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As announced in our March 5 Webcast, Lupus Europe is offering new opportunities for people living with lupus to volunteer and support the cause. Specifically, we are looking at 6 new members for our Patient Advisory Network, and 6 others to create a new Lupus Communication Network.
For Lupus Europe members – please note that effectively relaying this request to your networks is one of the convention discount earning activities.
For more details, please contact secretariat@lupus-europe.org
PATIENT ADVISORY NETWORK (PAN)
The PAN is a network of people having lupus that structurally connects the patient community to the scientific community. PAN members provide prompt, reliable and consistent advice and support from the very initial stages of research all the way to effective access through treatment plans. The objective being to act as liaison and resource to value-adding scientific projects, clinical trials and other research related to lupus.
Become a PAN member to really make a difference to the lives of people affected by Lupus and play a vital role in research! Get involved in a whole range of research activities; help develop research questions, apply for funding and ethical approval, sit on an advisory group, carry out the research, disseminate the research findings, …
Being in PAN is a great way to; learn new skills or develop existing skills, get work experience, build your confidence, feel motivated, gain a sense of achievement, contribute to a sector that matters to you, reap the rewards of improving the lives of others with lupus, make new friends and have fun
No previous experience is necessary, you just need a passion, good communication skills, good organisational skills, a willingness to learn, you can commit to time with us
We are looking for a wide cross section of applicants of approx. 6 new PAN members with different types of lupus whether it be young or old and any age in between, renal involvement, skin conditions, APS or other areas of involvement, different levels of severity and a good mix geographically of countries.
COMMUNICATION NETWORK:
Lupus EUROPE’s 3rd Strategic objective is to e heard and acting. To achieve this, we want to step up our communication skills and effectiveness. Our ambition is to have a true lupus Europe Comm’s group that brings continuity in support of LUPUS EUROPE’s communication. .
Hence, we are looking for 6-8 people with skills and experience in complementary facets of  communication : communication strategy, graphics, wordpress, Writing, fact-checking, press kit preparation, … available to support LUPUS EUROPE during the year.
The selected team will meet face to face so taht it can be fully equipped with Lupus Europe’s key relevant elements,, such as the “character” of Lupus Europe, our strategies, priorities, what exists, achievements, goals, tone, decision making process, … and can from there start to help us communicate better using Newsflash, Blog, Website, or other materials …
There will be opportunities for some of the Comm group to join the convention for the purpose of Blogging, Tweeting, facebooking, writing, interviewing, …
HOW TO APPLY:
For both Networks, as well as for any other offer of volunteer services (like translations, … or anything else) please send us your information using this link http://eepurl.com/gbVrYz AND send an email to secretariat@lupus-europe.org. We will then come back to you on next steps.
Please note that the application deadline is very short : send your application by MARCH 15, so that we can promptly complete the selection process.
THE FIRST FACE TO FACE MEETING of both networks will be held in Belgium May 18 -19. While we do not pay for volunteer work, we do cover all reasonable expenses such as travel and accommodation, and we are sure that you will find the work very rewarding !
Looking forward to hearing from you!
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