A call from the European Patients’ Forum:

In order to gain some more insight on โ€œdirectโ€ experiences of patients, EPF would like to get in touch with patients who have accessed treatment across borders (whether under the regulation or the directive), who have tried to access cross-border healthcare, who have tried to find out information about cross-border healthcare, whether they were successful or not.

Know someone in that position? Please share our call!

Deadline 15th March. For more information.

 

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2 weeks ago

๐Ÿšจ ๐‹๐š๐ฌ๐ญ ๐๐š๐ฒ ๐ญ๐จ ๐œ๐จ๐ฆ๐ฉ๐ฅ๐ž๐ญ๐ž ๐ญ๐ก๐ž ๐ฌ๐ฎ๐ซ๐ฏ๐ž๐ฒโ—

๐Ÿ“ˆ In 2020, our "Living with Lupus" survey revealed the significant burden and vast differences in #SLE care across Europe from the patient's perspective.

๐Ÿ”ŠThese findings have become invaluable to lupologists worldwide, shaping how this complex disease is understood and managed.

๐ŸŽฏ The insights from this new survey aim to build on the previous data, helping to refine treatment approaches and care strategies.

โ€ผ๏ธ Your participation is crucial in providing a comprehensive view of the current challenges and needs faced by those living with lupus.

โœ… The results will not only assist physicians but also inform patients and policymakers, playing a key role in advancing lupus care and advocacy efforts. This is your chance to contribute to a better understanding of lupus and to ensure that care strategies are as effective and tailored as possible.

๐Ÿ•’ Complete this anonymous survey before May 15th and help us capture the diverse experiences of individuals affected by lupus across Europe.

๐ŸŒ Available in 21 Languages:

๐Ÿ‡จ๐Ÿ‡ฟ Czech s.surveylegend.com/-NtkhoZPH8WNeA5e2ZCC
๐Ÿ‡ฉ๐Ÿ‡ฐ Danish s.surveylegend.com/-NqmjTjyUXHGLMmAu5qS
๐Ÿ‡ฉ๐Ÿ‡ช German s.surveylegend.com/-Nr0_sVBruuAHJTsHkuE
๐Ÿ‡ฌ๐Ÿ‡ท Greek s.surveylegend.com/-Nr5KNkcBGDrsYl1F1xG
๐Ÿ‡ช๐Ÿ‡ธ Spanish s.surveylegend.com/-Nudx9pGv-1XtZ6OnYWs
๐Ÿ‡ฌ๐Ÿ‡ง English s.surveylegend.com/-NqgyR5b7jLpCyBwEssv
๐Ÿ‡ช๐Ÿ‡ช Estonian s.surveylegend.com/-Nt145Q5s02kLYdspFDs
๐Ÿ‡ซ๐Ÿ‡ท French s.surveylegend.com/-NrWK4Io8HFYwgd_JF9W
๐Ÿ‡ฎ๐Ÿ‡น Italian s.surveylegend.com/-NsvfEBWVnGf0eLQEC-0
๐Ÿ‡ณ๐Ÿ‡ด Norwegian s.surveylegend.com/-NrQBaJNQ4HcwZblYzh5
๐Ÿ‡ฑ๐Ÿ‡น Lithuanian s.surveylegend.com/-NqwWcQ0UhyMxDtCBYRD
๐Ÿ‡ณ๐Ÿ‡ฑ Dutch s.surveylegend.com/-NqgyeOSaTVcd7gBoK15
๐Ÿ‡ต๐Ÿ‡ฑ Polish s.surveylegend.com/-Nr1vl1sxwISBcDaeOzP
๐Ÿ‡ท๐Ÿ‡ด Romanian s.surveylegend.com/-NrUOqKxZuU6V6KLfWoG
Russian s.surveylegend.com/-NtkhreGgEglDg9AeMfH
๐Ÿ‡ธ๐Ÿ‡ฎ Slovenian s.surveylegend.com/-Nt-wdNdIqT4v3ptXEM1
๐Ÿ‡ซ๐Ÿ‡ฎ Finnish s.surveylegend.com/-NrB_0Hf4Z-ZAZH55K7U
๐Ÿ‡บ๐Ÿ‡ฆ Ukrainian s.surveylegend.com/-Nt1t0lpqlsn9jRPHe-3
๐Ÿ‡ง๐Ÿ‡ฌ Bulgarian s.surveylegend.com/-NuOC4mQDrt8udTrqS85
๐Ÿ‡ต๐Ÿ‡น Portuguese s.surveylegend.com/-NuPMTJ2TjOzn2Oxa3Hi
๐Ÿ‡ญ๐Ÿ‡บ Hungarian s.surveylegend.com/-Nucu0zQ8je0kzInRWb8
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2 weeks ago

โ€ผ๏ธ #Lupus is more than a disease with physical symptoms such as pain and fatigue; it's an illness that can influence every part of your life.

โš ๏ธ #SLE can potentially affect a wide range of daily activities, from educational pursuits and career development to maintaining family relationships and social activities.

โœ… That is one of the reasons why you have to complete the "Living with Lupus in 2024" survey: to understand the real-world impact of lupus to be able to advocate for better support, care, and treatment options.

๐ŸŒŸ Your insights are invaluable in shaping effective interventions and enhancing support systems for everyone affected by this complex condition in Europe.

๐Ÿ™ Don't miss this unique opportunity to advocate for change and push for advancements in how lupus is managed and treated, ensuring that every individual receives the care they deserve.

๐Ÿ”— Click on this link and select your language: s.surveylegend.com/-Nr54WsZrcnC-4BwDBrG
... See MoreSee Less

โ€ผ๏ธ #Lupus is more than a disease with physical symptoms such as pain and fatigue; its an illness that can influence every part of your life.

โš ๏ธ #SLE can potentially affect a wide range of daily activities, from educational pursuits and career development to maintaining family relationships and social activities.

โœ… That is one of the reasons why you have to complete the Living with Lupus in 2024 survey: to understand the real-world impact of lupus to be able to advocate for better support, care, and treatment options.

๐ŸŒŸ Your insights are invaluable in shaping effective interventions and enhancing support systems for everyone affected by this complex condition in Europe.

๐Ÿ™ Dont miss this unique opportunity to advocate for change and push for advancements in how lupus is managed and treated, ensuring that every individual receives the care they deserve.

๐Ÿ”— Click on this link and select your language: https://s.surveylegend.com/-Nr54WsZrcnC-4BwDBrGImage attachmentImage attachment+1Image attachment
2 weeks ago

โ™ฆ๏ธ Few days left to fill the Living With Lupus in 2024 survey!

โœ๐Ÿป Izpolnite anketo.

๐Ÿ”Š Delite z vaลกo skupnostjo.

๐Ÿ™ Help us achieve more answers to ensure the Slovak population is represented in the results

s.surveylegend.com/-Nt-wdNdIqT4v3ptXEM1

#lupusawarenessmonth
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LUPUS EUROPE Uniting people with Lupus throughout Europe
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