Welcome to
Our Lupus Community

Welcome to the Lupus Community, where we provide support, resources and a community for those affected by lupus. Whether you're a patient, caregiver, or advocate, you're not alone in this journey. Join us today to connect with others, share experiences, and access valuable information.

Lupus 100

Learn how Lupus 100 is making a difference in the fight against lupus. Support our mission to raise awareness and funds for lupus research. Click here to visit Lupus 100 and join the cause.

Lupus Europe

Discover how Lupus Europe empowers patients and advocates for better healthcare. Join us in supporting lupus patients across Europe. Visit our page to learn more and get involved.

NATIONAL LUPUS GROUP MEETING

Lupus UK

Join us for our weekly Lupus UK meetings in London. These meetings provide a supportive environment where you can connect with others, learn more about managing lupus, and access valuable resources. Whether you’re newly diagnosed or have been living with lupus for years, everyone is welcome.

2024 National Lupus Advocacy Summit

London, UK
March 13, 2024, Wednesday,
6:00 PM – 8:00 PM

2024 National Lupus Advocacy Summit

London, UK
March 13, 2024, Wednesday,
6:00 PM – 8:00 PM

2024 National Lupus Advocacy Summit

London, UK
March 13, 2024, Wednesday,
6:00 PM – 8:00 PM

JOIN OUR LUPUS COMMUNITY

Join our community to connect with others, share your story, and access resources.
Whether you’re seeking support or looking to support others, you’ll find a welcoming community here.

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LUPUS EUROPE
16 hours ago

🇵🇹 What a week at the European Lupus Meeting 2026 in Lisbon!

You may have noticed something unusual…

🤫 Lupus Europe has been very quiet on social media throughout the Congress.

The reason? We were way too busy contributing, participating and engaging throughout #Lupus2026!

Here are just a few highlights of Lupus Europe’s involvement:

🔹 12 Fishbowl Chairs
🔹 9 abstracts supported by Lupus Europe
🔹 Our Chair, Jeanette Andersen, speaking at both the opening and closing ceremonies
🔹 6 Lupus Europe co-chairs at scientific sessions
🔹 3 interventions in sessions and interactive workshops

🚀 Beyond the scientific programme, the meeting was also completely full of valuable discussions and working meetings for ongoing projects that we are excited to share with you soon.

Over the coming weeks, we will share more about what happened in Lisbon, so keep an eye out for news!

📅 Meanwhile, don’t miss our ELM 2026 Recap Webinar as viewed by our PAN members, who were there!
🗓 16 March
⏰ 19:00 CET (i.e. Paris time)
💻 Zoom

Register now, to hear the key takeaways and highlights from this important European meeting.
Just email: secretariat@lupus-europe.org ... See MoreSee Less

🇵🇹 What a week
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LUPUS EUROPE
1 week ago

Today is rare disease day!

🚨 There are over 300 million people who live with a #raredisease in #europe.

🌎 Today, we join our fellow patient organisations that work towards a better life for people with rare diseases and their families.

🔴 Some facts about #rarediseases:

1️⃣ There are more than 6000 identified rare diseases.

2️⃣ Rare diseases currently affect 5% of the worldwide population.
The true impact of rare diseases is much wider, however, with those affected in Europe in the millions, as the disease affects not only the patient but also our loved ones.

3️⃣ 72% of genetic diseases are genetic, although #lupus is not one of them.
👉 Lupus is not a genetic disease. Although it is very much related to genes, there are other factors that play a role in its manifestation.

4️⃣ 👶Neonatal #lupus is a rare congenital disorder that some infants of mothers with lupus and anti-Ro/SSA and/or anti-La/SSB antibodies develop.
The most serious complication of neonatal lupus is a heart condition known as congenital heart block.

5️⃣ Having an early diagnosis is key to having access to the right treatment. This has an impact on physical and mental health and, therefore, on the quality of life.

Along with organisations like Rare Disease Day and EURORDIS-Rare Diseases Europe, we will carry on working towards an early diagnosis, access to treatment and equality for #raredisease patients 🙌.

Thank you for your support on this #rarediseaseday!

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LUPUS EUROPE
1 week ago

#lupus is a #raredisease that affects nearly 500,000 people in Europe. Furthermore, there are over 300 million people who live with a #raredisease in #europe.

Today, along with Rare Disease Day, patient organisations around the world advocate for equity for people living with a rare disease

#ShareYourColours and help us spread the word by liking and sharing. Remember that you can also download the material of the official campaign on the website

f.mtr.cool/iyctvzvvtj ... See MoreSee Less

#Lupus is a #RareDis
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LUPUS EUROPE
1 week ago

Today is #RareDiseaseDay!

And we have joined Rare Disease Day campaign.

Everyone deserves equal opportunities, access to healthcare ➕ early diagnosis, which is key to setting a treatment plan &, hence, achieving a good quality of life.
#ShareYourColours

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Today is #RareDiseas
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