The Hellenic League Against Rheumatism (ELEANA) with the contribution of Mr. Michael Konstantinidis, who is the writer and the art director of the total project  and of the arts community, created and coordinated a special project for Lupus. This was done with the hope that it would contribute to relieving the stigma the disease bears, as the persistent problem of prejudice and stigmatization of mental and physical illness remains unchanged.

The campaign “LUPUS GR 2020” is the starting point of an integrated artistic/social project whose goal is to inform and raise awareness about prevention, early diagnosis, treatment, and rehabilitation of arthritis/Lupus patients.

Therefore, the creation of such a project enables organisations dealing with Lupus and health care providers around the world to re-contribute to the information and awareness campaign by assisting with research into pathophysiology.

 

The campaign consists of 17 photos of well-known artists who volunteered to help advocate and support the message of Lupus “living amongst us” and two videos. Each photo also contains an important message about Lupus.

Currently, a global campaign about Lupus supported by all organisations does not exist. Different organisations have varying agendas, philosophies and different awareness months, which results in widespread confusion.  However, the power of art is so appealing that if organisations associated with Lupus choose to embrace it, they can make a difference by highlighting a global health problem.

The campaign among other promotional activities, was presented as a poster at the EULAR e-Congress 2020.

The campaign material (27 photos and 2 videos) can be adapted for use at national level. The only obligations are:

  1. To let us know prior to implementation, in order to send you the HD files
  2. To mention the source Hellenic League Against Rheumatism

 

For more information or any clarifications please contact:

Katy Antonopoulou

Board Member and External Communications Director

HELLENIC LEAGUE AGAINST RHEUMATISM

e-mail: info@arthritis.org.gr and k.antonopoulou@apr.com.gr

Tel.: +30 210 3645 629 (work) & +30 6932 253580 (mob.)

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Today is rare disease day!

🚨 There are over 300 million people who live with a #raredisease in #europe.

🌎 Today, we join our fellow patient organisations that work towards a better life for people with rare diseases and their families.

🔴 Some facts about #rarediseases:

1️⃣ There are more than 6000 identified rare diseases.

2️⃣ Rare diseases currently affect 5% of the worldwide population.
The true impact of rare diseases is much wider, however, with those affected in Europe in the millions, as the disease affects not only the patient but also our loved ones.

3️⃣ 72% of genetic diseases are genetic, although #lupus is not one of them.
👉 Lupus is not a genetic disease. Although it is very much related to genes, there are other factors that play a role in its manifestation.

4️⃣ 👶Neonatal #lupus is a rare congenital disorder that some infants of mothers with lupus and anti-Ro/SSA and/or anti-La/SSB antibodies develop.
The most serious complication of neonatal lupus is a heart condition known as congenital heart block.

5️⃣ Having an early diagnosis is key to having access to the right treatment. This has an impact on physical and mental health and, therefore, on the quality of life.

Along with organisations like Rare Disease Day and EURORDIS-Rare Diseases Europe, we will carry on working towards an early diagnosis, access to treatment and equality for #raredisease patients 🙌.

Thank you for your support on this #rarediseaseday!

#ShareYourColours
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#lupus is a #raredisease that affects nearly 500,000 people in Europe. Furthermore, there are over 300 million people who live with a #raredisease in #europe.

Today, along with Rare Disease Day, patient organisations around the world advocate for equity for people living with a rare disease

#ShareYourColours and help us spread the word by liking and sharing. Remember that you can also download the material of the official campaign on the website

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#Lupus is a #RareDis

Today is #RareDiseaseDay!

And we have joined Rare Disease Day campaign.

Everyone deserves equal opportunities, access to healthcare ➕ early diagnosis, which is key to setting a treatment plan &, hence, achieving a good quality of life.
#ShareYourColours

www.youtube.com/watch?v=7J1oTfoIOGw
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Today is #RareDiseas

😃 Throwback to the HMA/EMA Multi-Stakeholder Workshop on Artificial Intelligence.

Watching Alain Cornet show the world what #LupusGPT really is still gives us goosebumps! 🙌

For those who still don't know this artificial intelligence tool:

💡 LupusGPT is built by patients and doctors.
🗣️ It speaks virtually any language.
💸 It’s free and anonymous- you don’t need to create an account.
📚 It is trained exclusively on a curated repository of validated documents.
🚫 It does not invent answers.

If something is not in the repository, LupusGPT will clearly say so. It will not guess. It will not generate false information.

🥹 Seeing LupusGPT presented at such a high-level regulatory forum confirmed something important:
Patient-led innovation can meaningfully contribute to the future of AI in medicine when it is built responsibly.

🔗 Try it here! lupusgpt.org/

🧠 Are medical terms confusing? Prefer shorter explanations in simple language?
Try #EasyLupus! The easy-read version of LupusGPT: easy.lupusgpt.org/
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LUPUS EUROPE Uniting people with Lupus throughout Europe
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