The World Lupus Federation seeks your quick input

The World Lupus Federation asks people with lupus to take a 12-question survey about the emotional effects of lupus and about clinical trials. We must recruit 500 people with lupus to take this brief survey. There are only 12 questions. All responses are confidential.
The results will be published on World Lupus Day, May 10.

Use this link to access the confidential survey. http://tinyurl.com/WLD-global-survey
The World Lupus Federation appreciates your assistance.

The survey is  available in different languages:

Dutch https://www.surveymonkey.com/r/WLD-NL

English https://www.surveymonkey.com/r/WLD-EN

French https://www.surveymonkey.com/r/WLD-FR

German https://www.surveymonkey.com/r/WLD-DE

Italian https://www.surveymonkey.com/r/WLD-IT

Portuguese https://www.surveymonkey.com/r/WLD-PT

Spanish https://www.surveymonkey.com/r/WLD-ES

 

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Alain Cornet

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    LUPUS EUROPE
    5 hours ago

    🤩 May 10 is the #WorldLupusDay! And our Youth Group is commemorating it with a 𝐬𝐩𝐞𝐜𝐢𝐚𝐥 𝐰𝐞𝐛𝐢𝐧𝐚𝐫 focused on one of the most important and often overlooked topics for young people living with lupus: 𝐟𝐞𝐫𝐭𝐢𝐥𝐢𝐭𝐲 𝐚𝐧𝐝 𝐟𝐚𝐦𝐢𝐥𝐲 𝐩𝐥𝐚𝐧𝐧𝐢𝐧𝐠.

    👩‍⚕️ How does lupus affect fertility?
    💊 What should you consider before planning a pregnancy?
    🧠 How can healthcare professionals better support young patients in these decisions?

    This session brings together clinical expertise and real patient perspectives to provide clear, practical insights.

    📅 𝐌𝐚𝐲 𝟏𝟎
    ⏰ 7 pm CET (i. e. Paris time)

    🎙️ Speaker: Prof. Laura Andreoli
    🗣️ Moderated by our Chair, Jeanette Andersen
    👥 Organised with the Lupus Europe Youth Group

    📌 Whether you are living with lupus, supporting someone who is, or working in healthcare, this webinar is for you.

    👉 Don't wait any longer and register now! Send an email to secretariat@lupus-europe.org     ... See MoreSee Less

    🤩 May 10 is the #
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    LUPUS EUROPE
    3 days ago

    🌈 Beyond what you’ve experienced, something awaits.

    🌟 A new way to approach your consultation is coming.

    Make your consultation count.

    💥 Stay tuned

    #MakeItCount     ... See MoreSee Less

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    LUPUS EUROPE
    4 days ago

    🆘 𝗦𝗸𝗶𝗻 𝗺𝗮𝘁𝘁𝗲𝗿𝘀 𝗶𝗻 𝗹𝘂𝗽𝘂𝘀.

    🌍 The World Health Organisation has opened a public consultation on the draft Global Action Plan on Skin Diseases, a strategic framework that will guide governments in developing national plans on skin diseases.

    🟣 Why is this important for the #lupus community?

    👉 75–80% of people with SLE experience skin involvement. Skin lupus, including ACLE, SCLE and CDLE, has seen no new treatment options for over 80 years.

    💬 This is an important opportunity to make sure that the voices of people living with lupus and the wider civil society community are heard.

    📅 Deadline: 10 May- #WorldLupusDay
    🔗 Add your voice and share with your community: www.who.int/news-room/articles-detail/public-consultation--draft-global-action-plan-on-skin-disea...     ... See MoreSee Less

    🆘 𝗦𝗸𝗶�
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    LUPUS EUROPE
    1 week ago

    ❤️‍🔥 Something big is coming...

    ... this #WorldLupusDay 🌍.

    #makeitcount     ... See MoreSee Less

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    LUPUS EUROPE Uniting people with Lupus throughout Europe
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