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The European Lupus Meeting is taking place in Venice, Italy from 5th-9th October 2016.

This year will be a great opportunity to share the research work done by patient organisations and/or single or groups of patients. This is a unique opportunity to present our work in the same sessions as the doctors.

LUPUS EUROPE invites all patients and patient representatives to submit an abstract as described on the LUPUS EUROPE website.

To submit an abstract please fill in the form (link below) and send it with the abstract to Kirsten Lerstrøm, LUPUS EUROPE, Chair (kirsten@lerstrom.dk), Francesca Marchiori, LUPUS EUROPE Co-Opted Patient Partner in Research (f.marchiori@tiscali.it)  and LUPUS EUROPE Secretariat (secretariat@lupus-europe.org).

Please contact any of the above for further information. Link to LUPUS EUROPE website and the abstract submission form (attached document), please click here.  The deadline for submission is 29th February. 

If you have any further questions please don’t hestitate to get in touch with Kirsten Lerstrøm, LUPUS EUROPE, Chair, Francesca Marchiori, LUPUS EUROPE Co-Opted Patient Partner in Research or LUPUS EUROPE Secretariat.

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3 days ago
LUPUS EUROPE

Patients can forget asking certain questions, especially the day they are diagnosed, due to the shock of knowing they have #lupus.

What is the question you should have asked and you didn't?

What is the question you think physicians should answer without being asked?

#Lupus100. With the collaboration of ERN RECONNET, Katana Santé and Fai2r.
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Patients can forget asking certain questions, especially the day they are diagnosed, due to the shock of knowing they have #lupus. 

What is the question you should have asked and you didnt?

What is the question you think physicians should answer without being asked?
 
#Lupus100. With the collaboration of ERN RECONNET, Katana Santé and Fai2r.

Comment on Facebook

Qu'es le lupus ? Moi j'ai eu a " c'est un lupus...comme votre grand mère" point final Je me suis imaginer ,mes mains se déformer,me paralyser j'ai eu peur maintenant 7 ans plus tard bien-sûr chez changer d'internet me suis tourné vers un rhumatologue et centre des douleurs un nouveau immunosuppresseurs mais pas d'explication sur les effets secondaires a part pour le foie ... suspens es ce que mon corps va accepte ce médicament

Recording your appointment helps

Medication side effects short and long twem

6 days ago
LUPUS EUROPE

More good news for the #lupus commnunity!!

Voclosporin has been approved in Europe for the treatment of adults with active lupus nephritis in combination with a background immunosuppressive therapy regimen.

ir.auriniapharma.com/press-releases/detail/263/aurinia-announces-european-commission-approval-of
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6 days ago
LUPUS EUROPE

Date is set! And #Lupus100 is fast approaching.
If you haven't done yet, subscribe to our newsletter to get the latest updates!

www.lupus-europe.org/me-lupus/lupus-europe-info-centre/
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LUPUS EUROPE Uniting people with Lupus throughout Europe
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