EULAR Young PARE youth meeting

SAVE THE DATE

 2nd EULAR Young PARE youth meeting 
Friday 21 October – Sunday 23 October 2016
Corsendonke de Linde, Retie, Belgium


This email serves for you to block the dates in your calendar, for when our 2nd EULAR Young PARE youth meeting will take place. The location is Corsendonke de Linde, Retie, Belgium.  Please share this email with anyone who would be interested in attending. 

Why are you receiving this email? 
1. You’ve been chosen as the youth contact person for your organisation*
2. You are the dedicated PARE liaison and we want all PARE organisations to be informed what is happening in EULAR about activities from Young PARE
3. You are between 18 and 35 years old and have attended the EULAR Annual European Conference of PARE in Sofia 2016

Criteria for the participants include: 
• 18 to 35 years old
• living with a rheumatic or musculoskeletal disease (RMD), or closely working with young people with RMDs (e.g. carers, patient advocates)
• one young person per organisation*
• 35 participants in total will be chosen by the EULAR Young PARE working group  

* organisation (in this context means) either member organisation of PARE, youth organisation, youth group 

More information will follow very soon. We look forward to seeing you!


Kind regards,

Florian Klett, on behalf of
The EULAR Young PARE Working Group

Website: www.youngpare.org
Facebook: www.facebook.com/EULARYoungPARE
Twitter: www.twitter.com/EULARYoungPARE 

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    LUPUS EUROPE
    2 days ago
    LUPUS EUROPE

    🫂This month, #KickLupus focuses on the power of support. Because whether you’re navigating lupus yourself or supporting someone who is, one thing is clear: no one should face it alone.

    🦋 #Lupus is a lifelong condition that can potentially impact any tissue or organ in the body, affecting many aspects of life.

    ‼️It can also affect our mental health!

    🌈 That’s why finding support is so crucial—it can transform how we cope with lupus, manage this autoimmune condition and thrive in life.

    Check out the one in your country on our website and get in touch! www.lupus-europe.org/lupus-members/     ... See MoreSee Less

    🫂This month, #KickLupus focuses on the power of support. Because whether you’re navigating lupus yourself or supporting someone who is, one thing is clear: no one should face it alone. 🦋 #Lupus is a lifelong condition that can potentially impact any tissue or organ in the body, affecting many aspects of life. ‼️It can also affect our mental health! 🌈 That’s why finding support is so crucial—it can transform how we cope with lupus, manage this autoimmune condition and thrive in life. Check out the one in your country on our website and get in touch! https://www.lupus-europe.org/lupus-members/Image attachmentImage attachment+3Image attachment
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    I"m from Portugal 💜 Don't have much suport😢

    LUPUS EUROPE
    4 days ago
    LUPUS EUROPE

    The Lupus Europe Youth Group Webinar on SEX and #lupus is just around the corner!

    🗓 May 3rd | 19h CET
    🎙 With Dr Cristiana Sieiro Santos
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    LUPUS EUROPE
    1 week ago
    LUPUS EUROPE

    🚨 Today is #wordday2025! which stands for WOrld Young Rheumatic Disease Day.

    🌍 Through this global event, we can spread the word that children and young people get rheumatic diseases like lupus, too.

    ‼️ It is estimated that around 15-20% of #lupus patients are children, although it is rare that a child develops lupus before 5 years of age.

    As with adult patients, the cause of lupus remains unknown, and there is a great choice of treatments to keep the disease under control.

    🔴 On average, it takes nearly 6 years for people with lupus to be diagnosed. This delay in diagnosis, and therefore in treatment, can have an impact on the prognosis and quality of life of patients; this includes kids.

    😰 The moment your child gets a diagnosis might be overwhelming for you. This feeling of overwhelm can and does go away with time and with access to the right information.

    👉 Remember: it is impossible to learn everything about #lupus overnight! Your child's doctor is the best source of information.

    Apart from pharmacological treatment, other non-pharmacological measures can also help in lupus management.

