As relayed in the media, Hydroxychloroquine (Plaquenil, Quensyl,…) is being investigated as a potential treatment for COVID-19 related pneumonia. We all hope that it will help improve the outcomes of those affected by the disease. Unfortunately, in some countries, this has resulted in stock-piling, and the unplanned increase in demand has created shortages, causing anxiety […]
I discovered in 2016 that I love running. And I created a special taste for competition. I am a master athlete and I have Lupus. I was diagnosed with Lupus at the age of 15 and I am an athlete since the age of 35. Now I’m 40 and I can’t stop running. I had […]
20th annual European Congress of Rheumatology took place in Madrid in June 2019. The Congress was hosted by the European League Against Rheumatism (EULAR) and jointly organised with the Paediatric Rheumatology European Society (PReS). There were 14,500 attendees from 120 countries and the scientific programme included presentations from 4,900 abstracts submitted. Three Trustees attended the […]
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Lupus Europe is the umbrella association of currently 29 national lupus self-help organisations throughout Europe, and supports people with lupus in Europe.
🗣️ Register for our next #EUPATI #Essentials training today🙌
✔️ Content builds on #Fundamentals training
✔️ Professionals experienced in #patientengagment
✔️ Establishing successful relationships with #patients
More 👉 http://bit.ly/3VnJiLG
#Training #Professionals #Register
🧵 Short summary thread on our recent publication looking at the impact of Anti-Rituximab Antibodies in #SLE with our recent manuscript published in @RheumJnl
This has been a story that we have been looking at for a few years now
💻 Link -
Anti-rituximab antibodies demonstrate neutralising capacity, associate with lower circulating drug levels and earlier relapse in lupus
AbstractObjectives. High rates of anti-drug antibodies (ADA) to rituximab have been demonstrated in patients undergoing ...
✅ Very happy to report that we have started a multilateral discussion to harmonize the way antinuclear antibodies (ANA) testing results are communicated to physicians and patients. This is absolutely crucial to decrease diagnosis delays for #autoimmune diseases such as #lupus 👍
We are what we eat .. and this is also true for our immune system including #Treg cells in #SLE. See our paper with @GeorgeTsokos out now in @ScienceAdvances 🔓 https://tinyurl.com/ymvam4x3 see thread
The Portuguese Lupus Association was born in 1992. Since then, they have provided #SLE patients with all kinds of support (even financial). Did you know they even have a house where patients can stay when they have appointments in Lisbon? Get to know more! https://buff.ly/3Voj6Ak
Excellent read in @NatRevRheumatol about #HydroxyChloroquine in #lupus. Current guidelines recommend HCQ at 5 mg/kg per day or lower to minimize toxicity. New evidence raises concerns about the risk of #SLE flare associated with such doses. #rheumatology
Hydroxychloroquine dose: balancing toxicity and SLE flare risk
Nature Reviews Rheumatology - Contemporary guidelines for the management of systemic lupus erythematosus (SLE) recommend ...
📢 Only 3 days left until the Research Webinar on EULAR ASBTRACT 2023, tips from the Scientific Programme Chair with Prof. Marta Mosca, Professor of Rheumatology (IT)
📆 Monday, 5 December 2022, 17:00 - 18:00 CET
Click here to learn more and register 👉https://pulse.ly/ee2eyhe3rb
Studying the characteristics of pregnant women with #SLE is key to implement the necessary tools to ⬇️ the risks in this population. @gerardespinosa5 et al. from @BCNatalResearch & @MAS_Clinic have conducted a study in pregnant women with SLE, #APS or Non-Criteria Obstetric APS
Take a look at our latest collaborative work between @BCNatalResearch and @MAS_Clinic 👇👇👇👇
Are you ready?
GRAHAM HUGHES AUTOIMMUNITY ORATION-22
Prof. Y. Shoenfeld @oldtautwit
The Mosaic of Autoimmunity
📅 viernes 02.12.2022
Aula Magna @CampusClinicUB
Registration free➡️ http://ow.ly/36iZ50LRfu9
If you lost the Lupus White Book webinar, held on October 21, you can listen it at the following link https://www.youtube.com/watch?v=xmoe9_gGrrI
💻 We want to explore the current landscape of social media by #rheumatology professionals:
How can we support global scientific exchange? Reduce disparity in educational opportunities online?
Take the survey now 👉 https://pulse.ly/fqmlxt7d95
#eularEMEUNET #EULAR #rheumatologist
Lupus patients are at high risk of infections due to #SLE & its treatments. In this great review, @DrMiniDey @ElenaNikiUK et al. compare infection frequency, site & type across immune-modulatory drugs. Great work and visual that will aid when prescribing! https://buff.ly/3VoiAST
@MuhammadShipa @MikeEhrenstein @VersusArthritis @LUPUSUK Molecular signature-based decision making in the era of targeted therapies for systemic #lupus erythematosus
Linked Comment by @IoannisParodis https://www.thelancet.com/journals/lanrhe/article/PIIS2665-9913(22)00358-7/fulltext
NEW RESEARCH—In an exploratory analysis of the BEAT-LUPUS RCT @MuhammadShipa and colleagues examine biomarkers for response to B-cell-targeted therapies in systemic lupus erythematosus https://www.thelancet.com/journals/lanrhe/article/PIIS2665-9913(22)00332-0/fulltext @MikeEhrenstein @VersusArthritis @LUPUSUK #OpenAccess
On #UHCDay📅Monday 12 December, join us to make #UHC for rare diseases a reality for the over 300 million PLWRD worldwide.
"UHC for rare diseases: Developing Key pillars together" with @UNHumanRights @CSOs4UHC @UHC2030 @FEDER_ONG @irdirc✨
✅ Oh that's cool, we've just been granted a special link for free and direct access to our @JAADjournals paper about the #history of systemic #lupus for the next 50 days 👍 The paper is not new but now is freely downloadable by everyone 😎
Find out the latest #EMEUNETwhatisnew about #SLE or #ConnectiveTissueDiseases clinical research by @cristianasieiroat on our website
Read more 👉 https://emeunet.eular.org/sle_ctd.cfm
Do you have any cases of exposure to belimumab during pregnancy?
#EULAR #eularEMEUNET #rheumatology
✅ SAVE THE DATE for a #WEBINAR about #Lupus and #FATIGUE that we will organize for @ern_reconnet with @LouKawka on the 18th of January 2023 at 17:00 (CET) [which is 11:00 EST]. WE WILL PRESENT THE RESULTS OF THE #LEAF study about fatigue in #SLE 👍
Anti-drug antibodies (ADA) can be produced after administration of biological therapies.
ADA to RTX are common in SLE patients & demonstrate neutralising capacity & associate with ⬇️circulating drug levels & earlier relapse.
Study by @chriswincup et al. https://buff.ly/3FcMwfm
We're very lucky that we will be co-organising with @eurordis this pilot "Team building training" with the partecipation of #ERN #ePAGs and WG chairs testing the training.
This will be a great opportunity to reinforce existing collaborations and improve how we work together.
Welcome to Lupus Europe. To join our pan-European community, please contact us.