Alain CornetLUPUS EUROPE is very committed to the success of the European Reference Networks (ERN), in particular ReCONNET where we have a very active role. One of our key contributions is to raise the patient voice. Professor Hachulla is seeking our input on unmet needs in the area of Therapeutic Education. We would like the questionnaire […]
Alain CornetToday is the first day of the big European Rheumatology Congress, EULAR. The 2018 edition is being held in Amsterdam and will reunite thousands of delegates, mainly medical professionals. Eular is “a platform to facilitate interactions between patients, medical doctors, scientists, health professionals and professionals representing the pharmaceutical industry, both from within Europe and from […]
Alain CornetWe at LUPUS EUROPE wish you all a great World Lupus Day, full of hope and awareness! For this we have created a little animated video about LUPUS EUROPE. Please feel free to share! [wpvideo ILoguQxs] We would also like to repost a video made a couple of years ago about the importance of World […]
Alain CornetThe non-profit organisation ClAIR which groups lupus, arthritis and scleroderma associations (among them our French-speaking Belgian member) is organising a virtual congress from tomorrow, 30th March 2018, to 13th April included. LUPUS EUROPE will have a virtual stand in the congress. For more information, please see the press release: virtual congress CLAIR The congress is […]
Alain Cornet690 people participated in the European Lupus Meeting in Düsseldorf last week (March 21-24). This was 50% increase in comparison to the last ELM in Venice in 2016, which indicates a rising interest in this disease. Most of the participants were lupologists from all across Europe and there were even some from Australia, North- and […]
Alain CornetWe still have 3-5 available positions at our Lupus Europe youth panel in May. If you meet the criteria below and fit the geographical spread you could come into consideration. Are you interested in improving conditions for young people with lupus in Europe? Do you have something to say and want to be heard? Are […]
Alain CornetLUPUS EUROPE was present once again at this year’s PARE conference, which was held from 16th-18th February in Brussels. PARE provides an opportunity to meet with other patient organisations who are members of the PARE network, to hear the latest updates on some of the programmes, to influence PARE’s priorities for the next year, and […]
Alain CornetLUPUS EUROPE is the organisation that brings 26 national lupus groups from all over Europe together. To better include all countries in its activities and work, it is opening up a number of interesting volunteering opportunities for members of our national groups. There is no need to be a Lupus Expert, all that is […]
Alain CornetLUPUS EUROPE BECOMES FIRST ASSOCIATE MEMBER OF SLEuro, the European Lupus Society We are very proud to announce that LUPUS EUROPE has just become the first Associate member of SLEuro, the European Lupus Society. SLEuro is a voluntary and non-political association with social and philanthropic purposes that promotes scientific research and information with regard to […]
Alain CornetAn ERN (European Reference Network) ReCONNET Survey on awareness and knowledge of Clinical Practice Guidelines in rare and complex connective tissue disorders will be open until 10th February 2018. These surveys provide vital information to the doctors and researchers setting guidelines for our care. This survey can be filled in by patients or their families […]
✍🏻Пройдите опрос.
🔊Поделитесь с вашим сообществом.
👨🏼⚕Если вы медицинский работник и лечите пациентов с лупусом в Европе, мы были бы вам очень благодарны, если бы вы проинформировали своих пациентов.
https://s.surveylegend.com/-NtkhreGgEglDg9AeMfH
✅ #PANLAR2024
Check our International recommendations for #physicalactivity and exercise in persons living with #lupus ⬇️ with the contribution of several PANLAR members 👍 🌎
✅ #PANLAR2024 'REFRACTORY #LUPUS' Check 🔎 the RED FLAGS 🚩 for syndromic & 'non-spontaneous' lupus, such as drug-induced lupus 💊 or associations such as male ♂️ lupus & Klinefelter syndrome
What would YOU add to this list?
✍🏻Täytä kysely.
🔊Jaa yhteisösi kanssa.
👨🏼⚕Jos olet terveydenhuollon ammattilainen ja kohtelet lupuspotilaita Euroopassa, arvostaisimme suuresti, jos informoisit potilaitasi.
https://s.surveylegend.com/-NrB_0Hf4Z-ZAZH55K7U
✅ #PANLAR2024 Advances in #Lupus guidelines, from @eular_org to @gladel_latam (and vice versa). Today 10:30 in the PLENARY SESSION room. If you haven't checked the #EULAR guidelines for #SLE, here is a summary of the main overarching principles ⬇️ +LINK: https://doi.org/10.1136/ard-2023-224762
@LupusEurope is conducting a survey to gather insights into the experiences of individuals living with #lupus.
Your participation will help to refine understanding and improve treatments and support for lupus.
You can complete the survey here: http://surveylegend.com/s/5h8u 🔗
✍🏻Izpolnite anketo.
🔊Delite z vašo skupnostjo.
👨🏼⚕Če ste zdravstveni strokovnjak in zdravite bolnike z lupusom v Evropi, bi vam bili zelo hvaležni, če bi svoje paciente obvestili.
https://s.surveylegend.com/-Nt-wdNdIqT4v3ptXEM1
SLESIS-R(evised)... After a 1st work with @Bts50677226 @AnisurRahman60 @chriswincup and Prof. Isenberg @uclh, now Dr. Rúa Figueroa presents the improved version with excellent performance, validated in the prospective @RELES_SER cohort @SEReumatologia... what's next??
🔊 The Lupus Europe board and extended Board met last week in Bratislava, Slovakia, for two full and exciting days of work on the strategic plan.
🤩 Lots of exciting plans in the pipeline!
👥 We also hosted an Industry Roundtable, bringing together our Industry Partners to talk about the work of Lupus Europe.
🙌 A thoroughly engaging and constructive Industry Roundtable for 2024!
Do you want to know more?
✉️ Stay tuned! Our newsletter is coming out soon!
👉 Visit www.lupus-europe.org and sign up!
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✍🏻Попълнете анкетата.
🔊Споделете с вашата общност.
👨🏼⚕Ако сте здравен специалист и лекувате пациенти с лупус в Европа, ще сме много благодарни, ако информирате вашите пациенти.
s.surveylegend.com/-NuOC4mQDrt8udTrqS85
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✍🏻Пройдите опрос.
🔊Поделитесь с вашим сообществом.
👨🏼⚕Если вы медицинский работник и лечите пациентов с лупусом в Европе, мы были бы вам очень благодарны, если бы вы проинформировали своих пациентов.
s.surveylegend.com/-NtkhreGgEglDg9AeMfH
0 CommentsComment on Facebook
✍🏻Täytä kysely.
🔊Jaa yhteisösi kanssa.
👨🏼⚕Jos olet terveydenhuollon ammattilainen ja kohtelet lupuspotilaita Euroopassa, arvostaisimme suuresti, jos informoisit potilaitasi.
s.surveylegend.com/-NrB_0Hf4Z-ZAZH55K7U
0 CommentsComment on Facebook
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