Let’s Kick Lupus together in 2017

LUPUS EUROPE would like to extend warm wishes to all its members, partners and supporters. We hope that you all have a wonderful festive season and that the New Year is full of promise and fulfillment.

2016 has been a busy year for us, promising exciting times ahead. We are delighted to have had several abstracts presented at important Lupus events and to be involved in several new initiatives where the patient organisation takes on its role as a more equal partner in the healthcare field.

For 2017, our wish is that we all start to KICK LUPUS together! So much remains to be done towards our vision of a life without lupus… and yet there is so much we can do if each of us kicks lupus every day:

Kick Lupus is kicking yourself into shape by increasing your physical activity: it is proven to help reduce tiredness and pain over time and every little helps.

Kick Lupus is raising the patient voice and increasing our skills for better participation in research and inclusion of Patient Reported outcomes.

Kick Lupus is starting a better life by adhering to treatment, and working with the medical community for broader implementation of Standards of Care.

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Kick lupus is kicking ideas around: How can we better meet the needs of young people with lupus? How can we strengthen patient/doctor communication? How can we be active in the workplace?

Kick Lupus is raising awareness and support by volunteering in your local group, participating in events, or helping make a great World Lupus Day.

Kick Lupus is strengthening the links between LUPUS EUROPE, its members, and everyone living with lupus around Europe.

There are so many way we can all KICK LUPUS… Let’s get started! BEST WISHES FOR 2017 from all of us here on the LUPUS EUROPE board and secretariat.

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LUPUS EUROPE, convention 2016, in Würzburg, Germany

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🚨 New publication alert: EULAR recommendations for the management of systemic lupus erythematosus with kidney involvement- 2025 update.

‼️ According to Lupus Europe's 2024 Swiss knife survey:

1️⃣ Kidney involvement remains one of the most worrying and impactful lupus manifestations for many people in Europe.
2️⃣ Kidney problems are among the manifestations causing the greatest long-term concern.
3️⃣ Only a small minority of patients report long-term stability without flares.
4️⃣ Patients want clearer goals, better communication, and care that looks beyond lab values alone.

That is why the 2025 update of the EULAR recommendations for the management of systemic lupus erythematosus with kidney involvement is such an important step forward.

✅ These updated recommendations reinforce several key messages that matter to patients:
- Early and regular monitoring of kidney involvement.
- Timely kidney biopsy when needed.
- Clear treatment targets to preserve kidney function.
- A strong focus on combination therapies when appropriate.
- Long-term kidney protection, not only short-term control.

🌟 We are especially proud that our Chair, Jeanette Andersen, was part of the international task force that developed these recommendations, ensuring that the patient perspective was present at the table.

You can read the EULAR Recommendations here: ard.eular.org/article/S0003-4967(25)04412-7/fulltext

And the Swiss Knife Survey here: www.sciencedirect.com/science/article/pii/S1568997225000989
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🚨 New publication

😃 Thank you to all who attended our latest Youth Group webinar!

🌟 So many interesting questions were asked and addressed! Showing how important safe spaces arefor talking openly about lupus without judgment.

Did you miss it? Watch it here! 👇

Alcohol & Drugs - Lupus
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😃 Thank you to al

🚨 𝗟𝗮𝘀𝘁 𝗰𝗵𝗮𝗻𝗰𝗲❗

🙏 Help Prof Laurent Arnaud and his team validate the Lupus Brain Fog Severity Scale.

✅ Make lupus brain fog measurable.

⏱️ 5 minutes of your time can make a huge impact!

lupusresearch.limequery.org/337533?lang=en
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🚨 𝗟𝗮𝘀�
LUPUS EUROPE Uniting people with Lupus throughout Europe
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