About Jeanette

Jeanette is from Denmark. She has a master’s degree in German and Philosophy and several years of experience as a teacher at higher education. She was diagnosed with SLE, APS, Sjögren´s Syndrome etc. in 2011 and had to go into early retirement in 2012.

She has worked for the Danish national Lupus group since 2012.

Jeanette has taken a special interest in the problems, which young lupus patients (age 18-35) face with regards to education, work and starting a family and is also a co-founder of the EULAR YoungPARE Working Group.

In her role as chair for LUPUS EUROPE she participates in Conferences, Meetings, seminars and Congresses like the EULAR congress, where she follows the latest research and spreads the word about LUPUS EUROPE´s work.

Jeanette has recently completed the EUPATI patient expert research partner programme, which focuses on patients’ involvement in research and is a member of Lupus Europe´s Patient Advisory Network (PAN).

She currently is a PARE board member and sits on the EULAR Editorial Board and Stene Prize group.

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2 weeks ago

As much as we love hearing from you all and appreciate the time you take to share how you #kicklupus and inspire others, we cannot allow any content specifically about healing products for lupus.

We would greatly appreciate if you followed this rule when posting on the page.
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2 weeks ago

#WorldLupusDay finishes today, but #lupusawareness does not. There is so much more we can do to make life with #lupus better. Watch our vice chair, Anne Charlet, talk about her journey of becoming a Board Member.
You can also join us and become a volunteer
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Wauvvvv SO good looking :-)

LUPUS EUROPE Uniting people with Lupus throughout Europe