Join the Lupus Europe Patient Panel for Men – Apply Now!

Lupus Europe is organising a Patient Panel for Men this autumn and there are a few remaining spots available for those who want to apply!

📍 Where: Leuven, Belgium
📅 When: (Arrival) Friday 31 October in the afternoon – Sunday 2 November 2025 (departure after lunch)
👥 Who is organising: Lupus Europe. The Panel will be animated by Andreas Panteli (Lupus Suisse) & Ricky Chotai (Lupus Europe)

Much remains to be discovered about lupus. Not just disease mechanisms or new treatments, but also a better understanding of what it means to live with lupus, the day to day realities faced by patients, the impact on social and psychological functioning. To help people living with lupus bring their life experience to the table, Lupus Europe created Patient Panels, by and for people with lupus. The panels bring together 10-15 persons living with lupus from all over Europe to discuss a topic of interest. Discussions are animated by People living with lupus themselves, creating a unique atmosphere in the group, and allowing to speak in full confidence, without anyone else in the room. Participants can simply be themselves and speak in their voice.

Who can apply:

  • Any man living with lupus in Europe
  • Can speak conversational English (doesn’t need to be perfect)
  • Want to meet other men

What we provide:

  • All reasonable travel and hotel costs paid by Lupus Europe
  • Sessions made by men with lupus, for men with lupus
  • Time to ask questions
  • Chance to make friends and get support

How to apply:

 

Apply now! Don’t delay!

 

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About the author

Zoe Karakikla-Mitsakou

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    LUPUS EUROPE
    11 hours ago

    🛑 Lupus is a complex autoimmune chronic condition with symptoms and treatments that can potentially impact one’s sexual life and, consequently, quality of life.

    💥 Symptoms like pain, fatigue, or joint stiffness can make physical intimacy challenging, while emotional factors such as anxiety, depression, and changes in body image can further complicate sexual well-being.

    🚨In addition to lupus, overlapping conditions such as Sjögren’s disease and antiphospholipid syndrome could also be a barrier to a fulfilling sexual life, as the former can cause vaginal dryness and discomfort during intercourse, and the latter can increase the risk of complications that may affect overall well-being and intimacy.

    💊 Furthermore, certain medications used to manage lupus and related conditions could potentially have adverse effects on sexual health (corticosteroids, for instance, can lead to weight gain, mood swings, and decreased libido).

    ‼️Although sexual dysfunction is highly prevalent among patients with autoimmune rheumatic diseases (AIRD), it remains under-recognised, under-discussed & under-treated in routine clinical care.

    🔊 And that is why, on this #EuropeanSexualHealthDay, we want to raise awareness about the importance of addressing sexual health as a vital component of overall well-being     ... See MoreSee Less

    🛑 Lupus is a compImage attachmentImage attachment
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    LUPUS EUROPE
    2 days ago

    📣 Upcoming ERN RECONNET Webinar on Lupus Nephritis!

    ➡️ “What is the added value of triple therapy in lupus nephritis” ⬅️

    🗓 11 March 2026
    ⏰ 4:00 p.m. CET (i.e., Paris time).

    🎙 Speaker: Dr Antonis Fanouriakis
    🎙 Moderators: Prof. Dr Matthias Schneider & Zoe Karakikla-Mitsakou, General Secretary of Lupus Europe.

    Lupus nephritis remains one of the most serious complications of systemic lupus erythematosus, and treatment strategies continue to evolve as new evidence emerges.

    🔎 This webinar will explore:
    •⁠ ⁠The scientific rationale for triple therapy.
    •⁠ ⁠Current clinical evidence.
    •⁠ ⁠What this may mean for outcomes in lupus nephritis.

    Whether you are a healthcare professional, researcher, or patient, this session is not to be missed!

    Register now! us06web.zoom.us/webinar/register/WN_41Lc9osLQ6m7nOuJGGWnHw#/registration     ... See MoreSee Less

    📣 Upcoming ERN RE
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    LUPUS EUROPE
    1 week ago

    🚨 New publication alert: EULAR recommendations for the management of systemic lupus erythematosus with kidney involvement- 2025 update.

    ‼️ According to Lupus Europe's 2024 Swiss knife survey:

    1️⃣ Kidney involvement remains one of the most worrying and impactful lupus manifestations for many people in Europe.
    2️⃣ Kidney problems are among the manifestations causing the greatest long-term concern.
    3️⃣ Only a small minority of patients report long-term stability without flares.
    4️⃣ Patients want clearer goals, better communication, and care that looks beyond lab values alone.

    That is why the 2025 update of the EULAR recommendations for the management of systemic lupus erythematosus with kidney involvement is such an important step forward.

    ✅ These updated recommendations reinforce several key messages that matter to patients:
    - Early and regular monitoring of kidney involvement.
    - Timely kidney biopsy when needed.
    - Clear treatment targets to preserve kidney function.
    - A strong focus on combination therapies when appropriate.
    - Long-term kidney protection, not only short-term control.

    🌟 We are especially proud that our Chair, Jeanette Andersen, was part of the international task force that developed these recommendations, ensuring that the patient perspective was present at the table.

    You can read the EULAR Recommendations here: ard.eular.org/article/S0003-4967(25)04412-7/fulltext

    And the Swiss Knife Survey here: www.sciencedirect.com/science/article/pii/S1568997225000989     ... See MoreSee Less

    🚨 New publication
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    LUPUS EUROPE Uniting people with Lupus throughout Europe
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