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Dear LUPUS EUROPE members
As part of its cooperation with the ERN ReCONNET, Lupus Europe is launching an important survey, which we would like to ask you to disseminate as largely as you can. We have made the effort of providing 13 different languages, and are open to adding new ones, so we hope that the responses will be at the measure of the effort. Our objective is to have at least 1 answer per 200,000 inhabitants in your country… Make the count and help us beat it.
The survey will be available at this link https://www.surveylegend.com/s/1gr6 till the end of June. It typically takes less than 5 minutes to complete.
While several questions are focused, on a current hot topic (discover which one by taking part in the survey 😊) there is more to it than you can think at a first glance. This survey is a first effort to collect some general information, which we will then be able to use next year when for the big Living with Lupus in 2020 survey. The more answers we get, the more feedback we obtain on the tool and the questions, … the better equipped we will be for the 2020 survey.
As we have done last year, we want to encourage our members to disseminate this information very broadly, and we will offer a 50€ discount for up to 2 delegates at the 2019 Lupus Europe Convention if you have successfully disseminated the survey through your network. No need to send us “proofs”, the survey count will tell us. Further, the top 3 groups in terms of answers per inhabitant in their geographic area will get an extra 50 € bonus. So spread the link as widely as you can!
More news will come soon on the convention and how you can earn extra discounts… stay tuned
See you soon in Liverpool!
LUPUS EUROPE’s BOARD
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