Thank you for Volunteering to support LUPUS EUROPE. It is thanks to Patient Engagement that we can deliver our mission. this group is a platform to interact with volunteers, letting you know what specific projects […]
Dear Lupus Europe 2019 Convention participant,
On this page, you will find all materials related to the Lupus Europe 2019 convention and council session. It could be that some files are still missing if we […]
Urgent Reminder: The #NotJustMySkin campaign wraps up on April 19th. Join us in advocating for the prioritization of skin health by signing the open letter at http://notjustmyskin.org. Show your support & help spread the word by sharing this post. #ActNow #SkinHealthAwareness
🚨 Calling all lupologists!
✅ Kindly share our Living With Lupus survey and help us get as many responses as possible.
🇪🇺 Available in 21 languages!
https://buff.ly/3VZLsEc
✅ Just 3 more days before the 4th @SLEuroSociety Advanced #Workshop for #Lupus of Porto (19-20 April) and I'm happy to share my recap slide about antinuclear antibodies (#ANA) in #SLE 📝 We're going to discuss atypical lupus cases...so it's good to know what is typical first 👍
Part 2 of our #LupusNephritis case-based modules reviews treatment guidelines for #lupus nephritis and the prevention of chronic #kidneyDisease, with expertise from @ykoteng_LUMC and Luis Quintana: http://lupusCME.org #RheumTwitter #rheumatology #SLE #kidney #CME #autoimmune
Our Board & extended Board met last week for 2️⃣ full➕exciting days of work on the strategic plan. Lots of exciting plans in the pipeline🤩!
We also hosted an Industry Roundtable, bringing together our Industry Partners to talk about our work.
More on that 🔜 in the newsletter!
Desde Lupus España ( @Felupus ) 🙏 os pedimos 🙏 vuestra colaboración para difundir y rellenar esta encuesta para pacientes “SWISS KNIFE SURVEY” de @LupusEurope en Español 🇪🇸
Enlace https://www.surveylegend.com/s/5h8u
⏳️En 15 minutos tu voz y realidad será trasladada y ➕️ visible❗️
✍🏻Попълнете анкетата.
🔊Споделете с вашата общност.
👨🏼⚕Ако сте здравен специалист и лекувате пациенти с лупус в Европа, ще сме много благодарни, ако информирате вашите пациенти.
https://s.surveylegend.com/-NuOC4mQDrt8udTrqS85
Hello lupologists!
A SLESIS-R >6 = likelihood ratio of 5.5 to develop an infection in the next year.
SLESIS-R: an improved score for prediction of serious infection in patients with systemic lupus erythematosus based on the RELESSER prospective cohort https://lupus.bmj.com/content/11/1/e001096
Tässä Lupus Europen kysely, vastauksia toivotaan myös miehiltä. Vastausaikaa on tiistaihin 30.4. asti
s.surveylegend.com/-NrB_0Hf4Z-ZAZH55K7U
0 CommentsComment on Facebook
Drogie Motylki, 🦋🥰
mamy do Was prośbę o wypełnienie ankiety LUPUS EUROPE.
👉 www.surveylegend.com/s/5h8u
👉 www.surveylegend.com/s/5h8u
👉 www.surveylegend.com/s/5h8u
Udział w tego typu ankietach ma wpływ na badania, zatwierdzenie leków, praktyki lekarskie oraz na publikacje naukowe wyników, które są cytowane w różnych artykułach w czasopismach medycznych.
Dzięki poprzedniej dużej ankiecie powstał lupus100.org
Dlatego bardzo prosimy o poświęcenie kilku minut na wypełnienie ankiety. Dzięki temu, mamy wpływ na to, co dla nas jest najważniejsze.
👉 www.surveylegend.com/s/5h8u
👉 www.surveylegend.com/s/5h8u
👉 www.surveylegend.com/s/5h8u
#lupuspoland #lupuseurope #ankieta #toczeń #sle
0 CommentsComment on Facebook
LUPUS EUROPE is conducting a survey to gather insights into the experiences of individuals living with #lupus across Europe.
🌍 In 2020, Lupus Europe launched a large “Living with lupus survey”. Thanks to the huge participation from patients around Europe, the insights from this survey are largely used. Time has now come for a new survey, with different topics, to add to our knowledge of what it means to live with lupus in 2024.
👤 The survey is anonymous and should take approximately 10 minutes to complete. It is available in 19 different languages.
🔗 Click the following link to complete the survey: www.surveylegend.com/s/5h8u
Thank you for sharing your views!
#LupusAwareness #LupusResearch #SLE #LupusCommunity
0 CommentsComment on Facebook
;
