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Lupus Europe is the umbrella association of currently 31 national lupus self-help organisations throughout Europe, and supports people with lupus in Europe.

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; GlobalSkin @IADPO ·

16 Apr 1780344095652687981

Urgent Reminder: The #NotJustMySkin campaign wraps up on April 19th. Join us in advocating for the prioritization of skin health by signing the open letter at http://notjustmyskin.org. Show your support & help spread the word by sharing this post. #ActNow #SkinHealthAwareness

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; Lupus Europe @LupusEurope ·

12h 1780628144514269564

🚨 Calling all lupologists!

✅ Kindly share our Living With Lupus survey and help us get as many responses as possible.

🇪🇺 Available in 21 languages!

https://buff.ly/3VZLsEc

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; Laurent ARNAUD @Lupusreference ·

16 Apr 1780116864774877223

✅ Just 3 more days before the 4th @SLEuroSociety Advanced #Workshop for #Lupus of Porto (19-20 April) and I'm happy to share my recap slide about antinuclear antibodies (#ANA) in #SLE 📝 We're going to discuss atypical lupus cases...so it's good to know what is typical first 👍

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; Lupus Academy @LupusAcademy ·

15 Apr 1779842801015878070

Part 2 of our #LupusNephritis case-based modules reviews treatment guidelines for #lupus nephritis and the prevention of chronic #kidneyDisease, with expertise from @ykoteng_LUMC and Luis Quintana: http://lupusCME.org #RheumTwitter #rheumatology #SLE #kidney #CME #autoimmune

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; Lupus Europe @LupusEurope ·

16 Apr 1780159678766317869

Our Board & extended Board met last week for 2️⃣ full➕exciting days of work on the strategic plan. Lots of exciting plans in the pipeline🤩!

We also hosted an Industry Roundtable, bringing together our Industry Partners to talk about our work.

More on that 🔜 in the newsletter!

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; Federación Española Lupus | #FELUPUS @Felupus ·

9 Apr 1777629934350926264

Desde Lupus España ( @Felupus ) 🙏 os pedimos 🙏 vuestra colaboración para difundir y rellenar esta encuesta para pacientes “SWISS KNIFE SURVEY” de @LupusEurope en Español 🇪🇸

Enlace https://www.surveylegend.com/s/5h8u

⏳️En 15 minutos tu voz y realidad será trasladada y ➕️ visible❗️

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; Lupus Europe @LupusEurope ·

15 Apr 1779918090697834557

✍🏻Попълнете анкетата.

🔊Споделете с вашата общност.

👨🏼‍⚕Ако сте здравен специалист и лекувате пациенти с лупус в Европа, ще сме много благодарни, ако информирате вашите пациенти.

https://s.surveylegend.com/-NuOC4mQDrt8udTrqS85

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; Loreto Carmona 🖖 @carmona_loreto ·

10 Apr 1777933475456209163

Hello lupologists!
A SLESIS-R >6 = likelihood ratio of 5.5 to develop an infection in the next year.
SLESIS-R: an improved score for prediction of serious infection in patients with systemic lupus erythematosus based on the RELESSER prospective cohort https://lupus.bmj.com/content/11/1/e001096

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LUPUS EUROPE

22 hours ago

LUPUS EUROPE is conducting a survey to gather insights into the experiences of individuals living with #lupus across Europe.

🌍 In 2020, Lupus Europe launched a large “Living with lupus survey”. Thanks to the huge participation from patients around Europe, the insights from this survey are largely used. Time has now come for a new survey, with different topics, to add to our knowledge of what it means to live with lupus in 2024.

👤 The survey is anonymous and should take approximately 10 minutes to complete. It is available in 19 different languages.

🔗 Click the following link to complete the survey: www.surveylegend.com/s/5h8u

Thank you for sharing your views!

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LUPUS EUROPE

2 days ago

🔊 The Lupus Europe board and extended Board met last week in Bratislava, Slovakia, for two full and exciting days of work on the strategic plan.

🤩 Lots of exciting plans in the pipeline!

👥 We also hosted an Industry Roundtable, bringing together our Industry Partners to talk about the work of Lupus Europe.

🙌 A thoroughly engaging and constructive Industry Roundtable for 2024!

Do you want to know more?

✉️ Stay tuned! Our newsletter is coming out soon!

👉 Visit www.lupus-europe.org and sign up! ... See MoreSee Less