Alain CornetThe non-profit organisation ClAIR which groups lupus, arthritis and scleroderma associations (among them our French-speaking Belgian member) is organising a virtual congress from tomorrow, 30th March 2018, to 13th April included. LUPUS EUROPE will have a virtual stand in the congress. For more information, please see the press release: virtual congress CLAIR The congress is […]
Alain Cornet690 people participated in the European Lupus Meeting in Düsseldorf last week (March 21-24). This was 50% increase in comparison to the last ELM in Venice in 2016, which indicates a rising interest in this disease. Most of the participants were lupologists from all across Europe and there were even some from Australia, North- and […]
Alain CornetWe still have 3-5 available positions at our Lupus Europe youth panel in May. If you meet the criteria below and fit the geographical spread you could come into consideration. Are you interested in improving conditions for young people with lupus in Europe? Do you have something to say and want to be heard? Are […]
Alain CornetOn December 6th Katharine Wheeler participated in the closing conference for EPF’s campaign on Access to Healthcare for All. At the conference EPF presented their Roadmap for Universal Health Coverage for all. Katharine was invited to speak as a patient organisation representative and stressed the importance of leaving no-one behind if we want to achieve […]
Alain CornetThe LUPUS EUROPE annual convention has just come to a close. Hosted in Milan by Lupus Italy on the occasion of their 30thanniversary, the convention was an inspiring event centred around the theme of “pain, fatigue and stress”, with Dr Chiara Tani as a key note speaker. Benefitting from the Italian Lupus Clinic experience, we […]
Alain CornetJoin your peers as they pave the developmental exchange of research and best practice in rheumatology! Submit your abstract to #EULAR2018: http://congress2018.eular.org/abstract_submission.cfm
Alain CornetIt’s #WorldArthritisDay! Check out EULAR´s #DontDelay #ConnectTodaycampaign video featuring Kate, Aran and Simon. Together, we can raise awareness about the importance of early diagnosis and treatment of rheumatic and musculoskeletal diseases. #WAD #WAD2017 You can watch the video here: http://bit.ly/2yHnbZU
Alain CornetTuesday, October 3rd Chair Kirsten Lerstrøm, LUPUS EUROPE, has been invited to address the TOPRA Annual Human Medicines Symposium; Collaboration – Strategies – Solutions – Global regulatory approaches to improve healthcare. She has been invited to present on How to reflect the needs of patients in drug development programmes in the session “Involving patients in […]
Alain CornetMonday, September 25th Chair Kirsten Lerstrøm, LUPUS EUROPE, has been invited to address the European Parliament ENVI Committee on “The case of lupus: Prevention and Treatment of Autoimmune Diseases” at the workshop in Parliament on “Autoimmune Diseases – modern diseases”. _______________ Message is that lupus is complex and complicated both to manage and to live […]
Alain CornetMay 10th is World Lupus Day What is lupus? Lupus is a chronic autoimmune disease that causes the immune system to attack the body’s connective tissue and organs. Parts of the body affected can include the joints, kidneys, heart, lungs, brain, blood and skin. Up to 500,000 people in Europe have lupus. 90% of people […]
🙌📖It's finally in our hands!
🌏Discover the #EULAR Manifesto, a comprehensive policy roadmap that prioritises research, enhances quality of care, and shapes social policy for those living with RMDs across the EU.
Learn more here👉https://pulse.ly/zi99cniiox
#eularADVOCACY
✅ Check 🔎 our latest update 🔄 on the #pathogenesis of #lupus ⬇️ including the role of CAR-T cells in the treatment of #SLE 🌪️
The Editor of Autoimmunity Reviews 📒 has granted a 50-day FREE access for all using the following LINK: https://authors.elsevier.com/a/1js2M5alwYCAzn
🔴Inequality in healthcare is a serious barrier for those with #RMDs, both in South America & globally.
🎙️Tune in to the #eularPARE podcast as @Jeanette_Lupus speaks with @pinkycito from @redasopan & @Lupus_Chile about how this issue affects patient care
https://open.spotify.com/episode/56xtnDwlIk9KmrJV5Ridnr
✅ For those of you interested in DNA sensing - a critical step in the pathogenesis of #Lupus, check the viewpoint by the recipient of the Albert Lasker prize himself, in this issue of the JAMA ⬇️
✅ What's new in the #pathogenesis of systemic #lupus? Any novelties in #cutaneous lupus ⬇️👀 (CLE)? Are CAR-T cells really able to 'reset' the immune system? Check our review with @FChasset @PrTmartin_RESO with A FREE ACCESS LINK valid for 50 days at https://authors.elsevier.com/a/1js2M5alwYCAzn
✅ Updated timeline for #Lupus trials ⬇️ including successful trials for dapi & obi ! As always, please do let me know if something is not correct and I will reupdate the slide 🔄
🧑🔬 Become a Patient Research Partner and make a meaningful impact in research!
🖥️With this course you’ll gain the knowledge and skills to represent the patient perspective, ensuring that research truly reflects patient needs and experiences.
👉https://esor.eular.org/course/view.php?id=487
🎉Abstract submission for the EULAR 2025 Congress opens TODAY!
👉 Find out more: https://pulse.ly/vc82ekpemg
#EULAR2025 #Rheumatology #Research #AbstractSubmission
✅ Yes! As many of you guessed, the October theme of the #kicklupus campaign is... vaccines!
💉 Vaccination is a crucial topic, especially for individuals dealing with lupus, as lupus has been proven to make people more susceptible to infections and complications. Therefore, promoting vaccination is paramount in the care and overall well-being of people with lupus.
