The lovely Petra Balážová from Slovakia has a wonderful blog called Petronela’s Journey, where she talks about healthy eating, life with lupus and so many other very interesting topics. Petra has kindly allowed us to republish one of her video interviews with rheumatologist Dr. Alessia Alunno here, on a very interesting topic; lupus fatigue. Here it is: 

Understanding fatigue in lupus can make your life easier. For the longest time I have been asking myself… What is fatigue? What is the cause of it? Do I have some other medical condition that is making me so overly tired? Why am I also emotionally tired? What I can do about it? If you are asking the same questions, this video is for you. I interviewed a rheumatologist, Dr. Alessia Alunno, who shed some light on this topic for us. Share this video with your friends who could benefit from it.

https://www.youtube.com/watch?fbclid=IwAR388wPisZjsdYleurbEnmLW6oBR7dKxbmuoEjijXNpcTRdyQQrNQW6YNI0&v=o53GNtVk58A&feature=youtu.be

Many thanks to Petra for allowing us to share her video about such an important topic!

Her blog can be found at: https://www.petronelas.com/en/

The blog’s Facebook page can be found at: https://www.facebook.com/petronelasjourney[/vc_column_text][/vc_column][/vc_row]

Live Facebook Feed

Comments Box SVG iconsUsed for the like, share, comment, and reaction icons

🚨 New publication alert: EULAR recommendations for the management of systemic lupus erythematosus with kidney involvement- 2025 update.

‼️ According to Lupus Europe's 2024 Swiss knife survey:

1️⃣ Kidney involvement remains one of the most worrying and impactful lupus manifestations for many people in Europe.
2️⃣ Kidney problems are among the manifestations causing the greatest long-term concern.
3️⃣ Only a small minority of patients report long-term stability without flares.
4️⃣ Patients want clearer goals, better communication, and care that looks beyond lab values alone.

That is why the 2025 update of the EULAR recommendations for the management of systemic lupus erythematosus with kidney involvement is such an important step forward.

✅ These updated recommendations reinforce several key messages that matter to patients:
- Early and regular monitoring of kidney involvement.
- Timely kidney biopsy when needed.
- Clear treatment targets to preserve kidney function.
- A strong focus on combination therapies when appropriate.
- Long-term kidney protection, not only short-term control.

🌟 We are especially proud that our Chair, Jeanette Andersen, was part of the international task force that developed these recommendations, ensuring that the patient perspective was present at the table.

You can read the EULAR Recommendations here: ard.eular.org/article/S0003-4967(25)04412-7/fulltext

And the Swiss Knife Survey here: www.sciencedirect.com/science/article/pii/S1568997225000989
... See MoreSee Less

🚨 New publication

😃 Thank you to all who attended our latest Youth Group webinar!

🌟 So many interesting questions were asked and addressed! Showing how important safe spaces arefor talking openly about lupus without judgment.

Did you miss it? Watch it here! 👇

Alcohol & Drugs - Lupus
... See MoreSee Less

😃 Thank you to al

🚨 𝗟𝗮𝘀𝘁 𝗰𝗵𝗮𝗻𝗰𝗲❗

🙏 Help Prof Laurent Arnaud and his team validate the Lupus Brain Fog Severity Scale.

✅ Make lupus brain fog measurable.

⏱️ 5 minutes of your time can make a huge impact!

lupusresearch.limequery.org/337533?lang=en
... See MoreSee Less

🚨 𝗟𝗮𝘀�
LUPUS EUROPE Uniting people with Lupus throughout Europe
Send