Zoe Karakikla-MitsakouOccasionally you might receive an e-mail that seems like it has come from Lupus Europe but has not been sent by us. This might be a fake message that has been sent by scammers, criminals who want to steal your data and your money. This kind of scam is called “phishing” or “spear phishing” and […]
Zoe Karakikla-MitsakouWelcome back to our blog series on National Member News! We remain very excited about getting our National Member news out to the world, so more people can find out a lot more about what it is happening in each country and each organisation! We caught up with Boryana Boteva from Lupus Bulgaria, who […]
Zoe Karakikla-MitsakouWelcome back to our blog series on National Member News! We are so very excited about getting our National Member news out to the world, so more people can find out a lot more about what it is happening in each country and each organisation! We caught up with Lupus France and found out […]
Zoe Karakikla-MitsakouThis past year has been very difficult for so many people around the globe. But positives can often be found even in crises and difficult circumstances! Finding the positives and holding onto them is the spirit of Kick Lupus! With that in mind, we want to announce the Kick Lupus 2021 Competition, My Covid19 […]
Zoe Karakikla-MitsakouWelcome back to our blog series on National Member News! We are so very excited about getting our National Member news out to the world, so more people can find out a lot more about what it is happening in each country and each organisation! We caught up with Paul Howard, Chief Executive Officer […]
Zoe Karakikla-MitsakouThis blog post is our second in this series; we are so excited about this blog series and getting our National Member news out to the world, so more people can find out a lot more about what it is happening in each country and each organisation! We are committed to have a dedicated […]
Zoe Karakikla-MitsakouWe believe that patient input into scientific events, like the European Lupus Meeting or EULAR, is incredibly important. Our hope was that by watching our Webinar on “How to make a scientific poster” by Simon Stones you would get the tools and know how to create a poster for those events! Simon Stones has a […]
Zoe Karakikla-MitsakouThis post marks the start of a regular blog series for Lupus Europe. We aim to have a dedicated blog with a different National Member each month. We are very excited about this blog series and getting our National Member news out to the world, so more people can find out a lot more about […]
Zoe Karakikla-MitsakouToday is Rare Disease Day! Lupus is a rare disease in Europe, although for those living with it, it doesn’t feel rare at all! There are estimated to be less than five in 10,000 people in Europe who are living with lupus. Having a rare disease means that most people around you don’t have any […]
Zoe Karakikla-MitsakouThe lovely Petra Balážová from Slovakia has a wonderful blog called Petronela’s Journey, where she talks about healthy eating, life with lupus and so many other very interesting topics. Petra has kindly allowed us to republish one of her video interviews with rheumatologist Dr. Alessia Alunno here, on a very interesting topic; lupus fatigue. Here […]
🤔 What can kidney biopsies really tell us in lupus nephritis?
👨⚕️Prof Rovin explains why biopsy is key for diagnosis & treatment, & how research may help us get even more information from it in the future.
Watch the first video of our #ELM2026 playlist! https://youtu.be/nyw0Ug-Uap0?si=2z1V0WfUnAkJlHnf
🌈 The right to health is a basic human right. Everyone must have access to the health services they need when & where they need them without 💶 hardship.
😔 30% of the global population is not able to access essential health services.
#StandWithScience #WorldHealthDay
Science works better together. 🔬
On #WorldHealthDay, #3TR celebrates the power of collaboration. By working across academia, pharma and patients we aim to better understand response and non-response to therapy and make personalised treatment a reality.💡
#StandWithScience #IHI
🚀 #LupusGPT & #EasyLupus are currently offline as we continue improving them.
🛠️You thought they couldn’t get better? We know they can, & we’re making it happen.
In the meantime, for reliable, multilingual lupus information👉 https://lupus100.org/
💜Thanks for your support!
🎥 Missed our @SLEuroSociety #ELM2026 Recap Webinar?
🤩 Watch it now!
https://www.youtube.com/watch?v=Bw5Iptu-ZNc
🌟 PAN members share key takeaways, and experts explain the latest on lupus in short, patient-friendly videos.
More coming soon!
So proud to see #LupusGPT published in @TheLancetRheum
Huge credit to @LupusEurope Europe for leading such an inspiring, patient-driven initiative 👏
A privilege to contribute to this work 💜
🔗
LupusGPT: an AI-driven information model for patients with systemic lupus erythematosus
Systemic lupus erythematosus (SLE) is a chronic autoimmune multisystem disease affecting more than 300 000 people in ...
www.thelancet.com
✅ Now that #LupusGPT is published in the Lancet #Rheumatology (LINK: https://doi.org/10.1016/s2665-9913(25)00370-4), I wonder whether you have previously tested the app itself. Ask it anything about #lupus, in any language and tell me what you think: https://www.lupusgpt.org/
✅ Happy to share that we have just published #LupusGPT... in the Lancet #Rheumatology 👍
Check the post below by @LupusEurope for the link 🔓
🤔 What can kidney biopsies really tell us in lupus nephritis?
🔬 Kidney biopsy is a key tool in the diagnosis and management of lupus nephritis. It helps doctors understand what is happening in the kidneys and guides treatment decisions.
But… could it tell us even more?
📽️ In this short video, Prof. Brad Rovin explains how ongoing research is exploring new ways to get deeper and more precise information from kidney biopsies with the goal of improving how lupus nephritis is monitored and treated.
👉 Watch here: youtu.be/nyw0Ug-Uap0?si=gOF2F_AzaL_R-4tC
Don't miss out and visit the #ELM2026 playlist with all videos in the "Video on Demand" section of our website!
Explore Our Videos On Demand: A Window Into Lupus - Lupus Europe
www.lupus-europe.org
LUPUS EUROPE is the European umbrella organisation that brings together national lupus patient organisations from across Europe. We are a non profit independent organisation. We aim to support and emp...0 CommentsComment on Facebook
🌈 The right to health is a basic human right. Everyone must have access to the health services they need when & where they need them without 💶 hardship.
😔 30% of the global population is not able to access essential health services.
#StandWithScience #WorldHealthDay #WHD2026
0 CommentsComment on Facebook
🚀 #LupusGPT & #EasyLupus are currently offline as we continue improving them.
🛠️You thought they couldn’t get better? We know they can, & we’re making it happen.
In the meantime, for reliable, multilingual lupus information👉 lupus100.org/
💜Thanks for your support!
0 CommentsComment on Facebook
🎥 Did you miss our ELM 2026 Recap Webinar?
😃 Watch it now on our YouTube channel!
👉 Our Patient Advisory Network (PAN) members and volunteers share their key takeaways from the European Lupus Meeting 2026.
👉 Doctors and researchers explain, in a clear, short, and patient-friendly way, key messages from their talks.
🎯 Click the link below and discover the latest advances in lupus, explained directly by experts:
www.youtube.com/watch?v=Bw5Iptu-ZNc
More insights from #elm2026 coming soon. Stay tuned!
0 CommentsComment on Facebook
