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November 2023

Dear Members and Friends,

As we welcome the blossoming of spring and the promise of warmer days ahead, Lupus Europe is thrilled to share a bouquet of new initiatives and opportunities blooming within our community.

Get ready to mark your calendars for two key events in the lupus world: the European Lupus Meeting (ELM) 2024 in Bruges and EULAR 2024 Congress in Vienna. These gatherings promise to be platforms for the latest in lupus research and developments, offering invaluable insights.
In a vibrant shift, our Kick Lupus Competition has been transformed into a monthly hashtag campaign, #kicklupus, weaving through 12 different themes to further empower your journey with lupus. Follow the campaign on social media!
As we look forward to Rare Disease Day 2024, let’s unite to amplify the voice of lupus in Europe. In this newsletter, you will also have the opportunity to hear heartfelt insights from Lupus Europe Board Member, Ida Daiva Povilaite, and to watch a fascinating webinar on CAR-T cell therapy.
With spring’s renewal, let’s further nurture hope, action, and connection within the European lupus community.



On behalf of the Board of Directors,
Jeanette Andersen
Chair of Lupus Europe

What do the acronyms mean:
Co-Opt: A Co-Opt Advisor to the Board of Lupus Europe is a personwho participates in Board operations for a limited amount of time, typically 6-12 months, but does not have voting rights. At the end of their time as a Co-Opt, having experienced a glimpse into the life of a Lupus Europe Board Member, that person is able to make an informed decision as to whether or not to apply for a Board position.
ELM 2024: European Lupus Meeting 2024
EULAR Congress: European Alliance of Associations for Rheumatology Congress

What is coming!

ELM 2024

Bruges 19-22 March 2024 From March 19-22, the European Lupus Meeting (ELM) 2024 will be held in the picturesque city of Bruges, Belgium. This year’s meeting is an onsite event, providing a unique opportunity to immerse yourself in the latest developments and research in lupus research and knowledge. Registrations are open, secure your spot now by registering below!

Click to register for ELM 2024

EULAR 2024

Vienna 12-15 June 2024 From June 12 – 15 the Annual EULAR Congress will take place in Vienna, Austria. This year the Congress will be for onsite attendees only. By joining you can learn about the latest scientific research within rheumatic and musculoskeletal diseases (RMDs) which also covers lupus. Registrations are open, just click bellow!

Click to register for EULAR 2024

Take note!

Rare Disease Day 2024

February 29th 2024 is Rare Disease Day. Lupus is a condition that is classified as rare in Europe. While it remains rare in numbers, lupus is all too familiar to those it affects.

Living with lupus often means navigating a world that is not designed with rare diseases in mind. The challenges faced by people living with lupus— from accessing a timely diagnosis to finding effective treatments—underscore the need for greater awareness and more research. Yet, the spirit of the European lupus community remains unyielding, driven by resilience and a shared vision of a fulfilling life for all people with lupus in Europe, until we have reached a world without lupus.

This Rare Disease Day let’s amplify the voices of the European lupus community. Visit Rare Disease Day to learn more about how you can take part in Rare Disease Day 2024!
Link :

Kick Lupus Hashtag

This year, Lupus Europe is evolving its Kick Lupus initiative into a dynamic hashtag campaign. Join us each month as we explore #kicklupus through 12 unique themes, offering actionable steps to improve life with lupus. From understanding symptoms to embracing adherence and exercise strategies, we’ll delve into various aspects of lupus, empowering you with knowledge and resources.

Stay tuned to Lupus Europe’s social media platforms and become part of this inspiring campaign. Follow #kicklupus on social media and let’s make every step count together!

What is happening:

Get to Know a Lupus Europe Board Member
Watch as Ida Daiva Povilaite shares her transformative journey from being a Co-Opt to a Board Member at Lupus Europe. In this video, Ida reflects on the learning curve and the importance of taking time to understand the complexities of the role, emphasising that both positions offer a deeply rewarding experience.

Happened last quarter:

Have you watched our latest webinar?

Watch a fascinating webinar on CAR-T cell therapy in lupus led by Dr. Ed Vital to learn more about the nuances of this cutting edge treatment

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