Volunteering can be incredibly rewarding, important, and empowering.

 

With that in mind we want to announce the Kick Lupus 2023 Competition, a competition that this year is all about volunteering!

 

To enter the Kick Lupus 2023 Competition, send us your testimonial on “How has volunteering for a lupus organisation helped changed my life?”

 

Let us know how volunteering for a lupus organisation helped change your life! You can do this in the format of your choice, whether that is a short video, a brief email, a long essay, a drawing, or cartoon or indeed any kind of format you choose!

 

To take part in the Competition you have to meet the following conditions:

 

  • Be a lupus patient living in Europe
  • You must be over 18 years old
  • You must make the submission yourself, in whatever format you choose
  • You must have experience volunteering for a lupus patient organisation

 

The prize is: The winner of this competition will be invited to the Lupus Europe 2023 Convention, which we hope will be in Lisbon!

 

Please send all submissions to: zoe@lupus-europe.org

 

The deadline to submit your testimonial is: February 28, 2023

 

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🚨 New publication alert: EULAR recommendations for the management of systemic lupus erythematosus with kidney involvement- 2025 update.

‼️ According to Lupus Europe's 2024 Swiss knife survey:

1️⃣ Kidney involvement remains one of the most worrying and impactful lupus manifestations for many people in Europe.
2️⃣ Kidney problems are among the manifestations causing the greatest long-term concern.
3️⃣ Only a small minority of patients report long-term stability without flares.
4️⃣ Patients want clearer goals, better communication, and care that looks beyond lab values alone.

That is why the 2025 update of the EULAR recommendations for the management of systemic lupus erythematosus with kidney involvement is such an important step forward.

✅ These updated recommendations reinforce several key messages that matter to patients:
- Early and regular monitoring of kidney involvement.
- Timely kidney biopsy when needed.
- Clear treatment targets to preserve kidney function.
- A strong focus on combination therapies when appropriate.
- Long-term kidney protection, not only short-term control.

🌟 We are especially proud that our Chair, Jeanette Andersen, was part of the international task force that developed these recommendations, ensuring that the patient perspective was present at the table.

You can read the EULAR Recommendations here: ard.eular.org/article/S0003-4967(25)04412-7/fulltext

And the Swiss Knife Survey here: www.sciencedirect.com/science/article/pii/S1568997225000989
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🚨 New publication

😃 Thank you to all who attended our latest Youth Group webinar!

🌟 So many interesting questions were asked and addressed! Showing how important safe spaces arefor talking openly about lupus without judgment.

Did you miss it? Watch it here! 👇

Alcohol & Drugs - Lupus
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😃 Thank you to al

🚨 𝗟𝗮𝘀𝘁 𝗰𝗵𝗮𝗻𝗰𝗲❗

🙏 Help Prof Laurent Arnaud and his team validate the Lupus Brain Fog Severity Scale.

✅ Make lupus brain fog measurable.

⏱️ 5 minutes of your time can make a huge impact!

lupusresearch.limequery.org/337533?lang=en
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🚨 𝗟𝗮𝘀�
LUPUS EUROPE Uniting people with Lupus throughout Europe
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