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Latest blogs

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Join the Lupus Europe Patient Panel for Men – Apply Now!
August 26, 2025
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LupusGPT Named Finalist for the 2025 Made With Patients Awards: A Milestone in Patient-Driven Innovation
June 2, 2025
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National Member News – Hello from the Czech Republic
October 29, 2024
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My Dream to Run– A lupus Patient’s Dream Come True!
May 20, 2024
Join the Conversation: Lupus Europe’s Youth Webinar for World Lupus Day
May 6, 2024
Sunset view of the Motlawa River embankment with historical buildings in Gdansk, Poland.
National Member News – Hello from Poland
March 18, 2024

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Latest Videos

Mitochondria in Systemic Lupus Erythematosus (SLE)
Mitochondria in Systemic Lupus Erythematosus (SLE)
Oct 24, 2022
Sjögren's Syndrome in Lupus: Does it Change Anything?
Sjögren's Syndrome in Lupus: Does it Change Anything?
Oct 24, 2022
Non-Atherosclerotic Cardiovascular Disease in SLE and APS
Non-Atherosclerotic Cardiovascular Disease in SLE and APS
Oct 24, 2022
70 Years Learning to Use Glucocorticoids
70 Years Learning to Use Glucocorticoids
Oct 24, 2022
Refractory Skin Manifestations in Lupus
Refractory Skin Manifestations in Lupus
Oct 24, 2022
Risk Gene Linked to Cardiovascular Disease
Risk Gene Linked to Cardiovascular Disease
Oct 24, 2022

Lupus Europe Follow 7,188 4,280

Lupus Europe is the umbrella association of currently 32 national lupus self-help organisations throughout Europe, and supports people with lupus in Europe.

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LUPUS EUROPE
1 hour ago

🔴 Although lupus nephritis remains one of the most serious complications for SLE patients, early diagnosis and adequate treatment make remission possible in many cases ✅.

🦋 Kidney disease is a silent illness. Getting to recognise its symptoms is key to getting an early diagnosis and preventing potential complications:

1️⃣ Urine changes (in frequency or colour)
2️⃣ Swelling in 🤲 🦶 🦵
3️⃣ Foamy urine
4️⃣ High blood pressure

Prevention is key! There are many ways to take care of your kidneys:
1️⃣ Have an active life 🚶‍♂️ 🏃‍♀️
2️⃣ Don't smoke 🚭
3️⃣ Have a healthy diet 🥗 🍏
4️⃣ Check & control your blood sugar & blood pressure
5️⃣ Take the appropriate fluid intake
6️⃣ Don't take NSAIDs regularly

#WorldKidneyDay
#KidneyHealthforAll ... See MoreSee Less

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LUPUS EUROPE
3 hours ago

🚨 Today is #WorldKidneyDay! And we are supporting the World Kidney Day campaign.

People with kidney disease are among the most vulnerable people in an emergency because of their ongoing need for consistently coordinated care, which is often lifelong and involves complex ongoing treatment.

🦋 It is estimated that about 40% of #SLE patients will suffer from #lupus nephritis: one of the most dangerous and frequent complications of #SLE. Routine check-ups and early detection of symptoms are key for getting an early diagnosis.

#kidneyhealthforall ... See MoreSee Less

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LUPUS EUROPE
3 days ago

🇵🇹 What a week at the European Lupus Meeting 2026 in Lisbon!

You may have noticed something unusual…

🤫 Lupus Europe has been very quiet on social media throughout the Congress.

The reason? We were way too busy contributing, participating and engaging throughout #Lupus2026!

Here are just a few highlights of Lupus Europe’s involvement:

🔹 12 Fishbowl Chairs
🔹 9 abstracts supported by Lupus Europe
🔹 Our Chair, Jeanette Andersen, speaking at both the opening and closing ceremonies
🔹 6 Lupus Europe co-chairs at scientific sessions
🔹 3 interventions in sessions and interactive workshops

🚀 Beyond the scientific programme, the meeting was also completely full of valuable discussions and working meetings for ongoing projects that we are excited to share with you soon.

Over the coming weeks, we will share more about what happened in Lisbon, so keep an eye out for news!

📅 Meanwhile, don’t miss our ELM 2026 Recap Webinar as viewed by our PAN members, who were there!
🗓 16 March
⏰ 19:00 CET (i.e. Paris time)
💻 Zoom

Register now, to hear the key takeaways and highlights from this important European meeting.
Just email: secretariat@lupus-europe.org ... See MoreSee Less

🇵🇹 What a week
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LUPUS EUROPE
2 weeks ago

Today is rare disease day!

🚨 There are over 300 million people who live with a #raredisease in #europe.

🌎 Today, we join our fellow patient organisations that work towards a better life for people with rare diseases and their families.

🔴 Some facts about #rarediseases:

1️⃣ There are more than 6000 identified rare diseases.

2️⃣ Rare diseases currently affect 5% of the worldwide population.
The true impact of rare diseases is much wider, however, with those affected in Europe in the millions, as the disease affects not only the patient but also our loved ones.

3️⃣ 72% of genetic diseases are genetic, although #lupus is not one of them.
👉 Lupus is not a genetic disease. Although it is very much related to genes, there are other factors that play a role in its manifestation.

4️⃣ 👶Neonatal #lupus is a rare congenital disorder that some infants of mothers with lupus and anti-Ro/SSA and/or anti-La/SSB antibodies develop.
The most serious complication of neonatal lupus is a heart condition known as congenital heart block.

5️⃣ Having an early diagnosis is key to having access to the right treatment. This has an impact on physical and mental health and, therefore, on the quality of life.

Along with organisations like Rare Disease Day and EURORDIS-Rare Diseases Europe, we will carry on working towards an early diagnosis, access to treatment and equality for #raredisease patients 🙌.

Thank you for your support on this #rarediseaseday!

#ShareYourColours ... See MoreSee Less

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