Jeanette is from Denmark. She has a master’s degree in German and Philosophy and several years of experience as a teacher at higher education. She was diagnosed with SLE, APS, Sjögren´s Syndrome etc. in 2011 and had to go into early retirement in 2012.
She has worked for the Danish national Lupus group since 2012.
Jeanette has taken a special interest in the problems, which young lupus patients (age 18-35) face with regards to education, work and starting a family and is also a co-founder of the EULAR YoungPARE Working Group.
In her role as chair for LUPUS EUROPE she participates in Conferences, Meetings, seminars and Congresses like the EULAR congress, where she follows the latest research and spreads the word about LUPUS EUROPE´s work.
Jeanette has recently completed the EUPATI patient expert research partner programme, which focuses on patients’ involvement in research and is a member of Lupus Europe´s Patient Advisory Network (PAN).
She currently is a PARE board member and sits on the EULAR Editorial Board and Stene Prize group.