Lupus Europe has featured in EPF’s latest newsletter, with a focus on our World Lupus Day campaign. Click here to see the article.
Lupus Europe Follow 5,381 3,370
Lupus Europe is the umbrella association of currently 30 national lupus self-help organisations throughout Europe, and supports people with lupus in Europe.
‼️ Exercise is not only fundamental to general health but especially vital for individuals facing RMDs like #lupus.
➡️ According to the @WHO, physical inactivity is a significant global health risk, underlining the importance of staying active for overall well-being.
✅ Do you REMEMBER the #PHOTOLUP Study 🌞 about #photosensitivity in #Lupus? I'm VERY HAPPY to report that the paper has been ACCEPTED in a very good journal 👍 Thanks to ALL of you with lupus who have contributed 🙏 and of course we will soon show the detailed results 👌
🚨 Only one day left!
🌟 Join our Webinar on digital health! 🌟
⏲️ Time is running out!
📧 Email: firstname.lastname@example.org and secure your spot!
✅ Engage with Dr. Philipp Bosch.
✅ Explore tech's potential in healthcare.
🗓️ Sep 28 (tomorrow!)
🕗 20:00 CET
✅ In line with the new #EULAR recommendations, #hydroxychloroquine is recommended for all with #lupus (unless contraindicated). If you haven't done so yet, have a look 👀 at our Editorial in @TheLancetRheum ⬇️ regarding #EMA concerns about the potential teratogenicity of #HCQ
‼️Lupus can have an impact on mental health.
🚶♀️Exercise can help #KickLupus by managing stress, anxiety & depression.
It can be a good aid in promoting relaxation & ⬇️ stress, offering a positive coping outlet.
Remember: #MentalHealth is important. Talk to your doctor about it
✅ The third statement of the new #EULAR #recommendations 🆕 for #LUPUS is a BIG CHANGE 🚨 because patients unresponsive to HCQ (+/-GCs) can now start immunosuppressive agents and/OR #BIOLOGICS 🔥
do YOU agree with early use of biologics? Is this really data-driven? 🆗
‼️Lupus can affect mobility with joint pain & muscle weakness.
✂️Tailored exercises can improve flexibility, ⬇️pain & ⬆️quality of life.
There are some examples in our exercise programme! https://buff.ly/3LAO45m
📷Let's show how we #KickLupus by adapting our exercise routine!
🧑🤝🧑 To support patients, caregivers, and healthcare professionals in managing #rheumatic and #musculoskeltal diseases (RMDs), #EULAR produces Lay versions of its Recommendations.
🌍EULAR's Lay summaries and translations can be found here 👉https://pulse.ly/nxav3xpor2
Welcome to Lupus Europe. To join our pan-European community, please contact us.