My name is Melina and I live in the easternmost, warmest, and sunniest part of Europe, the small island of Cyprus. I have lived with lupus for the last 21 years, most of my life, if you count that I am 37 years old. I have also made a dream come true and I want to share it with you. My dream was to run a 5km race wearing the jersey of the Cyprus League of People with Rheumatism (CYPLER) and to run for all people with rheumatic, musculoskeletal diseases. I also want to share with you my experience and my thoughts during the race. With faith in myself, with the support of the wider association (CYPLER) as well as the members of the lupus group I made my dream come true. My biggest “problem” all these years was my lack of self-confidence, as I was very late to join our association because of my beliefs. I will not forget my first acquaintance with the lupus group in the furniture restoration workshop; how much strength and confidence I gained from this workshop. Doing things outside the norm gave me pleasure and strength!

 

Running towards the dream

 

There I was walking in the park one day, watching others running. The thought came to me that with the right guidance I could do what I have been dreaming of for years, namely, to run long distance. To run a race, say 5km.

 

 

During the duration of the race, because it took place at10.45 am the heat and the sun were too much, it “stole” my energy and made the whole run hopelessly endless. When I came upon the first “refuelling station” that had water, I took a small sip to quench my thirst and kept the bottle for later. The heat in my body combined with the heat outside was becoming unbearable. In my mind were so many thoughts, but I was mainly thinking of the girls at the association (CYPLER), the people with lupus who cheered me on in this effort shouting “Melina go, go, go Melina go goooooo”. I shouted it too with so much intensity that I even encouraged my fellow runners and I also kept running.

 

Lupus patient running in the 5km Run Limassol 2024 race, waving and smilingI then realised I had passed the 2.5 km mark and that there would be another refuelling station soon! As soon as I got there, I took off my hat and doused myself with water.  I then tried to stay on the side of the running path that was in the shade.

 

When I saw the finish arch, I gathered all my strength and started to run harder! In the last few meters, I felt so exhausted. But the joy of completing the race was great! When I reached the finish line and actually realised that I finished, it struck me that, for that race, I overcame so many of the obstacles a lupus patient can have in her life: sun, heat, dust, the cold rainy days (the time of preparation), the fatigue, the mental strain of effort. I found a solution to all the problems that happened throughout the race. But the race isn’t a 5km one; this race is our whole life. The winner is not only the one who finishes first, but also the one who fights until the end with all their strength.

 

The Dream Continues

At this point I want to say that the dream continues!! I have been invited through a sports group on Facebook to another race in Crete; have signed up for the 10km and I have already started preparing! I will continue to run for all of you! Dreams are many steps taken together and they only become a reality one step at a time. Once upon a time I could not climb a single floor without stopping two or three times due to fatigue, but now I can!

 

Written by Melina Georgiou, Member of the CYPLER Lupus Group 

 

Disclaimer: The views expressed in this article belong to the author. Please note that sun exposure is generally contraindicated for individuals with lupus. For more information, read: Can I sunbathe with lupus

 

 

 

Live Facebook Feed

Comments Box SVG iconsUsed for the like, share, comment, and reaction icons

🇨🇭 Spotlight on Lupus Switzerland!

At our #lupusconvention, Lupus Switzerland presented a powerful poster showing the cover of their latest magazine, highlighting their commitment to diversity and inclusion within the lupus community.

🧑‍🤝‍🧑 Although around 9% of their members are men, this was the first time in more than ten years and 22 issues that the topic had been addressed. A meaningful step towards ensuring everyone feels seen and represented.

🖨️ With more than 600 copies printed and distributed, this initiative helps raise awareness, challenge assumptions and promote inclusion across their community.

👏 Congratulations to Lupus Switzerland!
... See MoreSee Less

🇨🇭 Spotlight oImage attachment

🚨 Have you ever felt that your symptoms or treatment needs were taken less seriously because of your body size?

😪 For many patients, discussions about symptoms, pain, or treatment options are overshadowed by weight. Medication side effects, inflammation, fatigue, and reduced mobility are often ignored, while responsibility is placed on the individual. This can have real consequences for clinical decisions, referrals, and quality of care.

🌈 We are extremely proud of our Chair, Jeanette Andersen, for addressing this reality in her article “More Than a Number: Weight Bias in Rheumatology Care”, published in the special #EMEUNEWS issue on #Obesity and #RheumaticDiseases.

Thank you, Anastasia Madenidou and EMEUNET, for giving space to this important perspective and for inviting Jeanette to contribute.

Read the full article here: emeunews.org/2025/12/10/more-than-a-number-weight-bias-in-rheumatology-care/
... See MoreSee Less

🚨 Have you ever f

📌 Reminder for our Youth Group Webinar!

🚫 Alcohol, recreational drugs & lupus: what are the risks?
🌟 What young people living with lupus need to know to protect their health.

Lupus Europe’s Youth Group invites you to an open, evidence-based discussion with Dr Luca Moroni focused on how alcohol and recreational substances can interact with lupus, treatments, and long-term health.

We will talk clearly about:

🚨 Known risks and current uncertainties
🚨 Interactions with lupus treatments
🚨 Real-life situations often left out of the conversation

😱 Why talk about this?

Because young people sometimes make choices that can carry real health risks, and they don’t always feel able to tell their loved ones or doctors everything.

‼️ Alcohol and recreational substances are part of many social environments. When lupus is involved, lack of reliable information can increase risks.

💁‍♀️ Talking about this before helps:

•⁠ ⁠Reduce avoidable risks.
•⁠ ⁠Encourage safe and informed decisions.
•⁠ ⁠Create a safe space for questions that are often left unasked.

🌈 That’s why this webinar exists: to anticipate real situations, NOT encourage them, and provide clear, evidence-based information for young people living with lupus.

🗓 29 January 2026
⏰ 19:00 CET
💻 Online

📩 Register now by emailing secretariat@lupus-europe.org

⏳ There’s still time to join!
... See MoreSee Less

📌 Reminder for ou

🇳🇴 Spotlight on Lupus Norway!

At our #LupusConvention, Lupus Norway shared how they continue to support people living with lupus through information, education and strong collaboration with healthcare professionals.

🏥 Every year, the University Hospital in Oslo organises a meeting for patients with connective tissue diseases, including lupus. Lupus Norwa has an information stand that offers reliable resources and answers questions from anyone interested in SLE.

📘 They have also published two new brochures to help patients better understand and manage life with lupus.:
“Practical tips for improving your daily life” and “Find out more about SLE”.

📰 To keep their community informed, Lupus Norway publishes a newsletter twice a year, focusing on key lupus-related topics such as research projects, sun protection, and patient stories. They also share updates about their participation in conferences and meetings, including EULAR, helping members stay up to date and engaged.

👏 Congratulations, and thank you, Lupus Norway, for your commitment. You are a great example of how patient organisations can make a difference
... See MoreSee Less

🇳🇴 Spotlight oImage attachment
LUPUS EUROPE Uniting people with Lupus throughout Europe
Send