About Sara

Sara is a biochemist by education who after spending some years conducting research in the field of immunology at the Karolinska Institute in Stockholm, Sweden moved to Brussels to work in Policy and Advocacy. She is a lupus patient herself and was diagnosed at the age of 16 and is very passionate about patient advocacy and how to best link the patient needs with the scientific perspective.

 

After giving birth to her first son, Elias, she started her own consultancy helping organisations with the management of multi-stakeholder projects at EU level. She might be a familiar face to some of you since she previously was part of the Lupus Europe board of trustees. Fun fact, during 2019 she ran the 5-borough series in New York to show that lupus patients can do anything they set their minds to. The 5-borough series is a series of races where you run all the 5 boroughs in New York during one year which includes 3 half-marathons, one 16 km and one 10 km races.

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✅ For all questions about #lupus, remember you can visit #LupusGPT & #EasyLupus: multilingual AI tools developed by Lupus Europe, powered by 🔝sources including #Lupus100.

🌐 Visit lupusgpt.org/ & easy.lupusgpt.org/ for reliable answers to your lupus questions!
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✅ For all question

🔴 Although lupus nephritis remains one of the most serious complications for SLE patients, early diagnosis and adequate treatment make remission possible in many cases ✅.

🦋 Kidney disease is a silent illness. Getting to recognise its symptoms is key to getting an early diagnosis and preventing potential complications:

1️⃣ Urine changes (in frequency or colour)
2️⃣ Swelling in 🤲 🦶 🦵
3️⃣ Foamy urine
4️⃣ High blood pressure

Prevention is key! There are many ways to take care of your kidneys:
1️⃣ Have an active life 🚶‍♂️ 🏃‍♀️
2️⃣ Don't smoke 🚭
3️⃣ Have a healthy diet 🥗 🍏
4️⃣ Check & control your blood sugar & blood pressure
5️⃣ Take the appropriate fluid intake
6️⃣ Don't take NSAIDs regularly

#WorldKidneyDay
#KidneyHealthforAll
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🚨 Today is #WorldKidneyDay! And we are supporting the World Kidney Day campaign.

People with kidney disease are among the most vulnerable people in an emergency because of their ongoing need for consistently coordinated care, which is often lifelong and involves complex ongoing treatment.

🦋 It is estimated that about 40% of #SLE patients will suffer from #lupus nephritis: one of the most dangerous and frequent complications of #SLE. Routine check-ups and early detection of symptoms are key for getting an early diagnosis.

#kidneyhealthforall
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LUPUS EUROPE Uniting people with Lupus throughout Europe
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