Present the patients’ perspective – European Lupus Meeting

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The European Lupus Meeting is taking place in Venice, Italy from 5th-9th October 2016.

This year will be a great opportunity to share the research work done by patient organisations and/or single or groups of patients. This is a unique opportunity to present our work in the same sessions as the doctors.

LUPUS EUROPE invites all patients and patient representatives to submit an abstract as described on the LUPUS EUROPE website.

To submit an abstract please fill in the form (link below) and send it with the abstract to Kirsten Lerstrøm, LUPUS EUROPE, Chair (kirsten@lerstrom.dk), Francesca Marchiori, LUPUS EUROPE Co-Opted Patient Partner in Research (f.marchiori@tiscali.it)  and LUPUS EUROPE Secretariat (secretariat@lupus-europe.org).

Please contact any of the above for further information. Link to LUPUS EUROPE website and the abstract submission form (attached document), please click here.  The deadline for submission is 29th February. 

If you have any further questions please don’t hestitate to get in touch with Kirsten Lerstrøm, LUPUS EUROPE, Chair, Francesca Marchiori, LUPUS EUROPE Co-Opted Patient Partner in Research or LUPUS EUROPE Secretariat.

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Alain Cornet

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    LUPUS EUROPE
    15 hours ago
    LUPUS EUROPE

    Did you miss our joint webinar with ERN RECONNET?

    Among other things, Prof. Laurent Arnaud talked about the new EULAR recommendations for the management of #lupus and the main changes that have been introduced.

    Watch it and tell us what you think about them!

    Did you know that our Chair, Jeanette Andersen was part of the task force?
    😃

    EULAR 2023 Debrief – for people living with lupus LIVE LINK     ... See MoreSee Less

    Did you miss our joint webinar with ERN RECONNET? Among other things, Prof. Laurent Arnaud talked about the new EULAR recommendations for the management of #lupus and the main changes that have been introduced. Watch it and tell us what you think about them! Did you know that our Chair, Jeanette Andersen was part of the task force? 😃 https://www.facebook.com/LupusEurope/videos/1464013921069862
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    Thkx

    LUPUS EUROPE
    16 hours ago
    LUPUS EUROPE

    Today is #WORLDAPSDAY, an autoimmune disease that affects 20-30% of people with #lupus.

    #APS can cause:

    - Excessive blood clotting.
    - Certain pregnancy complications.
    Pregnancy planning and close monitoring are key to reduce the risk in pregnancy in patients with APS.

    #pregnancy #planning #SLE #awareness #APSAwareness     ... See MoreSee Less

    Today is #WorldAPSDay, an autoimmune disease that affects 20-30% of people with #lupus. #APS can cause: - Excessive blood clotting. - Certain pregnancy complications. Pregnancy planning and close monitoring are key to reduce the risk in pregnancy in patients with APS. #pregnancy #planning #SLE #awareness #apsawareness
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    LUPUS EUROPE
    2 days ago
    LUPUS EUROPE

    Did you know? We presented 6️⃣ abstracts for #EULAR2023, and all 6️⃣ of them were accepted!

    We also...

    🙌 Had 2️⃣ oral presentations.
    🙌 3️⃣ posters.
    🙌 Alain Cornet was one of the abstract award winners.
    🙌 Zoe presented in the scientific abstract plenary session.

    Watch the interview Dr. Anthony Psarras made with Alain Cornet in Milan!

    youtu.be/lLNJmCJ7iqk     ... See MoreSee Less

    Did you know? We presented 6️⃣ abstracts for #EULAR2023, and all 6️⃣ of them were accepted! We also... 🙌 Had 2️⃣ oral presentations. 🙌 3️⃣ posters. 🙌 Alain Cornet was one of the abstract award winners. 🙌 Zoe presented in the scientific abstract plenary session. Watch the interview Dr. Anthony Psarras made with Alain Cornet in Milan! https://youtu.be/lLNJmCJ7iqk
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    LUPUS EUROPE was live.
    3 days ago
    LUPUS EUROPE

    ... See MoreSee Less

    PlayEULAR 2023 Debrief – for people living with lupus LIVE LINK
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    • Likes: 9
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    Thank you Martijn, for your question! We will ensure your question is raised 🙂

    Thank you for following this joint Lupus Europe / ERN ReCONNET webinar! If you have any questions for the speakers, please post them here and we will ensure they are raised! 😃

    Hi from Corfu thank you for this it was really helpful!!!

    I am curious about diet and microbiome as well. I think the topic is very much understudied and not good understood - but has great influence.

    There are huge differences!

    Are there possibility’s with food to have remission

    There were only young people for the treatment with Car-T cells In am nog young any more. Is ther hope for me?

    Only on my phone de zoom started. I do not know why

    Metty Staal volgt

    What is there to expect the coming years. I mean mean in treatments?

    Thank you very much professor Arnoud

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