all the latest news
from LUPUS EUROPE NOVEMBER 2022
Dear Members and Friends,
The European Lupus Meeting (ELM) gathers physicians (lupologists), researchers and pharma companies interested in SLE and takes place every 2 years.
This year, after a break because of the Covid-19 pandemic it was held in the Karolinska University Hospital, Stockholm, Sweden, from October 5 to 8.
It gathered 850 attendees from 54 countries, 18 of those were PAN members from Lupus Europe. It was the first time with patients included in the scientific programme on the same level as physicians and researchers.
Patients were a part of the organising committee and we had dedicated programme sessions for HCPs and patients. These are exciting times for lupus with new products being approved and many new products in the pipeline and this contributed to a general feeling of optimism.
In this newsletter you have the unique opportunity to hear the experience of our patient representatives, who took part in this great meeting.
On behalf of the Board of Directors, Jeanette Andersen Chair of Lupus Europe
what do the acronyms mean ELM | European Lupus Meeting | website HCP | Health Care Professionals PAN | Patient Advisory Network SLE | Systemic Lupus Erythematosus
WATCH THESE SELECTED five short videos
Key Patient Takeaways from ELM2022
by Francesca | LE PAN Member
A Person-Focused Approach in SLE Care: The Patient Perspective
by Professor Marta Mosca | Italy
SLE Can be Grouped into Distinct Sub-Groups
by Dr. Lina Marcela Diaz Gallo | Sweden
Cognitive Dysfunction in SLE
by Dr. Betty Diamond | USA
Key Patient Takeaways from ELM 2022 | Fishbowl Discussion
by Hrönn | LE PAN Member
all the videos are subtitled in ENGLISH, are quite SHORT and about SEVERAL TOPICS like, Mitochondria, Sjögren’s Syndrome, Non-Atherosclerotic Cardiovascular, Glucocorticoids, Hydroxychloroquine, Anti-Rheumatic Drugs, Skin Manifestations, Genetics, Disease Activity, Nephritis, Adherence to Treatment, Epidemiology, Prevention, Covid, New Treatments, Paediatric, Cognitive Dysfunction, Person-Focused, Sub-Groups, …
Welcome to Lupus Europe. To join our pan-European community, please contact us.
LUPUS EUROPEUniting people with Lupus throughout Europe
Manage Cookie Consent
The technical storage or access is strictly necessary for the legitimate purpose of enabling the use of a specific service explicitly requested by the subscriber or user, or for the sole purpose of carrying out the transmission of a communication over an electronic communications network.
The technical storage or access is necessary for the legitimate purpose of storing preferences that are not requested by the subscriber or user.
The technical storage or access that is used exclusively for statistical purposes.The technical storage or access that is used exclusively for anonymous statistical purposes. Without a subpoena, voluntary compliance on the part of your Internet Service Provider, or additional records from a third party, information stored or retrieved for this purpose alone cannot usually be used to identify you.
The technical storage or access is required to create user profiles to send advertising, or to track the user on a website or across several websites for similar marketing purposes.