EULAR Young PARE youth meeting

SAVE THE DATE

 2nd EULAR Young PARE youth meeting 
Friday 21 October – Sunday 23 October 2016
Corsendonke de Linde, Retie, Belgium


This email serves for you to block the dates in your calendar, for when our 2nd EULAR Young PARE youth meeting will take place. The location is Corsendonke de Linde, Retie, Belgium.  Please share this email with anyone who would be interested in attending. 

Why are you receiving this email? 
1. You’ve been chosen as the youth contact person for your organisation*
2. You are the dedicated PARE liaison and we want all PARE organisations to be informed what is happening in EULAR about activities from Young PARE
3. You are between 18 and 35 years old and have attended the EULAR Annual European Conference of PARE in Sofia 2016

Criteria for the participants include: 
• 18 to 35 years old
• living with a rheumatic or musculoskeletal disease (RMD), or closely working with young people with RMDs (e.g. carers, patient advocates)
• one young person per organisation*
• 35 participants in total will be chosen by the EULAR Young PARE working group  

* organisation (in this context means) either member organisation of PARE, youth organisation, youth group 

More information will follow very soon. We look forward to seeing you!


Kind regards,

Florian Klett, on behalf of
The EULAR Young PARE Working Group

Website: www.youngpare.org
Facebook: www.facebook.com/EULARYoungPARE
Twitter: www.twitter.com/EULARYoungPARE 

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Alain Cornet

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    LUPUS EUROPE
    13 hours ago

    🛑 Lupus is a complex autoimmune chronic condition with symptoms and treatments that can potentially impact one’s sexual life and, consequently, quality of life.

    💥 Symptoms like pain, fatigue, or joint stiffness can make physical intimacy challenging, while emotional factors such as anxiety, depression, and changes in body image can further complicate sexual well-being.

    🚨In addition to lupus, overlapping conditions such as Sjögren’s disease and antiphospholipid syndrome could also be a barrier to a fulfilling sexual life, as the former can cause vaginal dryness and discomfort during intercourse, and the latter can increase the risk of complications that may affect overall well-being and intimacy.

    💊 Furthermore, certain medications used to manage lupus and related conditions could potentially have adverse effects on sexual health (corticosteroids, for instance, can lead to weight gain, mood swings, and decreased libido).

    ‼️Although sexual dysfunction is highly prevalent among patients with autoimmune rheumatic diseases (AIRD), it remains under-recognised, under-discussed & under-treated in routine clinical care.

    🔊 And that is why, on this #EuropeanSexualHealthDay, we want to raise awareness about the importance of addressing sexual health as a vital component of overall well-being     ... See MoreSee Less

    🛑 Lupus is a compImage attachmentImage attachment
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    LUPUS EUROPE
    3 days ago

    📣 Upcoming ERN RECONNET Webinar on Lupus Nephritis!

    ➡️ “What is the added value of triple therapy in lupus nephritis” ⬅️

    🗓 11 March 2026
    ⏰ 4:00 p.m. CET (i.e., Paris time).

    🎙 Speaker: Dr Antonis Fanouriakis
    🎙 Moderators: Prof. Dr Matthias Schneider & Zoe Karakikla-Mitsakou, General Secretary of Lupus Europe.

    Lupus nephritis remains one of the most serious complications of systemic lupus erythematosus, and treatment strategies continue to evolve as new evidence emerges.

    🔎 This webinar will explore:
    •⁠ ⁠The scientific rationale for triple therapy.
    •⁠ ⁠Current clinical evidence.
    •⁠ ⁠What this may mean for outcomes in lupus nephritis.

    Whether you are a healthcare professional, researcher, or patient, this session is not to be missed!

    Register now! us06web.zoom.us/webinar/register/WN_41Lc9osLQ6m7nOuJGGWnHw#/registration     ... See MoreSee Less

    📣 Upcoming ERN RE
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    LUPUS EUROPE
    1 week ago

    🚨 New publication alert: EULAR recommendations for the management of systemic lupus erythematosus with kidney involvement- 2025 update.

    ‼️ According to Lupus Europe's 2024 Swiss knife survey:

    1️⃣ Kidney involvement remains one of the most worrying and impactful lupus manifestations for many people in Europe.
    2️⃣ Kidney problems are among the manifestations causing the greatest long-term concern.
    3️⃣ Only a small minority of patients report long-term stability without flares.
    4️⃣ Patients want clearer goals, better communication, and care that looks beyond lab values alone.

    That is why the 2025 update of the EULAR recommendations for the management of systemic lupus erythematosus with kidney involvement is such an important step forward.

    ✅ These updated recommendations reinforce several key messages that matter to patients:
    - Early and regular monitoring of kidney involvement.
    - Timely kidney biopsy when needed.
    - Clear treatment targets to preserve kidney function.
    - A strong focus on combination therapies when appropriate.
    - Long-term kidney protection, not only short-term control.

    🌟 We are especially proud that our Chair, Jeanette Andersen, was part of the international task force that developed these recommendations, ensuring that the patient perspective was present at the table.

    You can read the EULAR Recommendations here: ard.eular.org/article/S0003-4967(25)04412-7/fulltext

    And the Swiss Knife Survey here: www.sciencedirect.com/science/article/pii/S1568997225000989     ... See MoreSee Less

    🚨 New publication
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    LUPUS EUROPE Uniting people with Lupus throughout Europe
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