As part of its work to define LUPUS EUROPE’s 2018-2023 strategic plan, the board decided to gather input from multiple stakeholders on where it should focus its effort in the particular area of Research.
Over the past 5 years, steps have been made already in this matter, including the appointment of a trustee in charge of research, investment in training Patient Research Partners, participation in multiple research programs, running of our own surveys and panels, active engagement in the EULAR task force on SLE, … These actions have delivered results, but so much more is needed.
To help the board make its strategic choices in this area, we have collected some input during our last convention and staged 3 different workshop sessions over the past weeks: one with Doctors and Scientists; one with other patient groups; and one with representatives of the pharmaceutical industry engaged in Lupus related research. We would like to complete this work (on which we will report soon to you all) with additional member input in the form of a survey.
We would therefore very much appreciate if you could complete our short questionnaire (only 8 questions) in the next week or so. The questionnaire is run on survey monkey at the following link:
PS – You are receiving this email because you are listed as International Contact, Chair or representative of a LUPUS EUROPE member. You can help us maintain our records accurate by checking that your data is up to date with the link provided in the footer of this message “update your information”. Thank you.
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