Thank you for Volunteering to support LUPUS EUROPE. It is thanks to Patient Engagement that we can deliver our mission. this group is a platform to interact with volunteers, letting you know what specific projects […]
Dear Lupus Europe 2019 Convention participant,
On this page, you will find all materials related to the Lupus Europe 2019 convention and council session. It could be that some files are still missing if we […]
🦋It's #LupusAwarenessMonth❗
🦵 #KickLupus: make it visible
Take part in the Living With Lupus in 2024 survey.
🗣️Your insights are crucial for capturing the diverse experiences of those living with #lupus across Europe.
🧵Find the link for all 21 languages in this thread⤵️
Are you aware of the new recommendations on physical activity and exercise for patients with SLE?
Find out here 👉 https://loom.ly/2S3OoJg
@Lupusreference @mugartegil @IoannisParodis #MedEd #MedTwitter #lupus #RheumTwitter
✅ May is #Lupusawareness month!!! 🦋 Let's spread the word! #Lupus is an #autoimmune disease affecting approximately 3.4 MILLION people in the world 🌎🌍🌏 and is associated with a wide range of #symptoms, some of which are not always visible!
🙏 Si vives en España y no lo has hecho aún, rellena esta encuesta en español de @lupuseurope.
🦋 Necesitamos un buen número de respuestas de pacientes españoles para obtener datos más reales con los q poder trabajar para mejorar la calidad de vida de las personas con #lupus.
♦️ Few days left to fill the Living With Lupus in 2024 survey!
✍🏻Compila il sondaggio.
🔊Condividi con il tuo network.
https://s.surveylegend.com/-NsvfEBWVnGf0eLQEC-0
🙏 Help us and @GruppoLesItalia achieve more answers to ensure that the Italian population is represented in the results
✅ If you have not downloaded 📥 the 2024 #Lupus 'SEMINAR' 🧑🎓 from @TheLancet ⬇️ please keep in mind that this is a temporary (free) link ⏳ provided by the Editor before this moves on to regular download 😉⬇️⬇️⬇️
❗Save the date❗
🤩Lupus Europe is excited to invite you to a unique event on #WorldLupusDay:
🧑💻“Lupus & Youth: A Dialogue between the Lupus Europe Youth Group & a Young Rheumatologist”
📆 10th May
🕖 19:00 CET
‼️ Register now! Send an e-mail to secretariat@lupus-europe.org
📢The call to submit your late-breaking abstracts to #EULAR2024 is open!
🔔Upcoming Deadline: 28 April 2024
Submit your clinical and scientific breakthroughs today👉https://pulse.ly/bwpafhygzd
#eularCONGRESS #EULAR #Rheumatology
♦️ Few days left to fill the survey!
✍🏻 Realiza la encuesta.
🔊 Comparte con tu comunidad.
🙏 Help us and Felupus ensure the Spanish population is represented
s.surveylegend.com/-Nudx9pGv-1XtZ6OnYWs
0 CommentsComment on Facebook
🦋 It's #LupusAwarenessMonth❗
🦵 #KickLupus: make it visible
Take part in the Living With Lupus in 2024 survey.
🗣️Your insights are crucial for capturing the diverse experiences of those living with #lupus across Europe.
𝗞𝗲𝘆 𝗽𝗼𝗶𝗻𝘁𝘀 𝗼𝗳 𝘁𝗵𝗲 𝘀𝘂𝗿𝘃𝗲𝘆:
1️⃣ Confidential and brief: Your identity stays anonymous and takes only 15 minutes.
2️⃣ Personalized and relevant: The survey adapts to your unique situation and covers aspects pertinent to your life with lupus.
👨💻 We're gathering data to:
🔹 Understand the current landscape of lupus treatment and management in Europe.
🔹 Identify key areas for support and improvement.
🔹 Ensure that the voices of those living with lupus are heard.
🔹 Recognise the diverse needs and challenges faced by the lupus community.
