Events May-June-July

May

10th – World Lupus Day “Lupus knows no boundaries”. Special online events global campaign Please go to www.worldlupusday.org for further information.

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11th May – EPF Access to healthcare workgroup meeting in Düsseldorf. Katharine Wheeler attending.

June

8-11th – EULAR Congress, London, UK. This year LUPUS EUROPE and LUPUS UK will share a stand in EULAR Village. LUPUS EUROPE is represented by Chair Kirsten Lerstrøm and Treasurer Kirsi Myllys.

15th – deadline for registrering to LUPUS EUROPE Convention 2016, Würzburg, Germany. Also deadline to nominate your candidate to the Board of Trustees elections. 

24-26th – LUPUS EUROPE Board of Trustees meeting.

July

29th – deadline for submission of your stories for the WAD2016 campaign “The Future in Your Hands”. Let us have many good lupus experiences represented! More information here.

 

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Alain Cornet

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    LUPUS EUROPE
    3 days ago

    🇨🇭 Spotlight on Lupus Switzerland!

    At our #lupusconvention, Lupus Switzerland presented a powerful poster showing the cover of their latest magazine, highlighting their commitment to diversity and inclusion within the lupus community.

    🧑‍🤝‍🧑 Although around 9% of their members are men, this was the first time in more than ten years and 22 issues that the topic had been addressed. A meaningful step towards ensuring everyone feels seen and represented.

    🖨️ With more than 600 copies printed and distributed, this initiative helps raise awareness, challenge assumptions and promote inclusion across their community.

    👏 Congratulations to Lupus Switzerland!     ... See MoreSee Less

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    LUPUS EUROPE
    6 days ago

    🚨 Have you ever felt that your symptoms or treatment needs were taken less seriously because of your body size?

    😪 For many patients, discussions about symptoms, pain, or treatment options are overshadowed by weight. Medication side effects, inflammation, fatigue, and reduced mobility are often ignored, while responsibility is placed on the individual. This can have real consequences for clinical decisions, referrals, and quality of care.

    🌈 We are extremely proud of our Chair, Jeanette Andersen, for addressing this reality in her article “More Than a Number: Weight Bias in Rheumatology Care”, published in the special #EMEUNEWS issue on #Obesity and #RheumaticDiseases.

    Thank you, Anastasia Madenidou and EMEUNET, for giving space to this important perspective and for inviting Jeanette to contribute.

    Read the full article here: emeunews.org/2025/12/10/more-than-a-number-weight-bias-in-rheumatology-care/     ... See MoreSee Less

    🚨 Have you ever f
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    LUPUS EUROPE
    1 week ago

    📌 Reminder for our Youth Group Webinar!

    🚫 Alcohol, recreational drugs & lupus: what are the risks?
    🌟 What young people living with lupus need to know to protect their health.

    Lupus Europe’s Youth Group invites you to an open, evidence-based discussion with Dr Luca Moroni focused on how alcohol and recreational substances can interact with lupus, treatments, and long-term health.

    We will talk clearly about:

    🚨 Known risks and current uncertainties
    🚨 Interactions with lupus treatments
    🚨 Real-life situations often left out of the conversation

    😱 Why talk about this?

    Because young people sometimes make choices that can carry real health risks, and they don’t always feel able to tell their loved ones or doctors everything.

    ‼️ Alcohol and recreational substances are part of many social environments. When lupus is involved, lack of reliable information can increase risks.

    💁‍♀️ Talking about this before helps:

    •⁠ ⁠Reduce avoidable risks.
    •⁠ ⁠Encourage safe and informed decisions.
    •⁠ ⁠Create a safe space for questions that are often left unasked.

    🌈 That’s why this webinar exists: to anticipate real situations, NOT encourage them, and provide clear, evidence-based information for young people living with lupus.

    🗓 29 January 2026
    ⏰ 19:00 CET
    💻 Online

    📩 Register now by emailing secretariat@lupus-europe.org

    ⏳ There’s still time to join!     ... See MoreSee Less

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    LUPUS EUROPE
    2 weeks ago

    🇳🇴 Spotlight on Lupus Norway!

    At our #LupusConvention, Lupus Norway shared how they continue to support people living with lupus through information, education and strong collaboration with healthcare professionals.

    🏥 Every year, the University Hospital in Oslo organises a meeting for patients with connective tissue diseases, including lupus. Lupus Norwa has an information stand that offers reliable resources and answers questions from anyone interested in SLE.

    📘 They have also published two new brochures to help patients better understand and manage life with lupus.:
    “Practical tips for improving your daily life” and “Find out more about SLE”.

    📰 To keep their community informed, Lupus Norway publishes a newsletter twice a year, focusing on key lupus-related topics such as research projects, sun protection, and patient stories. They also share updates about their participation in conferences and meetings, including EULAR, helping members stay up to date and engaged.

    👏 Congratulations, and thank you, Lupus Norway, for your commitment. You are a great example of how patient organisations can make a difference     ... See MoreSee Less

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    LUPUS EUROPE Uniting people with Lupus throughout Europe
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