Lupus Europe is set to mark World Lupus Day with a webinar aimed specifically at young people living with lupus. The webinar, “Lupus and Youth: A Dialogue between the Lupus Europe Youth Group and a Young Rheumatologist,” is scheduled for the 10th of May at 19:00 CET.

Why This Webinar Matters

 

Lupus frequently affects people during their prime years. Openly discussing and addressing the unique challenges faced by young people with lupus is crucial for enhancing their quality of life and understanding of their condition. Lupus Europe recognises this need and is bringing the Lupus Europe Youth Group and a Young Rheumatologist together to foster a supportive dialogue.

 

What to Expect

 

The webinar will be led by the vibrant and knowledgeable Dr. Francesca Crisafulli from Italy. Co-leading the webinar will be members of the Lupus Europe Youth Group. Dr. Crisafulli, a young rheumatologist and lupologist, will offer her expert insights into the disease and answer questions from participants. This format encourages open communication between young lupus patients and the specialist. It also allows attendees to gain a deeper understanding of young peoples’ concerns and experiences.

 

Engaging Young Voices

 

Lupus Europe’s is committed to involving youth people in conversations around lupus. By dedicating this webinar to young voices, led by young voices, the specific concerns and perspectives of younger patients can be heard in their own voice. This is an event where young people with lupus can freely express their concerns, share their experiences, and openly discuss solutions with both peers and professionals.

 

How to Participate

 

Don’t miss the opportunity to participate! Register by sending an email to secretariat@lupus-europe.org. The webinar will be highly interactive. Participants will have the opportunity to engage directly with the Youth Group and the rheumatologist!

 

Final Thoughts

 

This webinar is not just an event, but a bridge connecting young lupus patients with experts. It is a rare chance to interact, ask important questions, and connect with others who understand the challenges of living with lupus as a young person.

 

Don’t miss out on this opportunity to be part of a meaningful conversation. Mark your calendar for May 10! Take the first step towards engaging with a community of young people committed to supporting other young people with lupus.

 

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🚨 Today is #WORDDAY2026! Which stands for WOrld Young Rheumatic Disease Day.

🌍 Through this global event, we can spread the word that children and young people get rheumatic diseases like lupus, too.

‼️ It is estimated that around 15-20% of #lupus patients are children, although it is rare that a child develops lupus before 5 years of age.

As with adult patients, the cause of lupus remains unknown, and there is a great choice of treatments to keep the disease under control.

🔴 On average, it takes nearly 6 years for people with lupus to be diagnosed. This delay in diagnosis, and therefore in treatment, can have an impact on the prognosis and quality of life of patients; this includes kids.

😰 The moment your child gets a diagnosis might be overwhelming for you. This feeling of overwhelm can and does go away with time and with access to the right information.

👉 Remember: it is impossible to learn everything about #lupus overnight! Your child's doctor is the best source of information.

Apart from pharmacological treatment, other non-pharmacological measures can also help in lupus management.

📷 Take a look at the images we are sharing today to learn about these non-pharmacological measures and share them with your community to help us raise awareness.

🐺 Lupus can seem scary at first. Remember that you are not alone and that you are going to do a great job!

Turn to your lupus association for support.

🤗 There are many organisations across Europe that can help you and your child cope with the disease.

More information on #SLE in children at #Lupus100: f.mtr.cool/oklkpqamyu

For more information on WORD Day, you can visit World Young Rheumatic Diseases Day - WORD Day
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🔴 Tomorrow is #WORDDAY2026!

🦋 And we will be sharing tips and information on how #lupus can affect children.

Help us raise awareness, which is key for an early diagnosis & a quick referral to a specialised paediatric rheumatologist.

Share our posts and follow the World Young Rheumatic Diseases Day - WORD Day campaign.

More information on lupus in children at #Lupus100 (19 languages):

f.mtr.cool/hnfukbkwdf
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🔴 Tomorrow is #WO

Watch this Lupus Europe Webinar on the European Lupus Meeting (ELM) 2026, As Viewed by Lupus Europe's PAN Members & Volunteers!

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Thank you so much for bearing with us. We’re experiencing some unexpected technical difficulties with Facebook Live in relation to the European Lupus Meeting (ELM) 2026 webinar due to air at 19:00 CET. The webinar is being recorded, and we will make sure it is shared with you as soon as possible. ... See MoreSee Less

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