvhxjja

i.mtrbio.com/sizgbsvmbh

i.mtrbio.com/vzcbvifkbg
... See MoreSee Less

🦋 Lupus is a complex autoimmune disease, and its exact cause is not fully understood.

✋ While various risk factors have been identified, such as genetic predisposition 🧬 and exposure to certain environmental 🌇 triggers, 𝗹𝘂𝗽𝘂𝘀 𝗺𝗮𝘆 𝗻𝗼𝘁 𝗯𝗲 𝗲𝗻𝘁𝗶𝗿𝗲𝗹𝘆 𝗽𝗿𝗲𝘃𝗲𝗻𝘁𝗮𝗯𝗹𝗲.

🔍 Understanding and managing these risk factors, along with early detection and appropriate medical care, are essential in effectively addressing #lupus and improving the quality of life for individuals affected by this condition.

🤔 So, how can we #KickLupus with prevention? If you dont know, remember you can check #LupusGPT, #EasyLupus, and #Lupus100 for answers to all your lupus-related questions in most European languages.

https://i.mtrbio.com/gaaxvhxjja

https://i.mtrbio.com/sizgbsvmbh

https://i.mtrbio.com/vzcbvifkbgImage attachmentImage attachment
7 days ago

ℹ️ We are currently implementing exciting upgrades to LupusGPT and EasyLupus to enhance your experience.

Both platforms will be back online and available in less than 24 hours
... See MoreSee Less

ℹ️ We are currently implementing exciting upgrades to LupusGPT and EasyLupus to enhance your experience.

Both platforms will be back online and available in less than 24 hours
1 week ago

📆 New month, new challenge!

🍁 As the calendar flips to November, our #kicklupus campaign has a new theme!

🤔 Can you guess what this month's theme is all about?

💡 Hint: It's all about implementing measures to help us hold #lupus at bay!

🙌 Stay tuned for a month of discovery and empowerment as we unveil the importance of these measures in managing lupus.

And remember! You can check #lupusgpt, #easylupus, and #Lupus100 for answers to any questions you may have about lupus in most European languages.

i.mtrbio.com/kthdqsitpf

i.mtrbio.com/ozxikfqllo

i.mtrbio.com/pspsuhhuzc

Ready to embark on this journey with us? 💪
... See MoreSee Less

📆  New month, new challenge!

🍁 As the calendar flips to November, our #KickLupus campaign has a new theme!

🤔 Can you guess what this months theme is all about?

💡 Hint: Its all about implementing measures to help us hold #lupus at bay!

🙌 Stay tuned for a month of discovery and empowerment as we unveil the importance of these measures in managing lupus.

And remember! You can check #LupusGPT, #EasyLupus, and #Lupus100 for answers to any questions you may have about lupus in most European languages.

https://i.mtrbio.com/kthdqsitpf

https://i.mtrbio.com/ozxikfqllo

https://i.mtrbio.com/pspsuhhuzc

Ready to embark on this journey with us? 💪

1 CommentComment on Facebook

Men with lupus

LUPUS EUROPE Uniting people with Lupus throughout Europe
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