Category: Uncategorized

There has been a good response to the sunscreens survey with 2,000 respondents so far. To really make sure this survey is a good reflection of our situations, more responses are needed. Please continue to share the link in your patient network. The deadline for responses is 31st October 2016. The European Society of Cutaneous Lupus […]

Today is World Arthritis Day. A day being honoured by The EULAR Conference on reducing the burden of chronic diseases in the workplace for people with RMDs. The conference is focusing on identifying and discussing relevant issues related to the working environment and how to move forwards. The conference was opened by EULAR president Prof. Gerd R. […]

EPF publishes a guide for patient organisations on the new Data Protection Regulation The new Regulation on personal data protection (EU/2016/679) was published in May 2016 and will apply from May 2018. It provides more rights to citizens to be better informed about the use made of their personal data, and gives clearer responsibilities to […]

The LUPUS EUROPE convention has come to a close. Four intensive days of work, sharing, inspiration, education and exchange! We have all learned a lot from each other and from the wonderful speakers who shared their knowledge with us. A huge thank you goes out to our members who made this convention a great success […]

The European Lupus Meeting is a scientific congress focusing on clinical practice and lupus research in Europe, that takes place every other year. This year it will take place in Venice from October 5th – 8th. Between 500-700 people, with the majority being doctors from the rheumatology or immunology fields, but also various other specialties, will attend to get updated […]

The European Patients’ Forum survey on Access to healthcare will be closing on 31st October. They still need your responses. The survey is very quick to fill out and your replies are very important. Thanks a lot for supporting EPF and their members (including LUPUS EUROPE) by taking this survey. You can find more information and a […]

There are just under two weeks to go before LUPUS EUROPE holds its annual convention. This year we will be in Würzburg, Germany and also celebrating the 30th anniversary of one of our members, Lupus Germany. We are looking forward to an inspiring convention, with lots of things to share. See you there!

The European Society of Cutaneous Lupus Erythematosus e.V. (EUSCLE e.V.) has set up a European survey on sunscreen application in patients with lupus erythematosus. LUPUS EUROPE has been closely involved in this important project. The aim of the observational study “Sunscreens in Patients with Lupus Erythematosus (SmiLE)” is to investigate the type of sunscreen applied by […]

Phase IIB Clinical Trial of Voclosporin Successfully Achieves Primary Endpoint Good news posted yesterday on the Lupus Foundation of America website. To see the full article please click here. “(Washington DC – August 15)  Today Aurinia Pharmaceutical Company announced positive top-line results of a Phase IIB clinical study of voclosporin, a potential new therapy option for […]

EPF launches its survey on Access to Healthcare. This is a project that LUPUS EUROPE has been actively involved in as a participant in the Access to Healthcare work group at EPF. Designed by patients and patient representatives, EPF launches a unique survey on access to healthcare. Share your experience on access and help us […]