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Latest blogs

Sunset view of the Motlawa River embankment with historical buildings in Gdansk, Poland.

National Member News – Hello from Poland

March 18, 2024

Rare Disease Day 2024 banner with people from diverse backgrounds and colourful handprints symbolising global unity and awareness for rare diseases

Rare Disease Day 2024!

February 29, 2024

Detailed close-up of skin texture, representative of the dermatological focus in skin lupus studies

Stepping Up for Skin Lupus: An ePAG in ERN Skin

January 8, 2024

Festive Christmas background with evergreen branches, pine cones, red berries, walnuts, and a gift wrapped in kraft paper.

Happy Holidays from LUPUS EUROPE

December 24, 2023

Advocating for Lupus Awareness: EULAR Congress 2023

December 11, 2023

Illustration of an online webinar with diverse virtual attendees and speech bubbles indicating an interactive discussion

Webinar: CAR-T Cell Therapy in Lupus — Promises and Challenges Explored

November 27, 2023

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Country Level Data Norway
Country Level Data Norway
Country Level Data Norway
Country Level Data Norway

Latest Videos

Mitochondria in Systemic Lupus Erythematosus (SLE)

Mitochondria in Systemic Lupus Erythematosus (SLE)

Oct 24, 2022

Sjögren's Syndrome in Lupus: Does it Change Anything?

Sjögren's Syndrome in Lupus: Does it Change Anything?

Oct 24, 2022

Non-Atherosclerotic Cardiovascular Disease in SLE and APS

Non-Atherosclerotic Cardiovascular Disease in SLE and APS

Oct 24, 2022

70 Years Learning to Use Glucocorticoids

70 Years Learning to Use Glucocorticoids

Oct 24, 2022

$Refractory Skin Manifestations in Lupus$

Refractory Skin Manifestations in Lupus

Oct 24, 2022

Risk Gene Linked to Cardiovascular Disease

Risk Gene Linked to Cardiovascular Disease

Oct 24, 2022

Live Twitter Feed

Lupus Europe Follow 5,933 3,608

Lupus Europe is the umbrella association of currently 31 national lupus self-help organisations throughout Europe, and supports people with lupus in Europe.

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; Laurent ARNAUD @Lupusreference ·

21 Apr 1782082790642839797

✅ #Rosacea versus #LUPUS ⬇️
Practical tips for distinguishing the 2 conditions 👍

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; Lupus Europe @LupusEurope ·

22 Apr 1782428279221195104

🚨𝗗𝗲𝗮𝗱𝗹𝗶𝗻𝗲 𝗔𝗽𝗽𝗿𝗼𝗮𝗰𝗵𝗶𝗻𝗴 𝗙𝗮𝘀𝘁❗

Please take part in the Living With Lupus in 2024 survey.

🗣️ Your insights are crucial for capturing the diverse experiences of those living with #lupus across Europe.

🧵Find the link for all 21 languages in this thread ⤵️

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; Laurent ARNAUD @Lupusreference ·

19 Apr 1781347561221009574

✅ Management of #glucocorticoids at the 4th advanced workshop on #Lupus by @SLEuroSociety by J Delgado Alves:
- Main mechanisms of action
- Optimal starting dose (organ- and severity driven)
- Tapering strategy (how fast/additional medications?)
- Stopping? (Yes/no/who?)

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; Donald Thomas, MD @lupuscyclopedia ·

18 Apr 1781049456458117278

🔥 #SLE #lupus patients: Be part of the conversation. Let your voice be heard.

What is it like living with lupus?

Help @LupusEurope learn more about lupus patients so the rest of us know what you are going through

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; Laurent ARNAUD @Lupusreference ·

19 Apr 1781214145993474455

✅ Today is the start of the 4th @SLEuroSociety Advanced #Lupus #Workshop, an event created when I became President of the European Lupus Society. We bring together 30 lucky participants + an amazing faculty for 2 days of intensive & collective discussion of complex #SLE cases 👍

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; Lupus Europe @LupusEurope ·

19 Apr 1781231778566434827

✍🏻Пройдіть опитування.

🔊Поділіться з вашою громадою.

👨🏼‍⚕Якщо ви медичний працівник і лікуєте пацієнтів з лупусом в Європі, ми були б дуже вдячні, якби ви поінформували своїх пацієнтів.

https://buff.ly/3xIyiBy

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; EUPATI @eupatients ·

17 Apr 1780599208841707623

📣 One week left to register for our online EUPATI Essentials Training! 📣
Are you an industry, academia or consortium member wanting to enhance your knowledge on patient engagement?
🎯 Register now ▶️ https://bit.ly/4auAmen
#EUPATI #Essentials #OnlineTraining #RegisterToday

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; Alberta Hoi @alberta_hoi ·

18 Apr 1780759680127791322

My absolute pleasure to work with @Lupusreference CC Mok and Talia for this nice review, prepared for the general medical community to better understand Dx challenge and Mx of SLE. Lots we can do to improve outcomes inc comorbidity burden! https://authors.elsevier.com/a/1ixq7V-4XOrME

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4 hours ago

♦️ Few days left to fill the Living With Lupus in 2024 survey!

✍🏻Doe mee aan de enquête.

🔊Deel met uw gemeenschap.

🙏 Help us and NVLE achieve more answers to ensure that the Dutch population is represented in the results

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1 day ago

♦️ Few days left to fill the Living With Lupus in 2024 survey!

✍🏻Deltag i undersøgelsen.

🔊Del med dit fællesskab.

👨🏼⚕Hvis du er sundhedsprofessionel og behandler patienter med lupus i Europa, ville vi sætte stor pris på, at du informerer dine patienter.

🙏 Help us and Sle-Lupus- info achieve more answers to ensure that the Danish population is represented in the results

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2 days ago

♦️ Few days left to fill the Living With Lupus in 2024 survey!

✍🏻Dalyvaukite apklausoje.

🔊Dalinkitės savo bendruomenėje

👨🏼⚕Jeigu esate sveikatos priežiūros specialistas ir gydote vilklige sergančius pacientus Europoje, būtume labai dėkingi, jei informuotumėte savo pacientus.

🙏 Help us and Lupus Lt achieve more answers to ensure that the Lithuanian population is represented in the results

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4 days ago

✍🏻Doe mee aan de enquête.

🔊Deel met uw gemeenschap.

👨🏼‍⚕Bent u een gezondheidsmedewerker en behandelt u lupuspatiënten in Europa, dan waarderen we het zeer als u uw patiënten deze informatie verstrekt.

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✍🏻Doe mee aan de enquête.

🔊Deel met uw gemeenschap.

👨🏼‍⚕Bent u een gezondheidsmedewerker en behandelt u lupuspatiënten in Europa, dan waarderen we het zeer als u uw patiënten deze informatie verstrekt.

https://s.surveylegend.com/-NqgyeOSaTVcd7gBoK15

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