🦋 This survey will dive into your unique experience on 🩺 diagnosis & symptoms, 💊 treatment & 👨👩👧👦 how lupus affects your daily activities and the strategies you employ to manage it.
🔄 Please 𝘀𝗵𝗮𝗿𝗲 𝘁𝗵𝗶𝘀 𝘀𝘂𝗿𝘃𝗲𝘆 with your community and on your social media.
Languages available:
🇨🇿 Czech s.surveylegend.com/-NtkhoZPH8WNeA5e2ZCC
🇩🇰 Danish s.surveylegend.com/-NqmjTjyUXHGLMmAu5qS
🇩🇪 German s.surveylegend.com/-Nr0_sVBruuAHJTsHkuE
🇬🇷 Greek s.surveylegend.com/-Nr5KNkcBGDrsYl1F1xG
🇪🇸 Spanish s.surveylegend.com/-Nudx9pGv-1XtZ6OnYWs
🇬🇧 English s.surveylegend.com/-NqgyR5b7jLpCyBwEssv
🇪🇪 Estonian s.surveylegend.com/-Nt145Q5s02kLYdspFDs
🇫🇷 French s.surveylegend.com/-NrWK4Io8HFYwgd_JF9W
🇮🇹 Italian s.surveylegend.com/-NsvfEBWVnGf0eLQEC-0
🇳🇴 Norwegian s.surveylegend.com/-NrQBaJNQ4HcwZblYzh5
🇱🇹 Lithuanian s.surveylegend.com/-NqwWcQ0UhyMxDtCBYRD
🇳🇱 Dutch s.surveylegend.com/-NqgyeOSaTVcd7gBoK15
🇵🇱 Polish s.surveylegend.com/-Nr1vl1sxwISBcDaeOzP
🇷🇴 Romanian s.surveylegend.com/-NrUOqKxZuU6V6KLfWoG
🇷🇺 Russian s.surveylegend.com/-NtkhreGgEglDg9AeMfH
🇸🇮 Slovenian s.surveylegend.com/-Nt-wdNdIqT4v3ptXEM1
🇫🇮 Finnish s.surveylegend.com/-NrB_0Hf4Z-ZAZH55K7U
🇺🇦 Ukrainian s.surveylegend.com/-Nt1t0lpqlsn9jRPHe-3
🇧🇬 Bulgarian s.surveylegend.com/-NuOC4mQDrt8udTrqS85
🇵🇹 Portuguese s.surveylegend.com/-NuPMTJ2TjOzn2Oxa3Hi
🇭🇺 Hungarian s.surveylegend.com/-Nucu0zQ8je0kzInRWb8
Association Lupus erythémateux Belgique Luupuse Selts / Lupus Estonia Организация на пациентите с ревматологични заболявания Σύνδεσμος Ρευματοπαθών Κύπρου ΣύΡεΚ Lupus Suomi ry Association Francaise du lupus et autres maladies auto-immunes AFL + LUPUS FRANCE Lupus Erythematodes SHG e.V. Ελληνική Εταιρεία Αντιρευματικού Αγώνα ΕΛ Ε ΑΝ Α Lupus Poland Lupus Klub Motýlik Reumatikerförbundet Lupus UK Felupus Associação de Doentes com Lúpus
0 CommentsComment on Facebook
♦️ Few days left to fill the Living With Lupus in 2024 survey!
✍️ Responda à pesquisa e compartilhe com sua comunidade.
🙏 Help us & Associação de Doentes com Lúpus achieve more answers to ensure that the Portuguese population is represented in the results
s.surveylegend.com/-NuPMTJ2TjOzn2Oxa3Hi
#LupusAwarenessMonth
0 CommentsComment on Facebook
♦️ Few days left to fill the Living With Lupus in 2024 survey!
✍🏻Compila il sondaggio.
🔊Condividi con il tuo network.
s.surveylegend.com/-NsvfEBWVnGf0eLQEC-0
🙏 Help us and Gruppo LES Italiano ODV achieve more answers to ensure that the Italian population is represented in the results
1 CommentComment on Facebook
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