This past year has been very difficult for so many people around the globe. But positives can often be found even in crises and difficult circumstances! Finding the positives and holding onto them is the spirit of Kick Lupus!

 

With that in mind, we want to announce the Kick Lupus 2021 Competition, My Covid19 Lupus Hero!

 

Is there a special person whose support for you really shone through this past year, through the covid19 crisis? Did someone make life easier for you in a practical way? Was there someone you could always rely on to provide emotional support during this crisis?

 

The Covid19 Lupus Hero Competition 2021 is your chance to nominate that special person for a Covid19 Lupus Hero Award!

 

A Covid19 Lupus Hero may be your neighbour who has been going shopping for you during the pandemic, it might be someone in your lupus clinic who has made you feel safe when you’ve had to go in for reviews or treatment or it might be a friend who has been diligent about keeping in touch in various ways throughout the year, even though you couldn’t meet in person. Who is your Covid19 Lupus Hero?

 

To enter the Covid19 Lupus Hero 2021 Competition you have to send us a nomination.

 

 

Let us know about your hero! You can do this in the format of your choice, whether that is a 30 to 60 second video, a short e-mail, an essay of a few paragraphs, a drawing with a short text, a cartoon or any kind of format you choose!

 

To take part you have to meet the following conditions:

 

  • Be a lupus patient living in Europe
  • You must make the submission yourself, in whatever format you choose
  • You must have the approval of the person you are nominating to share their information with us

 

The prize is:  The winner of this competition and their Covid19 Lupus Hero will both be invited to the Lupus Europe 2021 Convention which we hope will be in Bratislava!

Please send all submissions to: zoe@lupus-europe.org

 

The deadline for the submission is: June 30, 2021

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🤩 May 10 is the #WorldLupusDay! And our Youth Group is commemorating it with a 𝐬𝐩𝐞𝐜𝐢𝐚𝐥 𝐰𝐞𝐛𝐢𝐧𝐚𝐫 focused on one of the most important and often overlooked topics for young people living with lupus: 𝐟𝐞𝐫𝐭𝐢𝐥𝐢𝐭𝐲 𝐚𝐧𝐝 𝐟𝐚𝐦𝐢𝐥𝐲 𝐩𝐥𝐚𝐧𝐧𝐢𝐧𝐠.

👩‍⚕️ How does lupus affect fertility?
💊 What should you consider before planning a pregnancy?
🧠 How can healthcare professionals better support young patients in these decisions?

This session brings together clinical expertise and real patient perspectives to provide clear, practical insights.

📅 𝐌𝐚𝐲 𝟏𝟎
⏰ 7 pm CET (i. e. Paris time)

🎙️ Speaker: Prof. Laura Andreoli
🗣️ Moderated by our Chair, Jeanette Andersen
👥 Organised with the Lupus Europe Youth Group

📌 Whether you are living with lupus, supporting someone who is, or working in healthcare, this webinar is for you.

👉 Don't wait any longer and register now! Send an email to secretariat@lupus-europe.org
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🤩 May 10 is the #

🌈 Beyond what you’ve experienced, something awaits.

🌟 A new way to approach your consultation is coming.

Make your consultation count.

💥 Stay tuned

#MakeItCount
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🆘 𝗦𝗸𝗶𝗻 𝗺𝗮𝘁𝘁𝗲𝗿𝘀 𝗶𝗻 𝗹𝘂𝗽𝘂𝘀.

🌍 The World Health Organisation has opened a public consultation on the draft Global Action Plan on Skin Diseases, a strategic framework that will guide governments in developing national plans on skin diseases.

🟣 Why is this important for the #Lupus community?

👉 75–80% of people with SLE experience skin involvement. Skin lupus, including ACLE, SCLE and CDLE, has seen no new treatment options for over 80 years.

💬 This is an important opportunity to make sure that the voices of people living with lupus and the wider civil society community are heard.

📅 Deadline: 10 May- #WorldLupusDay
🔗 Add your voice and share with your community: www.who.int/news-room/articles-detail/public-consultation--draft-global-action-plan-on-skin-disea...
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🆘 𝗦𝗸𝗶�

❤️‍🔥 Something big is coming...

... this #WorldLupusDay 🌍.

#makeitcount
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LUPUS EUROPE Uniting people with Lupus throughout Europe
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