I was diagnosed with SLE in 2015, which was the starting point of my education and journey as a patient of lupus.

From an academic field, I have one Master‘s degree in EMBA and second in Education in Arts.

I work as an author and as a lecturer: writing novels, teaching Communication and Creative Writing. Before this, I worked in management for multiple Scandinavian corporations, in the fields of Strategic Change and Communication .

Joining the community of Lupus Europe in 2017, I started to dedicate my time and energy to Lupus Europe activities, different projects within Patient Advisory Network, and being a Co-opt for the Lupus Europe Board in 2022. In addition, I am taking part in the EUPATI Patient Expert Training Programme.

Lupus has deeply impacted my life – I have damaged ligaments, bones, joints and CNS. However, this illness has also brought some positive changes – It has incentivised me to practice healthier eating habits, get enough rest, exercise, and most importantly: find ways to help people who have lupus.

My core values are Independence, Equity and Diversity. They will help me to assist the Lupus Europe community and be a dedicated Board Member.

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2 days ago

👨‍⚕️ Don't miss Prof. Ian Bruce talking about the Systemic Lupus Erythematosus Damage Index (SDI) revision!

📈 The SDI is a tool designed to track lupus progression and impacts treatment decisions worldwide.

🔍 The revised SDI aims to enhance accuracy, include pediatric cases, and update outdated definitions, ensuring that every patient’s condition is comprehensively evaluated.

🎥 Do you want to explore these updates more thoroughly and understand what they mean for patients and healthcare providers? Click the link to watch the full video!

youtu.be/okAJvPAzIWg?si=6dwHxhoaqS0OJ7zm
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👨‍⚕️ Dont miss Prof. Ian Bruce talking about the Systemic Lupus Erythematosus Damage Index (SDI) revision!

📈 The SDI is a tool designed to track lupus progression and impacts treatment decisions worldwide.

🔍 The revised SDI aims to enhance accuracy, include pediatric cases, and update outdated definitions, ensuring that every patient’s condition is comprehensively evaluated.

🎥 Do you want to explore these updates more thoroughly and understand what they mean for patients and healthcare providers? Click the link to watch the full video!

https://youtu.be/okAJvPAzIWg?si=6dwHxhoaqS0OJ7zmImage attachment
3 days ago

😨 Did you miss our #eular2024 debrief webinar?

😮‍💨 Don't worry! You can watch the full session at your convenience.

Catch up on all the insights shared by many of the presenters and some of our PAN members!

EULAR Congress 2024 Debrief Webinar
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😨 Did you miss our #EULAR2024 debrief webinar?

😮‍💨 Dont worry! You can watch the full session at your convenience.

Catch up on all the insights shared by many of the presenters and some of our PAN members!

https://www.facebook.com/LupusEurope/videos/815970850254193
1 week ago

🌟 Thank you to all who attended our #eular2024 debrief webinar!

🙌 Especially to our presenters and PAN members who shared their invaluable insights and experiences.

Stay tuned for more news and updates and don't forget to subscribe to our newsletter! www.lupus-europe.org/emails/
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Svær sygdom ♥️👊

1 week ago

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To try out LupusGPT, just go to: lupusgpt.org/ This is a multi-lingual tool, so do try it in your language and let us know what you think!

This is the webinar Jeanette Andersen, Lupus Europe Chair, mentioned in her feedback on "CAR T Cell Therapy in Lupus: Promises and Challenges Explored": www.youtube.com/watch?v=JMifTgQgvVs&t=3s

Thank you

LUPUS EUROPE Uniting people with Lupus throughout Europe
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