Join the Lupus Europe Patient Panel for Men – Apply Now!

Lupus Europe is organising a Patient Panel for Men this autumn and there are a few remaining spots available for those who want to apply!

📍 Where: Leuven, Belgium
📅 When: (Arrival) Friday 31 October in the afternoon – Sunday 2 November 2025 (departure after lunch)
👥 Who is organising: Lupus Europe. The Panel will be animated by Andreas Panteli (Lupus Suisse) & Ricky Chotai (Lupus Europe)

Much remains to be discovered about lupus. Not just disease mechanisms or new treatments, but also a better understanding of what it means to live with lupus, the day to day realities faced by patients, the impact on social and psychological functioning. To help people living with lupus bring their life experience to the table, Lupus Europe created Patient Panels, by and for people with lupus. The panels bring together 10-15 persons living with lupus from all over Europe to discuss a topic of interest. Discussions are animated by People living with lupus themselves, creating a unique atmosphere in the group, and allowing to speak in full confidence, without anyone else in the room. Participants can simply be themselves and speak in their voice.

Who can apply:

  • Any man living with lupus in Europe
  • Can speak conversational English (doesn’t need to be perfect)
  • Want to meet other men

What we provide:

  • All reasonable travel and hotel costs paid by Lupus Europe
  • Sessions made by men with lupus, for men with lupus
  • Time to ask questions
  • Chance to make friends and get support

How to apply:

 

Apply now! Don’t delay!

 

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Zoe Karakikla-Mitsakou

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    LUPUS EUROPE
    3 days ago

    🇨🇭 Spotlight on Lupus Switzerland!

    At our #lupusconvention, Lupus Switzerland presented a powerful poster showing the cover of their latest magazine, highlighting their commitment to diversity and inclusion within the lupus community.

    🧑‍🤝‍🧑 Although around 9% of their members are men, this was the first time in more than ten years and 22 issues that the topic had been addressed. A meaningful step towards ensuring everyone feels seen and represented.

    🖨️ With more than 600 copies printed and distributed, this initiative helps raise awareness, challenge assumptions and promote inclusion across their community.

    👏 Congratulations to Lupus Switzerland!     ... See MoreSee Less

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    LUPUS EUROPE
    6 days ago

    🚨 Have you ever felt that your symptoms or treatment needs were taken less seriously because of your body size?

    😪 For many patients, discussions about symptoms, pain, or treatment options are overshadowed by weight. Medication side effects, inflammation, fatigue, and reduced mobility are often ignored, while responsibility is placed on the individual. This can have real consequences for clinical decisions, referrals, and quality of care.

    🌈 We are extremely proud of our Chair, Jeanette Andersen, for addressing this reality in her article “More Than a Number: Weight Bias in Rheumatology Care”, published in the special #EMEUNEWS issue on #Obesity and #RheumaticDiseases.

    Thank you, Anastasia Madenidou and EMEUNET, for giving space to this important perspective and for inviting Jeanette to contribute.

    Read the full article here: emeunews.org/2025/12/10/more-than-a-number-weight-bias-in-rheumatology-care/     ... See MoreSee Less

    🚨 Have you ever f
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    LUPUS EUROPE
    1 week ago

    📌 Reminder for our Youth Group Webinar!

    🚫 Alcohol, recreational drugs & lupus: what are the risks?
    🌟 What young people living with lupus need to know to protect their health.

    Lupus Europe’s Youth Group invites you to an open, evidence-based discussion with Dr Luca Moroni focused on how alcohol and recreational substances can interact with lupus, treatments, and long-term health.

    We will talk clearly about:

    🚨 Known risks and current uncertainties
    🚨 Interactions with lupus treatments
    🚨 Real-life situations often left out of the conversation

    😱 Why talk about this?

    Because young people sometimes make choices that can carry real health risks, and they don’t always feel able to tell their loved ones or doctors everything.

    ‼️ Alcohol and recreational substances are part of many social environments. When lupus is involved, lack of reliable information can increase risks.

    💁‍♀️ Talking about this before helps:

    •⁠ ⁠Reduce avoidable risks.
    •⁠ ⁠Encourage safe and informed decisions.
    •⁠ ⁠Create a safe space for questions that are often left unasked.

    🌈 That’s why this webinar exists: to anticipate real situations, NOT encourage them, and provide clear, evidence-based information for young people living with lupus.

    🗓 29 January 2026
    ⏰ 19:00 CET
    💻 Online

    📩 Register now by emailing secretariat@lupus-europe.org

    ⏳ There’s still time to join!     ... See MoreSee Less

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    2 weeks ago

    🇳🇴 Spotlight on Lupus Norway!

    At our #LupusConvention, Lupus Norway shared how they continue to support people living with lupus through information, education and strong collaboration with healthcare professionals.

    🏥 Every year, the University Hospital in Oslo organises a meeting for patients with connective tissue diseases, including lupus. Lupus Norwa has an information stand that offers reliable resources and answers questions from anyone interested in SLE.

    📘 They have also published two new brochures to help patients better understand and manage life with lupus.:
    “Practical tips for improving your daily life” and “Find out more about SLE”.

    📰 To keep their community informed, Lupus Norway publishes a newsletter twice a year, focusing on key lupus-related topics such as research projects, sun protection, and patient stories. They also share updates about their participation in conferences and meetings, including EULAR, helping members stay up to date and engaged.

    👏 Congratulations, and thank you, Lupus Norway, for your commitment. You are a great example of how patient organisations can make a difference     ... See MoreSee Less

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    LUPUS EUROPE Uniting people with Lupus throughout Europe
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