Anne Charlet

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    • Group logo of Liverpool 2019 Presentations & Materials
      Liverpool 2019 Presentations & Materials
      active 6 years, 5 months ago

      Dear Lupus Europe 2019 Convention participant,

      On this page, you will find all materials related to the Lupus Europe 2019 convention and council session.  It could be that some files are still missing if we […]

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    LUPUS EUROPE
    22 hours ago

    😃 Last week at #EULAR2026, we presented POS0246-PARE, “Mapping mental health trajectories in lupus: patient-identified inflexion points and support opportunities from a European patient panel”.

    The poster was presented by Ricky Chotai, Lupus Europe Board Member, on behalf of Alain Cornet, Lupus Europe Finance Lead & Organisation Coach, and lead author of this work.

    ✅ This patient-led qualitative work explored how people living with lupus and established, currently stable mental health difficulties understand the trajectory of mental health across the lupus journey.

    ‼️ Based on our patient panel conducted in Portugal with 8 adults living with lupus, the work identified key moments when support may matter most: diagnostic uncertainty, early disease phases, fluctuating symptoms, and communication with healthcare professionals.

    🔴 One of the key messages is clear: mental health in lupus should not be seen only as an isolated symptom or crisis. It can be shaped over time by interactions with uncertainty, communication, and care structures.

    The findings point to practical opportunities for support, including earlier acknowledgement of mental health concerns at diagnosis, normalising mental health discussions in lupus care, clearer communication during periods of uncertainty, peer support, and integrated psychosocial support throughout the disease course.

    💫 Congratulations to Alain Cornet for this outstanding poster and to all authors: Zoe Karakikla-Mitsakou, Jeanette Andersen, Ricky Chotai, and Alain Cornet.

    Read the abstract:
    distribution-congress.eular.org/from.storage?image=15rRXWmdOAJ77zPlkD-rQtl85j9jAymUnt6XfjsO2C9rls...     ... See MoreSee Less

    😃 Last week at #E
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    LUPUS EUROPE
    2 days ago

    💜 Thank you to everyone who attended our EULAR 2026 Recap Webinar and joined us to look back at one of our most exciting congresses in recent years.

    🤩 #Eular2026 has been intense, inspiring and full of moments we will remember.

    Over the Congress, Lupus Europe contributed to and followed an incredible amount of work:

    ✅ 7 presentations as speakers
    ✅ 3 sessions chaired
    ✅ 66 sessions attended
    ✅ 318 presentations followed
    ✅ All the interviews you have been able to see in this webinar

    But it is not only about numbers.

    🌟It is also about the people behind them: the commitment, the humour, the hugs, the shared tiredness, the late nights, the conversations between sessions, and the spirit of this amazing Lupus Europe family.

    What makes our work possible is not only the support we receive from our community, partners and friends.

    🥰 It is also the energy, attitude, and generosity of our volunteers, who give their time, expertise and heart to Lupus Europe.     ... See MoreSee Less

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    LUPUS EUROPE was live.
    2 days ago

    EULAR 2026 Recap Webinar ... See MoreSee Less

    PlayEULAR 2026 Recap Webinar
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    LUPUS EUROPE
    2 days ago

    ⏰ Just 1 hour left for our #EULAR2026 highlights webinar!

    😨 You haven't registered yet? Don't worry! We have great news for you!

    ✅ You can still catch all the insights live on our Facebook page www.facebook.com/LupusEurope

    Join us at 19h CET to explore key takeaways from the Congress!     ... See MoreSee Less

    ⏰ Just 1 hour left
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