About Dalila

Dalila lives in Cardiff, Wales. Since very young she had great interest in medicine. Her SLE diagnosis as a child increased her admiration for the healthcare service even more.  She holds a BA in Modern Languages with further studies in International Business and works as a legal translator. She took her first steps in research when she was living in England, where she was treated by lupus experts. Those experts helped her to understand more about lupus and how to manage it. Through this journey she also learnt about the vital role that lupus patients have in research and how today’s involvement in research could shape and improve tomorrow’s lupus treatment and care.

 

In those 20 years since initial diagnosis, Dalila has been able to experience the positive impact that a support network can have on the quality of life and mental health of those with lupus. It is of great importance for her that lupus patients receive mental health support and that it becomes part of their care and lupus journey. She runs a local support group for Lupus UK and invites those in the area to join their meetings and awareness events.

 

She is highly committed to research and volunteers as a PAN member for Lupus Europe. She is also a lay reviewer for Health and Care Research Wales, NIHR, different universities, and charities across the UK. As a new Board Member for Lupus Europe board, she is looking forward to learning and collaborating with research projects in Europe.

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14 hours ago
LUPUS EUROPE

Did you miss our joint webinar with ERN RECONNET?

Among other things, Prof. Laurent Arnaud talked about the new EULAR recommendations for the management of #lupus and the main changes that have been introduced.

Watch it and tell us what you think about them!

Did you know that our Chair, Jeanette Andersen was part of the task force?
😃

EULAR 2023 Debrief – for people living with lupus LIVE LINK
... See MoreSee Less

Did you miss our joint webinar with ERN RECONNET?

Among other things, Prof. Laurent Arnaud talked about the new EULAR  recommendations for the management of #lupus and the main changes that have been introduced.

Watch it and tell us what you think about them!  

Did you know that our Chair, Jeanette Andersen was part of the task force? 
😃

https://www.facebook.com/LupusEurope/videos/1464013921069862
15 hours ago
LUPUS EUROPE

Today is #WORLDAPSDAY, an autoimmune disease that affects 20-30% of people with #lupus.

#APS can cause:

- Excessive blood clotting.
- Certain pregnancy complications.
Pregnancy planning and close monitoring are key to reduce the risk in pregnancy in patients with APS.

#pregnancy #planning #SLE #awareness #APSAwareness
... See MoreSee Less

Today is #WorldAPSDay, an autoimmune disease that affects 20-30% of people with #lupus.

#APS can cause:

- Excessive blood clotting.
- Certain pregnancy complications.
Pregnancy planning and close monitoring are key to reduce the risk in pregnancy in patients with APS.

#pregnancy #planning #SLE #awareness #apsawareness
2 days ago
LUPUS EUROPE

Did you know? We presented 6️⃣ abstracts for #EULAR2023, and all 6️⃣ of them were accepted!

We also...

🙌 Had 2️⃣ oral presentations.
🙌 3️⃣ posters.
🙌 Alain Cornet was one of the abstract award winners.
🙌 Zoe presented in the scientific abstract plenary session.

Watch the interview Dr. Anthony Psarras made with Alain Cornet in Milan!

youtu.be/lLNJmCJ7iqk
... See MoreSee Less

Did you know? We presented 6️⃣ abstracts for #EULAR2023, and all 6️⃣ of them were accepted!

We also...

🙌 Had 2️⃣ oral presentations.
🙌  3️⃣ posters.
🙌 Alain Cornet was one of the abstract award winners.
🙌 Zoe presented in the scientific abstract plenary session.

Watch the interview Dr. Anthony Psarras made with Alain Cornet in Milan! 

https://youtu.be/lLNJmCJ7iqk
3 days ago
LUPUS EUROPE

... See MoreSee Less

Comment on Facebook

Thank you Martijn, for your question! We will ensure your question is raised 🙂

Thank you for following this joint Lupus Europe / ERN ReCONNET webinar! If you have any questions for the speakers, please post them here and we will ensure they are raised! 😃

Hi from Corfu thank you for this it was really helpful!!!

I am curious about diet and microbiome as well. I think the topic is very much understudied and not good understood - but has great influence.

There are huge differences!

Are there possibility’s with food to have remission

There were only young people for the treatment with Car-T cells In am nog young any more. Is ther hope for me?

Only on my phone de zoom started. I do not know why

Metty Staal volgt

What is there to expect the coming years. I mean mean in treatments?

Thank you very much professor Arnoud

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