Let’s Kick Lupus together in 2017

LUPUS EUROPE would like to extend warm wishes to all its members, partners and supporters. We hope that you all have a wonderful festive season and that the New Year is full of promise and fulfillment.

2016 has been a busy year for us, promising exciting times ahead. We are delighted to have had several abstracts presented at important Lupus events and to be involved in several new initiatives where the patient organisation takes on its role as a more equal partner in the healthcare field.

For 2017, our wish is that we all start to KICK LUPUS together! So much remains to be done towards our vision of a life without lupus… and yet there is so much we can do if each of us kicks lupus every day:

Kick Lupus is kicking yourself into shape by increasing your physical activity: it is proven to help reduce tiredness and pain over time and every little helps.

Kick Lupus is raising the patient voice and increasing our skills for better participation in research and inclusion of Patient Reported outcomes.

Kick Lupus is starting a better life by adhering to treatment, and working with the medical community for broader implementation of Standards of Care.

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Kick lupus is kicking ideas around: How can we better meet the needs of young people with lupus? How can we strengthen patient/doctor communication? How can we be active in the workplace?

Kick Lupus is raising awareness and support by volunteering in your local group, participating in events, or helping make a great World Lupus Day.

Kick Lupus is strengthening the links between LUPUS EUROPE, its members, and everyone living with lupus around Europe.

There are so many way we can all KICK LUPUS… Let’s get started! BEST WISHES FOR 2017 from all of us here on the LUPUS EUROPE board and secretariat.

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LUPUS EUROPE, convention 2016, in Würzburg, Germany

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2 weeks ago
LUPUS EUROPE

In Lupus Europe, we work hard to fulfil our mission. A very important part of that work is to not only be successful in the projects we undertake, but to have high standards and to work collaboratively with #lupus patients, our member organisations and also with lupologists!

This morning we had a medical roundtable meeting, where we had the opportunity to discuss our Strategic Plan for 2023-2028 with a team of incredible lupologists: Professors Arnaud, Houssiau, Limper, Mosca and Schneider gave us incredibly useful feedback today and we had a very productive meeting with them!
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In Lupus Europe, we work hard to fulfil our mission. A very important part of that work is to not only be successful in the projects we undertake, but to have high standards and to work collaboratively with #lupus patients, our member organisations and also with lupologists! 

This morning we had a medical roundtable meeting, where we had the opportunity to discuss our Strategic Plan for 2023-2028 with a team of incredible lupologists: Professors Arnaud, Houssiau, Limper, Mosca and Schneider gave us incredibly useful feedback today and we had a very productive meeting with them!Image attachment
3 weeks ago
LUPUS EUROPE

We are delighted to announce the start of our annual #KickLupus competition! Send your submission in the format of your choice (drawing/video/writing) & tell us:
How has volunteering for a #lupus organisation helped change your life?
Amazing prize to be announced soon!
... See MoreSee Less

We are delighted to announce the start of our annual #KickLupus competition! Send your submission in the format of your choice (drawing/video/writing) & tell us: 
How has volunteering for a #lupus organisation helped change your life? 
Amazing prize to be announced soon!
3 weeks ago
LUPUS EUROPE

LUPUS EUROPE • Newsletter • November 2022

Have you read our latest newsletter?
Read all about it by going to
mailchi.mp/lupus-europe.org/lupus-europe-newsletter-november2022
... See MoreSee Less

LUPUS EUROPE • Newsletter • November 2022

Have you read our latest newsletter? 
Read all about it by going to
https://mailchi.mp/lupus-europe.org/lupus-europe-newsletter-november2022

Comment on Facebook

Защо не се превеждат статийте за лупус

3 weeks ago
LUPUS EUROPE

"Effective doctor-patient communication is crucial in building a successful therapeutic doctor-patient relationship". This will bring benefits for both doctors & patients and will have an impact on the clinical outcomes.

Learn more about patient-doctor relationship from Prof. Chiara Tani by watching this video and tell us:
How is your relationship with your doctor?
Do you think it helps with adherence and other aspects of your disease?

youtu.be/JUhIx2fjJ_c
... See MoreSee Less

Effective doctor-patient communication is crucial in building a successful therapeutic doctor-patient relationship. This will bring benefits for both doctors & patients and will have an impact on the clinical outcomes. 

Learn more about patient-doctor relationship from Prof. Chiara Tani by watching this video and tell us: 
How is your relationship with your doctor? 
Do you think it helps with adherence and other aspects of your disease?

https://youtu.be/JUhIx2fjJ_c

Comment on Facebook

Moi personnellement pour l'instant c'est galere

Crucial❣️

LUPUS EUROPE Uniting people with Lupus throughout Europe
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