LUPUS EUROPE – INFO CENTER

On this page, we want to share some key information and links that we found particularly relevant for people living with lupus in Europe. These can be recent scientific publications, information, news from our members, old articles that are still very valuable today. we will update this selection as new articles pop up, so come back regularly…

While we do our utmost to select credible sources of information and quality publications, the articles and links reflect the views of their authors rather than of LUPUS EUROPE.

LATEST LUPUS EUROPE NEWS

See our latest Blog articles, initiatives or projects.

Living with lupus in 2020 - SURVEY PUBLISHED

Thank you to the 5922 respondents

Hydroxychloroquine Dosing survey

Our survey on HcQ dosing, retinopathy and adherence is published in Lupus Science and medicine!

Anifrolumab

Anifrolumab has now been approved by the European Medicines Agency (EMA) as an add-on therapy for the treatment of active, moderate to severe SLE

Lupusreference TWEETS

Prof. L. Arnaud is very active on twitter, often with recent news in 1 slide

EULAR on Vaccination

Read the updated EULAR recommendations for vaccination of people with an autoimmune inflammatory rheumatic disease

WANT TO MAKE A POSTER?

See attached Simon Stones slides explaining how to make a poster for a scientific event!

COVID impact on rare diseases patients

look at the attached infographic made by EURORDIS based on 6945 answers

This is Living

Go to the campaign's autoimmune conditions webpage!

Do you know ERN ReCONNET

This is the European Reference Network responsible for lupus

VACOLUP Study

Learn about the Tolerance of COVID19 Vaccines in Lupus Patients

EULAR 2021

Read Our Top Takeaways from EULAR 2021

EULAR 2021

Summary of Key Abstracts on Lupus Treatment - by Prof. Arnaud

What are ERNs?

Find out about Patient Involvement in the ERNs

Live Facebook Feed

Comments Box SVG iconsUsed for the like, share, comment, and reaction icons
LUPUS EUROPE
15 hours ago
LUPUS EUROPE

Did you miss our joint webinar with ERN RECONNET?

Among other things, Prof. Laurent Arnaud talked about the new EULAR recommendations for the management of #lupus and the main changes that have been introduced.

Watch it and tell us what you think about them!

Did you know that our Chair, Jeanette Andersen was part of the task force?
😃

EULAR 2023 Debrief – for people living with lupus LIVE LINK ... See MoreSee Less

Did you miss our joint webinar with ERN RECONNET? Among other things, Prof. Laurent Arnaud talked about the new EULAR recommendations for the management of #lupus and the main changes that have been introduced. Watch it and tell us what you think about them! Did you know that our Chair, Jeanette Andersen was part of the task force? 😃 https://www.facebook.com/LupusEurope/videos/1464013921069862
View on Facebook
· Share
Share on Facebook Share on Twitter Share on Linked In Share by Email
View Comments
  • Likes: 7
  • Shares: 4
  • Comments: 1

Comment on Facebook

Thkx

LUPUS EUROPE
17 hours ago
LUPUS EUROPE

Today is #WORLDAPSDAY, an autoimmune disease that affects 20-30% of people with #lupus.

#APS can cause:

- Excessive blood clotting.
- Certain pregnancy complications.
Pregnancy planning and close monitoring are key to reduce the risk in pregnancy in patients with APS.

#pregnancy #planning #SLE #awareness #APSAwareness ... See MoreSee Less

Today is #WorldAPSDay, an autoimmune disease that affects 20-30% of people with #lupus. #APS can cause: - Excessive blood clotting. - Certain pregnancy complications. Pregnancy planning and close monitoring are key to reduce the risk in pregnancy in patients with APS. #pregnancy #planning #SLE #awareness #apsawareness
View on Facebook
· Share
Share on Facebook Share on Twitter Share on Linked In Share by Email
View Comments
  • Likes: 8
  • Shares: 1
  • Comments: 0

Comment on Facebook

LUPUS EUROPE
2 days ago
LUPUS EUROPE

Did you know? We presented 6️⃣ abstracts for #EULAR2023, and all 6️⃣ of them were accepted!

We also...

🙌 Had 2️⃣ oral presentations.
🙌 3️⃣ posters.
🙌 Alain Cornet was one of the abstract award winners.
🙌 Zoe presented in the scientific abstract plenary session.

Watch the interview Dr. Anthony Psarras made with Alain Cornet in Milan!

youtu.be/lLNJmCJ7iqk ... See MoreSee Less

Did you know? We presented 6️⃣ abstracts for #EULAR2023, and all 6️⃣ of them were accepted! We also... 🙌 Had 2️⃣ oral presentations. 🙌 3️⃣ posters. 🙌 Alain Cornet was one of the abstract award winners. 🙌 Zoe presented in the scientific abstract plenary session. Watch the interview Dr. Anthony Psarras made with Alain Cornet in Milan! https://youtu.be/lLNJmCJ7iqk
View on Facebook
· Share
Share on Facebook Share on Twitter Share on Linked In Share by Email
View Comments
  • Likes: 1
  • Shares: 1
  • Comments: 0

Comment on Facebook

LUPUS EUROPE was live.
3 days ago
LUPUS EUROPE

... See MoreSee Less

PlayEULAR 2023 Debrief – for people living with lupus LIVE LINK
View on Facebook
· Share
Share on Facebook Share on Twitter Share on Linked In Share by Email
View Comments
  • Likes: 9
  • Shares: 4
  • Comments: 11

Comment on Facebook

Thank you Martijn, for your question! We will ensure your question is raised 🙂

Thank you for following this joint Lupus Europe / ERN ReCONNET webinar! If you have any questions for the speakers, please post them here and we will ensure they are raised! 😃

Hi from Corfu thank you for this it was really helpful!!!

I am curious about diet and microbiome as well. I think the topic is very much understudied and not good understood - but has great influence.

There are huge differences!

Are there possibility’s with food to have remission

There were only young people for the treatment with Car-T cells In am nog young any more. Is ther hope for me?

Only on my phone de zoom started. I do not know why

Metty Staal volgt

What is there to expect the coming years. I mean mean in treatments?

Thank you very much professor Arnoud

View more comments