I discovered in 2016 that I love running. And I created a special taste for competition. I am a master athlete and I have Lupus. I was diagnosed with Lupus at the age of 15 and I am an athlete since the age of 35. Now I’m 40 and I can’t stop running.

I had my first international experience in 2017, at the European Masters Championship in Aarhus, Denmark. I managed to get a good performance achieving a new Personal Best in the distances of 5000 m and half-marathon.

Since then, I have made a point of participating in Masters Championships defending my country and taking the cause across borders – awareness of Lupus and that we can and should kick it!

In 2019 I had my first scare. I decided to participate in the World Masters Championship in Malaga, Spain. The races I chose were the 10.000 m and the half-marathon. The 10.000 m on track was my first race of the championship and I managed to overcome myself under a hellish heat where I improved my time in the distance.

Meanwhile, during the interval of days until the half-marathon (where I was betting a good mark), I got sick because of insect bites. With fever and an acute attack of allergy I spent the days the best I could. When the day of the race came, I knew I was not in a position to achieve the goal. After they gave the starting shot my body “shut down”!

My legs weighed tons … I couldn’t breathe well … I started thinking about giving up! I didn’t give up because I didn’t want to leave the national team unclassified. I went to the end in agony! It was a bad experience that left me wondering if it would be worth it to continue competing and … running.

I returned to Portugal in a terrible physical and psychological condition.  To give up… I just thought about giving up.

In the first 3 weeks I rested without running. After 3 weeks my body started to ask for “movement” and, step-by-step I returned to training. I had the support from family and friends who did not let me give up on my big goal – the Marathon.

I started again with the marathon in my mind. The date was set – January 19, 2020, in Funchal, Madeira, the day of my first marathon. 42 kms to run and finish … that was the goal.

Even though I know that Lupus doesn´t let me train in the winter I wanted to take the risk. I missed training days for being sick, others for exhaustion and others for professional reasons. It was difficult but I went ahead.

When the day of the marathon arrived, I felt confident and at the same time afraid. I was optimistic because I believed in the work done by me and my coach and frightened because I was stepping into the unknown … I had never run so many kilometres … I didn’t know how my body would react.

They gave the starting shot and I knew it was now or never. I was passing km for km fulfilling the pace planned by the coach. At 35 km I started having cramps and I thought: “if you continue at this pace you will not end the race. So, you must slow down and manage the pain”.

36, 37, 38, 39, 40, 41 …. and 42 km in 3h21m was the time of my first marathon!

What I really kept from this experience was that I managed to run a marathon and it got me in a state of great happiness and made me very proud.

Today I can say that I am a marathon runner and Lupus didn’t win!

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21 hours ago

🌍 This #WorldLupusDay, take part in a unique event specially tailored for young people living with lupus:

😃 "Lupus and Youth: A Dialogue between the Lupus Europe Youth Group and a Young Rheumatologist".

📆 May 10th.
🕖 19:00 CET (i. e. Paris time).

‼️ This is not just any webinar for the youth. It is a webinar made by youth for youth.

👀 So expect anything! This is why you cannot miss this date, whether you are young or not: understanding the worries and needs of young people with lupus is key to addressing their needs.

📧 Join us! Send an e-mail to secretariat@lupus-europe.org and secure your spot now.

www.lupus-europe.org/lupus-europe-youth-webinar/
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🌍 This #WorldLupusDay, take part in a unique event specially tailored for young people living with lupus:

😃 Lupus and Youth: A Dialogue between the Lupus Europe Youth Group and a Young Rheumatologist.

📆 May 10th.
🕖 19:00 CET (i. e. Paris time).

‼️ This is not just any webinar for the youth. It is a webinar made by youth for youth.

👀 So expect anything! This is why you cannot miss this date, whether you are young or not: understanding the worries and needs of young people with lupus is key to addressing their needs.

📧 Join us! Send an e-mail to secretariat@lupus-europe.org and secure your spot now.

https://www.lupus-europe.org/lupus-europe-youth-webinar/
2 days ago

✅ While it's true that 9 out of 10 individuals diagnosed with #lupus are women, it's crucial to also reflect on the significant impact this disease has on men. Lupus does not discriminate, and understanding its effects on all genders is vital.

🌍 𝗠𝗲𝗻 𝗺𝗮𝘆 𝗳𝗮𝗰𝗲 𝘂𝗻𝗶𝗾𝘂𝗲 𝗰𝗵𝗮𝗹𝗹𝗲𝗻𝗴𝗲𝘀 𝗮𝗻𝗱 𝘀𝘆𝗺𝗽𝘁𝗼𝗺𝘀 that can differ from those typically reported by women and that is why we have included a specific section for men with lupus that has been created by men with lupus.

🇪🇺 If you are a 𝗺𝗮𝗻 𝗹𝗶𝘃𝗶𝗻𝗴 𝘄𝗶𝘁𝗵 𝗹𝘂𝗽𝘂𝘀 𝗶𝗻 𝗘𝘂𝗿𝗼𝗽𝗲, your participation in this survey is essential to help us better understand how lupus affects men.

Your insights can lead to better support and more effective interventions for all men affected by lupus.

🔊 Remember! This anonymous survey is available in 21 languages and will take no more than 10 minutes to complete.

buff.ly/3UMZkAQ
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3 days ago

♦️ Few days left to fill the Living With Lupus in 2024 survey!

✍🏻Weź udział w ankiecie.

🔊Udostępnij w swojej społeczności.

🙏 Help us and Lupus Poland achieve more answers to ensure that the Polish population is represented in the results

s.surveylegend.com/-Nr1vl1sxwISBcDaeOzP
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6 days ago

♦️ Few days left to fill the survey!

✍🏻 Realiza la encuesta.

🔊 Comparte con tu comunidad.

🙏 Help us and Felupus ensure the Spanish population is represented

s.surveylegend.com/-Nudx9pGv-1XtZ6OnYWs
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LUPUS EUROPE Uniting people with Lupus throughout Europe
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