    📷 Take a look at the images we are sharing today to learn about these non-pharmacological measures and share them with your community to help us raise awareness.

    🐺 Lupus can seem scary at first. Remember that you are not alone and that you are going to do a great job!

    Turn to your lupus association for support.

    🤗 There are many organisations across Europe that can help you and your child cope with the disease.

    More information on #sle in children at #Lupus100: f.mtr.cool/gfhbfdafvv

    For more information on WORD Day, you can visit World Young Rheumatic Diseases Day - WORD Day     ... See MoreSee Less

    🚨 Today is #WORDDAY2025! which stands for WOrld Young Rheumatic Disease Day. 🌍 Through this global event, we can spread the word that children and young people get rheumatic diseases like lupus, too. ‼️ It is estimated that around 15-20% of #lupus patients are children, although it is rare that a child develops lupus before 5 years of age. As with adult patients, the cause of lupus remains unknown, and there is a great choice of treatments to keep the disease under control. 🔴 On average, it takes nearly 6 years for people with lupus to be diagnosed. This delay in diagnosis, and therefore in treatment, can have an impact on the prognosis and quality of life of patients; this includes kids. 😰 The moment your child gets a diagnosis might be overwhelming for you. This feeling of overwhelm can and does go away with time and with access to the right information. 👉 Remember: it is impossible to learn everything about #lupus overnight! Your childs doctor is the best source of information. Apart from pharmacological treatment, other non-pharmacological measures can also help in lupus management. 📷 Take a look at the images we are sharing today to learn about these non-pharmacological measures and share them with your community to help us raise awareness. 🐺 Lupus can seem scary at first. Remember that you are not alone and that you are going to do a great job! Turn to your lupus association for support. 🤗 There are many organisations across Europe that can help you and your child cope with the disease. More information on #SLE in children at #Lupus100: https://f.mtr.cool/gfhbfdafvv For more information on WORD Day, you can visit World Young Rheumatic Diseases Day - WORD DayImage attachmentImage attachment+6Image attachment
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    Herbalist SIMEON 𝐦𝐞𝐝𝐢𝐜𝐢𝐧𝐞 𝐩𝐫𝐞𝐯𝐞𝐧𝐭 𝐚𝐧𝐝 𝐜𝐮𝐫𝐞 𝐇𝐞𝐫𝐩𝐞𝐬, 𝐥𝐮𝐩𝐮𝐬, 𝐀𝐋𝐒, 𝐓𝐢𝐧𝐞𝐚 𝐕𝐞𝐫𝐬𝐢𝐜o𝐥𝐨𝐫, 𝐂𝐊𝐃,, autism, fibromyalgia, kidney stones 𝐃𝐢𝐚𝐛𝐞𝐭𝐢𝐜𝐬. 𝐀𝐫𝐭𝐡𝐫𝐢𝐭𝐢𝐬 𝐌𝐒, 𝐚𝐧𝐝 𝐦𝐚𝐧𝐲 𝐦𝐨𝐫𝐞, 𝐬𝐚𝐲 𝐧𝐨 𝐭𝐨 𝐚𝐧𝐲𝐭𝐡𝐢𝐧𝐠 𝐫𝐞𝐥𝐚𝐭𝐢𝐧𝐠 𝐭𝐨 𝐯𝐢𝐫𝐮𝐬 & 𝐝𝐢𝐬𝐞𝐚𝐬𝐞𝐬, 𝐜𝐨𝐥𝐝 𝐬𝐨𝐫𝐞 𝐨𝐫 𝐭𝐡𝐲𝐫𝐨𝐢𝐝 𝐂𝐚𝐧𝐜𝐞𝐫, 𝐜𝐨𝐧𝐭𝐚𝐜𝐭 𝐡𝐢𝐦 𝐭𝐨𝐝𝐚𝐲 𝐚𝐧𝐝 𝐜𝐮𝐫𝐞 𝐲𝐨𝐮𝐫𝐬𝐞𝐥𝐟 𝐟𝐫𝐨𝐦 𝐃𝐢𝐚𝐛𝐞𝐭𝐞𝐬, 𝐇𝐈𝐕, 𝐏𝐢𝐥𝐞 Brain tumor 𝐚𝐧𝐝 𝐦𝐚𝐧𝐲 𝐦𝐨𝐫𝐞✨ FB page below👇👇👇 www.facebook.com/doctorsimon1

