On World Lupus Day, @lupusreference discusses the unmet need of fatigue in #Lupus and how understanding it can lead to better management strategies.
#WorldLupusDay
#DiaMundialDelLupus
❤️Thank you for your support on this day & for ⬆️ awareness of the potential impact lupus can have.
However, there's something 🗝️that we also need to show.
🦋Lupus is an invisible illness with many faces. Let’s close #WorldLupusDay with our hopes,laughter & enthusiasm for life
It is estimated that about 50% of #SLE patients will suffer from #lupus nephritis, one of SLE's 🔝dangerous & frequent complications.
Routine checkups➕available treatments make it possible for 60–70% of patients to achieve complete or partial remission
#WorldLupusDay
#Lupus100
Despite significant improvements in diagnosis delay & treatment strategies,the burden of #SLE remains⬆️.
Association between diagnosis delay, disease activity & burden on daily life in patients with #lupus by @Lupusreference et al: https://buff.ly/3pgBsrL
#WorldLupusDay
#Lupus100
🌟 A heartfelt thank you to everyone who joined us for the "Lupus and Youth: A Dialogue between the Lupus Europe Youth Group and a Young Rheumatologist" webinar on #WorldLupusDay!
Your participation made this event a meaningful and enlightening experience.
“Living with #lupus isn’t always visible, but the impact is real.” Meet @AnnemarieS66, battling Systemic Lupus Erythematosus with grace despite facing misconceptions. On #WorldLupusDay, let's shed light on her story and #MakeLupusVisible. 🎥 https://bcove.video/3QzkGPk
🚨 In less than an hour!!!
😃 Don't miss this unique opportunity to learn what young people with lupus need to talk about!
‼️ Also, on Facebook Live!
https://www.facebook.com/LupusEurope
#WorldLupusDay
To celebrate World Lupus Day 🦋
📢 We are calling all patients with SLE
Your voice matters! 🗣️
👉 Participate in our LUPPOS survey to help us better understand your attitudes towards steroids used in SLE treatment.
Thank you @LupusEurope and @GruppoLes for your collaboration!
♦️ Few days left to fill the Living With Lupus in 2024 survey!
✍🏻 Izpolnite anketo.
🔊 Delite z vašo skupnostjo.
🙏 Help us achieve more answers to ensure the Slovak population is represented in the results
s.surveylegend.com/-Nt-wdNdIqT4v3ptXEM1
#lupusawarenessmonth
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🦋 #WorldLupusDay is coming to an end!
❤️ Thank you all for the support you have shown throughout this important day in which the whole world has raised awareness of the impact that lupus can potentially have 💥.
🌈 However, we at Lupus Europe believe that there is something very important that we also need to show the world: our vitality, our energy, and our will to enjoy life – including our work.
🌟 Our strong vision in a fulfilling life for all people with lupus in Europe, until we have reached a world without lupus.
😃 We always work hard! We all have lupus, though our amazing Lupus Europe family seems to forget about it when we are at an event, a meeting, or are working for the organisation.
🦋 Lupus is an invisible illness with many faces. Let’s close this day with our hopes, our laughter, and our enthusiasm for life.
🌺 Every day, but especially this # WorldLupusDay, we thank all those who stand by our side and show the best face of the 1000 faces lupus has.
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It is estimated that about 50% of #SLE patients will suffer from #lupus nephritis, one of SLE's 🔝dangerous & frequent complications.
Routine checkups➕available treatments make it possible for 60–70% of patients to achieve complete or partial remission
#WorldLupusDay
#Lupus100
1 CommentComment on Facebook
Interesting !
🔴 Despite significant improvements in diagnosis delay & treatment strategies, the burden of #SLE remains high.
Learn more on the association between diagnosis delay, disease activity and burden on daily life in patients with #lupus in this study: lupus.bmj.com/content/8/1/e000469
And get to better understand how to live with #lupus thanks to #Lupus100! A website written by doctors and patients to make it possible for people with lupus to have easy-to-understand and high-quality information about lupus!
lupus100.org/en/100-questions#Challenges
#WorldLupusDay
#Lupus100
1 CommentComment on Facebook
Yes, I had 6years diagnosis delay, though a lot of SLE activity, inflammation in my hole body, every joint - and a lot of pain and no sleep in several months, inflammation uses all your energi and makes fatique - a unbeareable burden. Now I fight against all the destroys SLE inflammation has made in my body - especially in all my joints and my lung.
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