Jeanette Andersen is 43 years old, lives in Denmark and has a Master’s degree in German and Philosophy from the University of Copenhagen. In 2011 she was diagnosed with SLE, which (in combination with a lot of comorbidities) forced her to go into early retirement. Since then, she has immersed herself in the role of a volunteer in the area of rheumatology with a special focus on patient engagement in clinical research.
She is the Chair of Lupus Europe, a EUPATI trained patient expert on medicines Research & Development and the leader of the Lupus Europe Patient Advisory Network. She is also a patient representative (or e-PAG) and a Steering Committee Member in ERN ReCONNET as well as leader in the Danish Lupus group underneath Gigtforeningen (the Danish Rheumatism Association). She is a EULAR PARE Committee Member and Leader of the Editorial Board and Edgar Stene Prize working groups. She also sits on the ACTion Council on patient engagement in rheumatology research.
She has developed an exercise programme for lupus patients, that has been endorsed by both ERN and EULAR and at present she has a focus on developing educational materials on better communication between doctors and patients.