Sylvia Gaeumann

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    LUPUS EUROPE
    4 days ago
    LUPUS EUROPE

    🦋 How much do you really know about lupus?

    Stop wondering — find out now with SLAKE, the Systemic Lupus Assessment score for Essential Knowledge.

    ✔️ Quick and easy
    ✔️ Just a few minutes
    ✔️ Available in 20 languages
    ✔️ Get your personal lupus knowledge score

    SLAKE is not a test — it’s a tool designed to help you understand which areas of lupus you already know well and where you could learn more.

    And if you want to keep learning, remember to visit #Lupus100 and #LupusGPT — two reliable resources to improve your lupus knowledge.

    Don’t wait any longer.
    👉 Click the link, choose your language, and take SLAKE today!

    maladie-autoimmune.fr/SLAKE/     ... See MoreSee Less

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    LUPUS EUROPE
    6 days ago
    LUPUS EUROPE

    🇪🇺 On March 27, Lupus Europe held its General Assembly, bringing together all our member organisations.

    🗳️ We shared updates, discussed future plans, and welcomed Udruženje obolelih od reumatskih bolesti Republike Srbije - ORS as our newest member! 🎉

    💜 Welcome to the family! We're excited to work together towards a fulfilling life for all people with lupus in Europe, until we have reached a world without lupus.     ... See MoreSee Less

    🇪🇺 On March 27, Lupus Europe held its General Assembly, bringing together all our member organisations. 🗳️ We shared updates, discussed future plans, and welcomed Udruženje obolelih od reumatskih bolesti Republike Srbije - ORS as our newest member! 🎉 💜 Welcome to the family! Were excited to work together towards a fulfilling life for all people with lupus in Europe, until we have reached a world without lupus.
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    LUPUS EUROPE
    1 week ago
    LUPUS EUROPE

    #happyeaster ... See MoreSee Less

    #HappyEaster
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    LUPUS EUROPE
    2 weeks ago
    LUPUS EUROPE

    🦋 Lupus Europe took part in the 2nd ERN RECONNET International Congress on rare and low-prevalence connective tissue diseases, held in Prague, Czech Republic, from April 9 to 11, 2025.

    🙌 Happy to join clinicians and researchers to advance care for rare connective tissue diseases like #lupus!

    👩 Our Chair, Jeanette Andersen, delivered a powerful session on The Patient Perspective on Telemedicine, highlighting the opportunities and challenges for people living with lupus.

    📊 Alain Cornet also took the stage to share key findings from our Swiss Knife Survey, reflecting patients' priorities, unmet needs, and experiences across Europe.

    🙌 Thank you to ERN ReCONNET for fostering collaboration to improve care and outcomes for people with rare connective tissue diseases!     ... See MoreSee Less

    🦋 Lupus Europe took part in the 2nd ERN RECONNET International Congress on rare and low-prevalence connective tissue diseases, held in Prague, Czech Republic, from April 9 to 11, 2025. 🙌 Happy to join clinicians and researchers to advance care for rare connective tissue diseases like #lupus! 👩 Our Chair, Jeanette Andersen, delivered a powerful session on The Patient Perspective on Telemedicine, highlighting the opportunities and challenges for people living with lupus. 📊 Alain Cornet also took the stage to share key findings from our Swiss Knife Survey, reflecting patients priorities, unmet needs, and experiences across Europe. 🙌 Thank you to ERN ReCONNET for fostering collaboration to improve care and outcomes for people with rare connective tissue diseases!Image attachmentImage attachment+3Image attachment
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