There is still so much to learn about lupus in Europe. One of the ways this is happening is through surveys. Some are organised by LUPUS EUROPE, others by the European reference Networks or our partners, others by academics or other member groups… To help you contribute, we have assembled here some of the surveys currently available. Don’t hesitate to click on the respective links to provide your input to all!

Hydroxychloroquine Availability

Did you find HydroxyChloroquine last time you tried to buy it?

5 YES/NO questions on Clinical trials

A very short ``YES or NO`` questionnaire on clinical trials to focus next steps

Rare Barometer

Help EURORDIS communicate facts and figures to decision makers on the future of rare diseases (incl. lupus), so that your voice is heard

GRA COVID-19 Vax Survey

Help scientists understand how people with rheumatic disease make decisions regarding vaccines

Photolup Study

Help scientists understand photosensitivity in lupus better by taking part in the survey

ERN ReCONNET Survey

Tell scientists about the unmet needs of rare disease patients (inc. lupus) around pregnancy

Live Facebook Feed

Comments Box SVG iconsUsed for the like, share, comment, and reaction icons

✍🏻Täytä kysely.

🔊Jaa yhteisösi kanssa.

👨🏼‍⚕Jos olet terveydenhuollon ammattilainen ja kohtelet lupuspotilaita Euroopassa, arvostaisimme suuresti, jos informoisit potilaitasi.

s.surveylegend.com/-NrB_0Hf4Z-ZAZH55K7U
... See MoreSee Less

✍🏻Täytä kysely.

🔊Jaa yhteisösi kanssa.

👨🏼‍⚕Jos olet terveydenhuollon ammattilainen ja kohtelet lupuspotilaita Euroopassa, arvostaisimme suuresti, jos informoisit potilaitasi. 

https://s.surveylegend.com/-NrB_0Hf4Z-ZAZH55K7U
2 days ago

✍🏻Dalyvaukite apklausoje.

🔊Dalinkitės savo bendruomenėje

👨🏼⚕Jeigu esate sveikatos priežiūros specialistas ir gydote vilklige sergančius pacientus Europoje, būtume labai dėkingi, jei informuotumėte savo pacientus.

s.surveylegend.com/-NqwWcQ0UhyMxDtCBYRD
... See MoreSee Less

✍🏻Dalyvaukite apklausoje.

🔊Dalinkitės savo bendruomenėje

👨🏼⚕Jeigu esate sveikatos priežiūros specialistas ir gydote vilklige sergančius pacientus Europoje, būtume labai dėkingi, jei informuotumėte savo pacientus. 

https://s.surveylegend.com/-NqwWcQ0UhyMxDtCBYRD
3 days ago

✍🏻Completează sondajul.

🔊Împărtășește cu comunitatea ta.

👨🏼⚕Dacă ești un profesionist în sănătate și tratezi pacienți cu lupus în Europa, am aprecia foarte mult dacă i-ai informa pe pacienții tăi.

s.surveylegend.com/-NrUOqKxZuU6V6KLfWoG
... See MoreSee Less

✍🏻Completează sondajul.

🔊Împărtășește cu comunitatea ta.

👨🏼⚕Dacă ești un profesionist în sănătate și tratezi pacienți cu lupus în Europa, am aprecia foarte mult dacă i-ai informa pe pacienții tăi.

https://s.surveylegend.com/-NrUOqKxZuU6V6KLfWoG