Better late than never… it is time to introduce our newest board member, Sara Badreh. Sara was elected to the board at our convention in Würzburg. We are delighted to have her on board and we’re sure that she will be a huge asset to our team. As you can see from her photo, Sara has a great sense of fun and is a lovely bubbly person to work with.

 

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“I am now 31 years old, meaning I have lived with SLE for half my life. I was diagnosed as a 16-year-old girl and from that moment on my life changed. I knew that one day, when I had this disease under control, I would dedicate my life to helping others in the same situation and contribute to how research, medical strategies, patient care and awareness of Lupus evolve in the future.

After a master’s degree in Molecular Life Sciences I am currently working at the Center for Molecular Medicine (CMM) at the Karolinska in Stockholm where I study the proteins involved in different singling mechanisms. I am also interested in starting and pursuing a PhD within the field of Rheumatology. Besides research I am also currently a board member of the Swedish Rheumatic Association at a district level, as well as at a regional level for Stockholm. What’s more, I am now a Lupus Europe Trustee and board member. 

Working with those organisations, as well as being involved at a research level, gives me the unusual opportunity of having one foot in both worlds. I can push research by having a voice in the field as well as I listening to the patients and catering to their needs.
I want to be as involved as much I possibly can, at every level. This is what I want to dedicate my life to. Making patients’ lives better and inspiring others with Lupus, while showing that you can do and become anything you want.”

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🦋 #WorldLupusDay is coming to an end!

❤️ Thank you all for the support you have shown throughout this important day, as people around the world have come together to raise awareness of the impact lupus can have.

🌈 At Lupus Europe, we believe there is something very important we also need to show the world: our vitality, our energy, and our will to enjoy life, take part, contribute, and be heard.

🌟 Our vision is a fulfilling life for all people with lupus in Europe, until we reach a world without lupus.

😃 We work hard. We show up. We support each other. We all live with lupus in different ways, even if our amazing Lupus Europe family sometimes seems to forget about it when we are at an event, in a meeting, or working together for the organisation.

🦋 Lupus is an invisible illness with many faces. Let’s close this #WorldLupusDay with our hopes, our laughter and our enthusiasm for life.

💬 That is why today we also want to remind you of our #MakeItCount campaign and the 𝐋𝐮𝐩𝐮𝐬 𝐂𝐨𝐧𝐬𝐮𝐥𝐭𝐚𝐭𝐢𝐨𝐧 𝐂𝐚𝐫𝐝𝐬.

These cards are designed to help people living with lupus prepare for medical appointments, organise their thoughts, identify what matters most, and make consultations more focused and meaningful.

🌺 Visit our website, download the Lupus Consultation Cards, and use them at your next appointment.

www.lupus-europe.org/lupus-consultation-cards/

Because your priorities, questions, and needs deserve a place in every consultation.
Let’s #MakeItCount.
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💜 Thank you to everyone who joined our Youth Group webinar on fertility, family planning & lupus today!

Important conversations like these help tackle fears, misconceptions & unanswered questions around lupus and reproductive health.

🦋 Don't forget to include this topic in the Lupus Consultation cards in your next appointment!

#MakeItCount. Check out this new tool that helps patients prepare for consultations and improve communication with healthcare professionals.

Available in many languages!

📌 Download here:
www.lupus-europe.org/lupus-consultation-cards/
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LUPUS EUROPE Uniting people with Lupus throughout Europe
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