🛡️ Vaccines play a vital role in bolstering the immune response against various diseases, reducing the risk of infections and their potential severity. For individuals with lupus, getting vaccinated can be a game-changer, providing added protection against infections that could be especially challenging for their immune systems.
Join us in the #kicklupus challenge! Share how you prevent infections in lupus. Your experiences and insights are valuable in creating a supportive community and raising awareness about the importance of proactive measures in managing lupus effectively.
Together, we can make a difference! 💜
💎 In line with our commitment to spreading awareness and information, we invite you to explore the importance of vaccination in patients with lupus through the #Lupus100 website. This initiative offers resources and educational materials in multiple European languages, facilitating access to critical information about lupus and vaccinations ⤵️
lupus100.org/en/questions/how-should-you-manage-your-vaccinations-when-you-have-lupus
Remember you can also check on #lupusgpt in your preferred language! lupusgpt.org/
🇩🇰 lupus100.org/da/questions/how-should-you-manage-your-vaccinations-when-you-have-lupus
🇩🇪 lupus100.org/de/questions/how-should-you-manage-your-vaccinations-when-you-have-lupus
🇪🇸 lupus100.org/es/questions/how-should-you-manage-your-vaccinations-when-you-have-lupus
🇬🇷 lupus100.org/el/questions/how-should-you-manage-your-vaccinations-when-you-have-lupus
🇫🇷 www.rhumatismes.net/index.php?id_q=863
🇮🇹 lupus100.org/it/questions/how-should-you-manage-your-vaccinations-when-you-have-lupus
🇳🇱 lupus100.org/nl/questions/how-should-you-manage-your-vaccinations-when-you-have-lupus
🇷🇴 lupus100.org/ro/questions/how-should-you-manage-your-vaccinations-when-you-have-lupus
🇫🇮 lupus100.org/fi/questions/how-should-you-manage-your-vaccinations-when-you-have-lupus
🇺🇦 lupus100.org/uk/questions/how-should-you-manage-your-vaccinations-when-you-have-lupus
🇷🇺 lupus100.org/ru/questions/how-should-you-manage-your-vaccinations-when-you-have-lupus
1 CommentComment on Facebook
Got the Covid vaccin last week, Saturday the flu vaccin. #kicklupus
🤩 We are thrilled to see our Chair, Jeanette Andersen, hosting the latest EULAR PARE podcast!
🎙️ In this episode, Jeanette speaks with Gonzalo Tobar, a representative of Asopan and Agrupación Lupus Chile, who shares valuable insights into the challenges faced by people living with #RMDs in South America, highlighting the unequal access to healthcare and the inspiring work of patient organisations.
🦋 At Lupus Europe, we are well aware that inequities can be major barriers affecting the quality of life and health outcomes of #Lupus patients, not only in South America but also in Europe.
📊 This issue is so significant that it has been included in our strategic plan for 2025, and we will soon share more about our efforts to understand it better.
🌟 Don't miss out on this powerful discussion on how communities are overcoming barriers to care.
open.spotify.com/episode/56xtnDwlIk9KmrJV5Ridnr
0 CommentsComment on Facebook
🍂 Welcome October, welcome new #kicklupus challenge!
🤔Can you guess our October theme based on this sneak peek image?
👀 Stay tuned because this month, we're unveiling a powerful way to fortify our health!
3 CommentsComment on Facebook
Thank you! Great moment indeed.
Stop smoking
I am so delighted to have found this page, very supportive and informative. I was diagnosed with SLE lupus in 2015, my symptoms started out with severe fatigue, poor balance, numbness, heat intolerance, and anxiety. I was unable to go back to work, so I tried analgesics for about 6 years. Tried every shot available, and all made me sick. In November 2023, I started on lupus Herbal formula from www. multivitamincare .org , the treatment worked incredibly for my SLE condition. I used the Natural Lupus Herbal formula for a total time period of 3 months, it totally reversed lupus. I had a total decline of all symptoms including joint stiffness, ulcers, and others. Sometimes, I totally forget I ever had Lupus.
🔴 People with #Lupus are twice as likely to develop cardiovascular disease as healthy people.
👀 Learn more about cardiovascular risk management in rheumatic and musculoskeletal diseases (RMDs) with the EULAR recommendations ➡️ ➡️ ard.bmj.com/content/81/6/768
🔴 𝗖𝗮𝗿𝗱𝗶𝗼𝘃𝗮𝘀𝗰𝘂𝗹𝗮𝗿 𝗱𝗶𝘀𝗲𝗮𝘀𝗲 𝗽𝗿𝗲𝘃𝗲𝗻𝘁𝗶𝗼𝗻 𝗶𝘀 𝗸𝗲𝘆 in RMDs Like #Lupus.
1️⃣ Always talk to your physician about preventive measures.
2️⃣ Work to minimise risk factors ⤵️
- Don't smoke🚭
- Practise exercise🏃♂️
- Have a healthy diet🍏
#WorldHeartDay
1 CommentComment on Facebook
I am so delighted to have found this page, very supportive and informative. I was diagnosed with SLE lupus in 2015, my symptoms started out with severe fatigue, poor balance, numbness, heat intolerance, and anxiety. I was unable to go back to work, so I tried analgesics for about 6 years. Tried every shot available, and all made me sick. In November 2023, I started on lupus Herbal formula from www. multivitamincare .org , the treatment worked incredibly for my SLE condition. I used the Natural Lupus Herbal formula for a total time period of 3 months, it totally reversed lupus. I had a total decline of all symptoms including joint stiffness, ulcers, and others. Sometimes, I totally forget I ever had Lupus.
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