Present the patients’ perspective – European Lupus Meeting

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The European Lupus Meeting is taking place in Venice, Italy from 5th-9th October 2016.

This year will be a great opportunity to share the research work done by patient organisations and/or single or groups of patients. This is a unique opportunity to present our work in the same sessions as the doctors.

LUPUS EUROPE invites all patients and patient representatives to submit an abstract as described on the LUPUS EUROPE website.

To submit an abstract please fill in the form (link below) and send it with the abstract to Kirsten Lerstrøm, LUPUS EUROPE, Chair (kirsten@lerstrom.dk), Francesca Marchiori, LUPUS EUROPE Co-Opted Patient Partner in Research (f.marchiori@tiscali.it)  and LUPUS EUROPE Secretariat (secretariat@lupus-europe.org).

Please contact any of the above for further information. Link to LUPUS EUROPE website and the abstract submission form (attached document), please click here.  The deadline for submission is 29th February. 

If you have any further questions please don’t hestitate to get in touch with Kirsten Lerstrøm, LUPUS EUROPE, Chair, Francesca Marchiori, LUPUS EUROPE Co-Opted Patient Partner in Research or LUPUS EUROPE Secretariat.

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Alain Cornet

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    LUPUS EUROPE
    4 days ago

    🚨 New publication alert: EULAR recommendations for the management of systemic lupus erythematosus with kidney involvement- 2025 update.

    ‼️ According to Lupus Europe's 2024 Swiss knife survey:

    1️⃣ Kidney involvement remains one of the most worrying and impactful lupus manifestations for many people in Europe.
    2️⃣ Kidney problems are among the manifestations causing the greatest long-term concern.
    3️⃣ Only a small minority of patients report long-term stability without flares.
    4️⃣ Patients want clearer goals, better communication, and care that looks beyond lab values alone.

    That is why the 2025 update of the EULAR recommendations for the management of systemic lupus erythematosus with kidney involvement is such an important step forward.

    ✅ These updated recommendations reinforce several key messages that matter to patients:
    - Early and regular monitoring of kidney involvement.
    - Timely kidney biopsy when needed.
    - Clear treatment targets to preserve kidney function.
    - A strong focus on combination therapies when appropriate.
    - Long-term kidney protection, not only short-term control.

    🌟 We are especially proud that our Chair, Jeanette Andersen, was part of the international task force that developed these recommendations, ensuring that the patient perspective was present at the table.

    You can read the EULAR Recommendations here: ard.eular.org/article/S0003-4967(25)04412-7/fulltext

    And the Swiss Knife Survey here: www.sciencedirect.com/science/article/pii/S1568997225000989     ... See MoreSee Less

    🚨 New publication
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    LUPUS EUROPE
    1 week ago

    😃 Thank you to all who attended our latest Youth Group webinar!

    🌟 So many interesting questions were asked and addressed! Showing how important safe spaces arefor talking openly about lupus without judgment.

    Did you miss it? Watch it here! 👇

    Alcohol & Drugs - Lupus     ... See MoreSee Less

    😃 Thank you to al
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    LUPUS EUROPE was live.
    2 weeks ago

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    PlayAlcohol & Drugs - Lupus
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    LUPUS EUROPE
    2 weeks ago

    🚨 𝗟𝗮𝘀𝘁 𝗰𝗵𝗮𝗻𝗰𝗲❗

    🙏 Help Prof Laurent Arnaud and his team validate the Lupus Brain Fog Severity Scale.

    ✅ Make lupus brain fog measurable.

    ⏱️ 5 minutes of your time can make a huge impact!

    lupusresearch.limequery.org/337533?lang=en     ... See MoreSee Less

    🚨 𝗟𝗮𝘀�
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    LUPUS EUROPE Uniting people with Lupus throughout Europe
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