Paul Howard

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    LUPUS EUROPE was live.
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    PlayAlcohol & Drugs - Lupus
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    LUPUS EUROPE
    11 hours ago

    🚨 𝗟𝗮𝘀𝘁 𝗰𝗵𝗮𝗻𝗰𝗲❗

    🙏 Help Prof Laurent Arnaud and his team validate the Lupus Brain Fog Severity Scale.

    ✅ Make lupus brain fog measurable.

    ⏱️ 5 minutes of your time can make a huge impact!

    lupusresearch.limequery.org/337533?lang=en     ... See MoreSee Less

    🚨 𝗟𝗮𝘀�
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    LUPUS EUROPE
    2 days ago

    Don't miss this unique opportunity! Register now by emailing secretariat@lupus-europe.org

    📌 Youth Group Webinar: Alcohol, recreational drugs & lupus: what are the risks?
    🌟 What young people living with lupus need to know to protect their health.

    Lupus Europe’s Youth Group invites you to an open, evidence-based discussion with Dr Luca Moroni focused on how alcohol and recreational substances can interact with lupus, treatments, and long-term health.

    We will talk clearly about:

    🚨 Known risks and current uncertainties
    🚨 Interactions with lupus treatments
    🚨 Real-life situations often left out of the conversation

    😱 Why talk about this?

    Because young people sometimes make choices that can carry real health risks, and they don’t always feel able to tell their loved ones or doctors everything.

    ‼️ Alcohol and recreational substances are part of many social environments. When lupus is involved, lack of reliable information can increase risks.

    💁‍♀️ Talking about this before helps:

    •⁠ ⁠Reduce avoidable risks.
    •⁠ ⁠Encourage safe and informed decisions.
    •⁠ ⁠Create a safe space for questions that are often left unasked.

    🌈 That’s why this webinar exists: to anticipate real situations, NOT encourage them, and provide clear, evidence-based information for young people living with lupus.

    🗓 29 January 2026
    ⏰ 19:00 CET
    💻 Online

    ⏳ There’s still time to join!     ... See MoreSee Less

    Dont miss this uniqu
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    LUPUS EUROPE
    1 week ago

    🇨🇭 Spotlight on Lupus Switzerland!

    At our #lupusconvention, Lupus Switzerland presented a powerful poster showing the cover of their latest magazine, highlighting their commitment to diversity and inclusion within the lupus community.

    🧑‍🤝‍🧑 Although around 9% of their members are men, this was the first time in more than ten years and 22 issues that the topic had been addressed. A meaningful step towards ensuring everyone feels seen and represented.

    🖨️ With more than 600 copies printed and distributed, this initiative helps raise awareness, challenge assumptions and promote inclusion across their community.

    👏 Congratulations to Lupus Switzerland!     ... See MoreSee Less

    🇨🇭 Spotlight oImage attachment
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