    𝐃octor Droigiangbe u* 𝐦𝐞𝐝𝐢𝐜𝐢𝐧𝐞 𝐩𝐫𝐞𝐯𝐞𝐧𝐭 𝐚𝐧𝐝 𝐜𝐮𝐫𝐞 𝐇𝐞𝐫𝐩𝐞𝐬, 𝐥𝐮𝐩𝐮𝐬, 𝐀𝐋𝐒, 𝐓𝐢𝐧𝐞𝐚 𝐕𝐞𝐫𝐬𝐢𝐜𝐨𝐥𝐨𝐫, 𝐂𝐊𝐃,, autism, fibromyalgia, kidney stones 𝐃𝐢𝐚𝐛𝐞𝐭𝐢𝐜𝐬. 𝐀𝐫𝐭𝐡𝐫𝐢𝐭𝐢𝐬 𝐌𝐒, 𝐚𝐧𝐝 𝐦𝐚𝐧𝐲 𝐦𝐨𝐫𝐞, 𝐬𝐚𝐲 𝐧𝐨 𝐭𝐨 𝐚𝐧𝐲𝐭𝐡𝐢𝐧𝐠 𝐫𝐞𝐥𝐚𝐭𝐢𝐧𝐠 𝐭𝐨 𝐯𝐢𝐫𝐮𝐬 & 𝐝𝐢𝐬𝐞𝐚𝐬𝐞𝐬, 𝐜𝐨𝐥𝐝 𝐬𝐨𝐫𝐞 𝐨𝐫 𝐭𝐡𝐲𝐫𝐨𝐢𝐝 𝐂𝐚𝐧𝐜𝐞𝐫, 𝐜𝐨𝐧𝐭𝐚𝐜𝐭 𝐡𝐢𝐦 𝐭𝐨𝐝𝐚𝐲 𝐚𝐧𝐝 𝐜𝐮𝐫𝐞 𝐲𝐨𝐮𝐫𝐬𝐞𝐥𝐟 𝐟𝐫𝐨𝐦 𝐃𝐢𝐚𝐛𝐞𝐭𝐞𝐬, 𝐇𝐈𝐕, 𝐏𝐢𝐥𝐞 Brain tumor 𝐚𝐧𝐝 𝐦𝐚𝐧𝐲 𝐦𝐨𝐫𝐞✨ FB page below👇👇 www.facebook.com/Droigiangbe-114637101534059/

    LUPUS EUROPE
    2 weeks ago
    LUPUS EUROPE

    🔴 Tomorrow is #WORDDAY2025!

    🦋 And we will be sharing tips and information on how #lupus can affect children.

    Help us raise awareness, which is key for an early diagnosis & a quick referral to a specialised paediatric rheumatologist.

    Share our posts and follow the World Young Rheumatic Diseases Day - WORD Day campaign.

    More information on lupus in children at #Lupus100 (multiple languages):

    f.mtr.cool/qrvtyjqmpf     ... See MoreSee Less

    🔴 Tomorrow is #WORDDAY2025! 🦋 And we will be sharing tips and information on how #lupus can affect children. Help us raise awareness, which is key for an early diagnosis & a quick referral to a specialised paediatric rheumatologist. Share our posts and follow the World Young Rheumatic Diseases Day - WORD Day campaign. More information on lupus in children at #Lupus100 (multiple languages): https://f.mtr.cool/qrvtyjqmpf
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    LUPUS EUROPE Uniting people with Lupus throughout Europe
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