This past year has been very difficult for so many people around the globe. But positives can often be found even in crises and difficult circumstances! Finding the positives and holding onto them is the spirit of Kick Lupus!

 

With that in mind, we want to announce the Kick Lupus 2021 Competition, My Covid19 Lupus Hero!

 

Is there a special person whose support for you really shone through this past year, through the covid19 crisis? Did someone make life easier for you in a practical way? Was there someone you could always rely on to provide emotional support during this crisis?

 

The Covid19 Lupus Hero Competition 2021 is your chance to nominate that special person for a Covid19 Lupus Hero Award!

 

A Covid19 Lupus Hero may be your neighbour who has been going shopping for you during the pandemic, it might be someone in your lupus clinic who has made you feel safe when you’ve had to go in for reviews or treatment or it might be a friend who has been diligent about keeping in touch in various ways throughout the year, even though you couldn’t meet in person. Who is your Covid19 Lupus Hero?

 

To enter the Covid19 Lupus Hero 2021 Competition you have to send us a nomination.

 

 

Let us know about your hero! You can do this in the format of your choice, whether that is a 30 to 60 second video, a short e-mail, an essay of a few paragraphs, a drawing with a short text, a cartoon or any kind of format you choose!

 

To take part you have to meet the following conditions:

 

  • Be a lupus patient living in Europe
  • You must make the submission yourself, in whatever format you choose
  • You must have the approval of the person you are nominating to share their information with us

 

The prize is:  The winner of this competition and their Covid19 Lupus Hero will both be invited to the Lupus Europe 2021 Convention which we hope will be in Bratislava!

Please send all submissions to: zoe@lupus-europe.org

 

The deadline for the submission is: June 30, 2021

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🛑 Lupus is a complex autoimmune chronic condition with symptoms and treatments that can potentially impact one’s sexual life and, consequently, quality of life.

💥 Symptoms like pain, fatigue, or joint stiffness can make physical intimacy challenging, while emotional factors such as anxiety, depression, and changes in body image can further complicate sexual well-being.

🚨In addition to lupus, overlapping conditions such as Sjögren’s disease and antiphospholipid syndrome could also be a barrier to a fulfilling sexual life, as the former can cause vaginal dryness and discomfort during intercourse, and the latter can increase the risk of complications that may affect overall well-being and intimacy.

💊 Furthermore, certain medications used to manage lupus and related conditions could potentially have adverse effects on sexual health (corticosteroids, for instance, can lead to weight gain, mood swings, and decreased libido).

‼️Although sexual dysfunction is highly prevalent among patients with autoimmune rheumatic diseases (AIRD), it remains under-recognised, under-discussed & under-treated in routine clinical care.

🔊 And that is why, on this #EuropeanSexualHealthDay, we want to raise awareness about the importance of addressing sexual health as a vital component of overall well-being
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🛑 Lupus is a compImage attachmentImage attachment

📣 Upcoming ERN RECONNET Webinar on Lupus Nephritis!

➡️ “What is the added value of triple therapy in lupus nephritis” ⬅️

🗓 11 March 2026
⏰ 4:00 p.m. CET (i.e., Paris time).

🎙 Speaker: Dr Antonis Fanouriakis
🎙 Moderators: Prof. Dr Matthias Schneider & Zoe Karakikla-Mitsakou, General Secretary of Lupus Europe.

Lupus nephritis remains one of the most serious complications of systemic lupus erythematosus, and treatment strategies continue to evolve as new evidence emerges.

🔎 This webinar will explore:
•⁠ ⁠The scientific rationale for triple therapy.
•⁠ ⁠Current clinical evidence.
•⁠ ⁠What this may mean for outcomes in lupus nephritis.

Whether you are a healthcare professional, researcher, or patient, this session is not to be missed!

Register now! us06web.zoom.us/webinar/register/WN_41Lc9osLQ6m7nOuJGGWnHw#/registration
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📣 Upcoming ERN RE

🚨 New publication alert: EULAR recommendations for the management of systemic lupus erythematosus with kidney involvement- 2025 update.

‼️ According to Lupus Europe's 2024 Swiss knife survey:

1️⃣ Kidney involvement remains one of the most worrying and impactful lupus manifestations for many people in Europe.
2️⃣ Kidney problems are among the manifestations causing the greatest long-term concern.
3️⃣ Only a small minority of patients report long-term stability without flares.
4️⃣ Patients want clearer goals, better communication, and care that looks beyond lab values alone.

That is why the 2025 update of the EULAR recommendations for the management of systemic lupus erythematosus with kidney involvement is such an important step forward.

✅ These updated recommendations reinforce several key messages that matter to patients:
- Early and regular monitoring of kidney involvement.
- Timely kidney biopsy when needed.
- Clear treatment targets to preserve kidney function.
- A strong focus on combination therapies when appropriate.
- Long-term kidney protection, not only short-term control.

🌟 We are especially proud that our Chair, Jeanette Andersen, was part of the international task force that developed these recommendations, ensuring that the patient perspective was present at the table.

You can read the EULAR Recommendations here: ard.eular.org/article/S0003-4967(25)04412-7/fulltext

And the Swiss Knife Survey here: www.sciencedirect.com/science/article/pii/S1568997225000989
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🚨 New publication
LUPUS EUROPE Uniting people with Lupus throughout Europe
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