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Today, Tuesday, December 6th Chair Kirsten Lerstrøm, LUPUS EUROPE, was invited to address the European Parliament Interest Group on Rheumatic and Muscoskeletal Diseases (RMDs) on Patients’ Perspectives on Improving Access to Care and Therapies for People with Rare RMDs at the meeting of “Policy Issues and Challenges in the Treatment and Care of Rare Diseases”.

Interview with LUPUS EUROPE chair, Kirsten Lerstrøm, at the American College of Rheumatology annual meeting. https://www.facebook.com/IFAutoimmuneArthritis/videos/713406432141129/

  The 3rd of December is Patient Solidarity Day. Support IAPO’s (International Alliance of Patient Organisations) Thunderclap through your social media accounts by clicking here: http://thndr.me/7mJakT For more information on what a Thunderclap is and how to use it, click here. The aim is to reach at least 100 supporters on Thunderclap, otherwise the message won’t be shared on […]

Before the end of the year, we are sending our last reminder! We would like to thank you for your participation and kindly ask, for one last time, to inform your members of our questionnaire. The study is going very well so far, we have had almost 400 responses from 26 different countries. The greater the […]

The deadline for the European survey on sunscreen application in patients with lupus erythematosus (SmiLE-Survey) has been extended until November 15, 2016. You can reach the survey at the following link http://www.euscle.org/survey. Please feel free to share in your own networks.

Good luck Andreas in the New York marathon tomorrow. All your friends in LUPUS EUROPE are rooting for you!!!

We are nearly there, Andreas Panteli will be running for LUPUS EUROPE in the New York Marathon on 6th November. Experience the World’s Biggest Marathon You can catch the excitement of the TCS New York City Marathon from anywhere on the planet. In the New York tri-state area, the race broadcasts live on WABC-TV, Channel […]

For those of you who may have missed it or who are not signed up on our mailing list, here is the link to the convention report for LUPUS EUROPE’s annual convention which was held this year from 28th September – 2nd October 2016. If you don’t currently receive our newsletters and emails and would like […]

2 weeks to go, Running for Lupus Hej, Tere, Hei, Χαιρετώ, Bonjour, Hallo, Helló, Ciao, Olá, Ahoj, Hallå, Hola, Grüezi, Halló, Dia dhuit, Shalom, As-salam alaykom, Buna, Sveiki, Zdravo Many things have happened since the last blog post. As you can see in the above picture, the t-shirt design has been finalised and ordered for printing. You will […]

The 18th edition of the EULAR Annual European Congress of Rheumatology is now open for registration! To find out more, click here.