headtop

The European Lupus Meeting is taking place in Venice, Italy from 5th-9th October 2016.

This year will be a great opportunity to share the research work done by patient organisations and/or single or groups of patients. This is a unique opportunity to present our work in the same sessions as the doctors.

LUPUS EUROPE invites all patients and patient representatives to submit an abstract as described on the LUPUS EUROPE website.

To submit an abstract please fill in the form (link below) and send it with the abstract to Kirsten Lerstrøm, LUPUS EUROPE, Chair (kirsten@lerstrom.dk), Francesca Marchiori, LUPUS EUROPE Co-Opted Patient Partner in Research (f.marchiori@tiscali.it)  and LUPUS EUROPE Secretariat (secretariat@lupus-europe.org).

Please contact any of the above for further information. Link to LUPUS EUROPE website and the abstract submission form (attached document), please click here.  The deadline for submission is 29th February. 

If you have any further questions please don’t hestitate to get in touch with Kirsten Lerstrøm, LUPUS EUROPE, Chair, Francesca Marchiori, LUPUS EUROPE Co-Opted Patient Partner in Research or LUPUS EUROPE Secretariat.

headtop

Live Facebook Feed

Comments Box SVG iconsUsed for the like, share, comment, and reaction icons
22 hours ago

♦️ Few days left to fill the survey!

✍🏻 Realiza la encuesta.

🔊 Comparte con tu comunidad.

🙏 Help us and Felupus ensure the Spanish population is represented

s.surveylegend.com/-Nudx9pGv-1XtZ6OnYWs
... See MoreSee Less

2 days ago

🦋 It's #LupusAwarenessMonth❗

🦵 #KickLupus: make it visible

Take part in the Living With Lupus in 2024 survey.

🗣️Your insights are crucial for capturing the diverse experiences of those living with #lupus across Europe.

𝗞𝗲𝘆 𝗽𝗼𝗶𝗻𝘁𝘀 𝗼𝗳 𝘁𝗵𝗲 𝘀𝘂𝗿𝘃𝗲𝘆:

1️⃣ Confidential and brief: Your identity stays anonymous and takes only 15 minutes.
2️⃣ Personalized and relevant: The survey adapts to your unique situation and covers aspects pertinent to your life with lupus.

👨‍💻 We're gathering data to:

🔹 Understand the current landscape of lupus treatment and management in Europe.
🔹 Identify key areas for support and improvement.
🔹 Ensure that the voices of those living with lupus are heard.
🔹 Recognise the diverse needs and challenges faced by the lupus community.

🦋 This survey will dive into your unique experience on 🩺 diagnosis & symptoms, 💊 treatment & 👨‍👩‍👧‍👦 how lupus affects your daily activities and the strategies you employ to manage it.

🔄 Please 𝘀𝗵𝗮𝗿𝗲 𝘁𝗵𝗶𝘀 𝘀𝘂𝗿𝘃𝗲𝘆 with your community and on your social media.

Languages available:

🇨🇿 Czech s.surveylegend.com/-NtkhoZPH8WNeA5e2ZCC
🇩🇰 Danish s.surveylegend.com/-NqmjTjyUXHGLMmAu5qS
🇩🇪 German s.surveylegend.com/-Nr0_sVBruuAHJTsHkuE
🇬🇷 Greek s.surveylegend.com/-Nr5KNkcBGDrsYl1F1xG
🇪🇸 Spanish s.surveylegend.com/-Nudx9pGv-1XtZ6OnYWs
🇬🇧 English s.surveylegend.com/-NqgyR5b7jLpCyBwEssv
🇪🇪 Estonian s.surveylegend.com/-Nt145Q5s02kLYdspFDs
🇫🇷 French s.surveylegend.com/-NrWK4Io8HFYwgd_JF9W
🇮🇹 Italian s.surveylegend.com/-NsvfEBWVnGf0eLQEC-0
🇳🇴 Norwegian s.surveylegend.com/-NrQBaJNQ4HcwZblYzh5
🇱🇹 Lithuanian s.surveylegend.com/-NqwWcQ0UhyMxDtCBYRD
🇳🇱 Dutch s.surveylegend.com/-NqgyeOSaTVcd7gBoK15
🇵🇱 Polish s.surveylegend.com/-Nr1vl1sxwISBcDaeOzP
🇷🇴 Romanian s.surveylegend.com/-NrUOqKxZuU6V6KLfWoG
🇷🇺 Russian s.surveylegend.com/-NtkhreGgEglDg9AeMfH
🇸🇮 Slovenian s.surveylegend.com/-Nt-wdNdIqT4v3ptXEM1
🇫🇮 Finnish s.surveylegend.com/-NrB_0Hf4Z-ZAZH55K7U
🇺🇦 Ukrainian s.surveylegend.com/-Nt1t0lpqlsn9jRPHe-3
🇧🇬 Bulgarian s.surveylegend.com/-NuOC4mQDrt8udTrqS85
🇵🇹 Portuguese s.surveylegend.com/-NuPMTJ2TjOzn2Oxa3Hi
🇭🇺 Hungarian s.surveylegend.com/-Nucu0zQ8je0kzInRWb8

Association Lupus erythémateux Belgique Luupuse Selts / Lupus Estonia Организация на пациентите с ревматологични заболявания Σύνδεσμος Ρευματοπαθών Κύπρου ΣύΡεΚ Lupus Suomi ry Association Francaise du lupus et autres maladies auto-immunes AFL + LUPUS FRANCE Lupus Erythematodes SHG e.V. Ελληνική Εταιρεία Αντιρευματικού Αγώνα ΕΛ Ε ΑΝ Α Lupus Poland Lupus Klub Motýlik Reumatikerförbundet Lupus UK Felupus Associação de Doentes com Lúpus
... See MoreSee Less

3 days ago

♦️ Few days left to fill the Living With Lupus in 2024 survey!

✍️ Responda à pesquisa e compartilhe com sua comunidade.

🙏 Help us & Associação de Doentes com Lúpus achieve more answers to ensure that the Portuguese population is represented in the results

s.surveylegend.com/-NuPMTJ2TjOzn2Oxa3Hi

#LupusAwarenessMonth
... See MoreSee Less

4 days ago

♦️ Few days left to fill the Living With Lupus in 2024 survey!

✍🏻Compila il sondaggio.

🔊Condividi con il tuo network.

s.surveylegend.com/-NsvfEBWVnGf0eLQEC-0

🙏 Help us and Gruppo LES Italiano ODV achieve more answers to ensure that the Italian population is represented in the results
... See MoreSee Less

1 CommentComment on Facebook

I want to introduce to you Dr. Ravi Herbal Home. Don’t die in silent 🔇 there’s still hope I understand you may have tried different medications but to no avail. Dr Ravi is here to help you cure any kind of diseases such as HIV, LUPUS, CANCER, PILE, ASTHMA , HEPATITIS, VIRGINAL INFECTION , ALZHEIMER-VIRUS, STROKE, HEART DISEASES, AORTIC, DISEASE AND KIDNEY DISEASES ETC . With the use of herbs Kindly contact him on WhatsApp +234(0)9025094850, or email: drravi5314@gmail.com or follow his Facebook page through the link. www.facebook.com/profile.php?id=61558012011988&mibextid=LQQJ4d

LUPUS EUROPE Uniting people with Lupus throughout Europe
Send